Has anyone tried Traditional Chinese Medicine for their Crohn's and have any feedback on how it went? Thanks....
Hey poppysocks, Good to know you're exploring naturopath medicine, I have been recently looking into that. Please let us know your progress on that as well as biofilms (need to read up on this) and...
Hey bigtired, I have been on Remicade for 10 years. 2 of those were with Imuran and 8 of those have been without Imuran or anything else....
Hi Gumart, Thanks for sharing. Do you do anything in particular with regards to diet or lifestyle in order to manage your Crohn's without taking any medications?...
Hi Brennan, I guess im pretty much in the same boat as you in that i've been so lucky with my health that the only real time I remember that I have the disease is when I go to my remicade infusions....
Thanks for your input, Sorry to hear about your TB, is it resolved now? The risk of getting such infections is the exact reason I am keen to come off of the drug and explore therapies such as plant...
Thanks 73monte, I did see forks over knives and it is definitely useful. You and the other patients or family members of patients may want to take a look at this as possible further evidence of the...
Hi All, I have recently come across a few articles and documentaries like "What The Health" that have explicitly mentioned the link between the healing of Crohn's Disease and consuming a plant based...
Hi All, I have had Crohn's for 10 years now and have successfully been treated with Remicade for those 10 years, 2 of those years were with Imuran and the last 8 have been remicade alone with vitamin...
I am gona take my 4th infusion of Remicade in a couple of days, I have had no side effects from it and it seems to be working for me symptom wise, I will have a scan in a couple of days to see if it...
Hey, im sorry for everything that you had to go through but it seems like your going about it the right way, hopefully the worst is behind you. Goodluck with everything, Take Care...
what do you mean by minor break thru symtpms?...
Hey minou, I hope your infusion goes well this week. Keep me updated. What was your first surgery? What meds have you been? mlatida: For me I haven't had any short term side effects of Remicade at...
Hey everyone, This is Dawinner checking in, I haven't been on this for a while and felt like I should see how everyone is doing and how their medications are working for them, first thanks to all the...
please keep us updated on your progress with the worms...
Aimee, what kind of surgery did you have? slpsht mike, I was in the same position as you, I started with pred and pentasa but the doc said my 2nd CT scan showed more extensive inflammation than gthe...
Thank you for your post newfound. How bad was your Crohn's at the time you were diagnosed? What were your symptoms? How do you feel now? Have you not taken any conventional medicine whatsoever for...
Babeinthewoods, I only took a 2 week course of Cipro and Flagyll because of a small abcess that I had developed, those 2 antibiotics apparently did the trick though because there are no signs of that...
Ouch, I am only 21, but yeah I know what you mean with the whole drug companies protecting themselves issue. I guess I have no choice but to hope for the best! My doc told me that my previous meds...
so sorry that this happened, I think you should have a more detailed conversation with your doctor about this and express your concerns if that is possible. Keep us updated and goodluck...
I underatand what you are saying Nanners and tsito both but I also agree with jp in that looking at the side effects of Remicade are really really daunting, I guess they are rare though and hopefully...
Well I got my first infusion of Remicade today, not really strictly following the principles of the Macrobiotic Diet anymore but in general just trying to eat healthy, fresh food, trying to avoid red...
Hi guys, just got back from my first Remicade infusion, things went well, I don't feel any effects really except that I am a bit tired. tsitodawg thank you for your message, the reason that I was...
Hi Guys, that is very thoughtful of you, yes the infusion went well today, i didn't get any reactions or anything and I feel fine at the moment, just a bit tired, hopefully no other side effects...
I am due to start Remicade on Monday as well, I am quite worried about it due to the possible side effects but my GI thinks that this is definitely the way to go. Hopefully it works out for me and...
This new kind of treatment is very encouraging news. I am due to start my very first dose of Remicade on Monday and I am quite worried about it due to the side effects but I feel as if I have no...
this is very interesting, I am in the same position as you where a month ago I had to go to the emergency for pain and the CT scan showed that my inflammation had gotten worse from my first CT scan 3...
I know what you are saying wednesday, I am a bit hesitant to start the Remicade because it has been a month now since I had the CT scan with which my doctors are judging that the inflammation is very...
Hmm I see, i will look into eternal nutrition too, yea thats the problem, doctors don't know too much about the various diet options and if they do, then they dont really support them or even like to...
Thanks everyone for your input, nanners maybe I will try asking my doc about just sticking to Imuran for a while before starting the Remicade, I took my 2nd dose of Imuran today. As for Prednisone I...
True, I understand. Yes the plan is for the moment to start the Imuran and Remicade along with tapering off the Prednisone. I already took my first dose of Imuran yesterday and the Remicade procedure...
Thanks I see what you mean, so it is kind of like a long term maintenance therapy then. But what do you think about a scenario like if lets say it was to put you into remission after 6 months or a...
Thank you all for your replies, I guess I will have to start on the Remicade then but I hope I dont have to stay on it for years and years like some people unfortunately have here because I feel that...
kmdfm, yes in the 2nd CT scan which was done 3 weeks ago they did find a small abcess and they gave me cipro and flagyll for 2 weeks to treat that. After my checkup today though and a physical exam...
Thanks for your reply, I am in a situation where I want to stick to the Macrobiotic Diet and give it time to do its thing and to allow my body to heal itself naturally which is what the principle of...
Hi, I got diagnosed with Crohn's in Feb of 2010. I am a 21 year old male. I was given Prednisone and Pentasa but now I have been told that they are not working for me and after an emergency room...