I went to the ER after several weeks on prednisone with uncontrolled rectal bleeding. I was swaying on my feet and they admitted me within about 30 minutes, pretty quick for an ER visit! My blood...
I had a right hip replacement on August 20th. My right knee began to be painful about 3 weeks after the surgery as I got more active. The physiotherapist who is doing my home visits says that it is...
SO I am going in on Monday for my hip replacement. I decided that it is pointless to delay. I will need it replaced even if I wait 5 years. I am hoping for a great outcome. I am obviously very...
This is a medication (steroid) similar to Prednisone but is released only at the terminal ileum and colon. Because it does not circulate through your entire body, like Prednisone, it is much less...
I went to the rheumatologist and he basically told me that my only option for the osteoarthritis in my hip is a hip replacement. Since I am 47 he wants me to wait until it becomes a significant issue...
I am 47 and went through this in the last year or so. I can tell you about my experience and what my family doctor, GI and gynecologist told me. I was experiencing a period between periods every...
I am allergic to entecort, so it didn't work for me. From all accounts it is best for small intestine stuff. My worst Crohn's is in the last 2 inches of my large intestines so prednisone is the one...
Soy is like beans, broccoli etc. for me. It activates my digestive system too much, and my Crohn's doesn't like that. My GI said to use lactose free milk rather than soy milk, and I do that rather...
I have spent the past 3 days back and forth from the hospital emergency room and diagnostic imaging departments. I started having lower back pain last Sunday and it finally moved to the right side...
Best wishes and prayers for a healthy baby, uneventful pregnancy and gentle birth. I also hope for an October baby - it is a great month (my birthday, my daughter, 3 brothers, a step-daughter etc....
My GI told me to take pregnancy vitamins with iron. They are much gentler on the system, so perhaps you can ask your doctor about that. There are also liquid iron formulas that are very gentle....
I wanted to ask if anyone else has experienced this and had my theory confirmed... When I am under stress or too busy I sometimes end up with very bad lower back pain. It lasts for two or three days,...
My family can't understand why I need to be up 2 hours before we leave. I have tried to explain that my system takes this time to wake up and then I go the bathroom about 3 or 4 times in order that I...
I have been seeing a gynecologist for abnormal vaginal bleeding, and she has recommended either Mirena (IUD + progesterone) or ablation. What experiences have women here had with either, and the...
I have been getting the flu shot every year for years. I am a kindergarten teacher, and so I spend my day with all kinds of bodily fluids!! I have been told by every doctor, pharmacist and nurse to...
I have had a couple of very scary nights. I have been traveling to a funeral for a few days and I have had 2 nights in particular where I thought I was having a heart attack or something. I was alone...
There are some great yogurt drinks here in Canada, and I know there are various versions in the US and the UK. They have a bunch of the good bacteria, taste good and seem to be easy on my insides. I...
My GI told me to get pregnancy vitamins like someone else mentioned. The reason is that they have more iron and in a formula that is gentler on the digestive system. He also said all the stuff about...
I got married last May having been in hospital a couple of weeks earlier. I was on big doses of prednisone. My Crohn's doesn't give me the D, but it is in the last 2 inches of my colon so I get the...
I have just gone through a variety of tests for something like this and can tell you what my answers were... I had a uterine polyp. They can cause bleeding between periods, as well as heavier...
I got married last May, a month after being hospitalized for a severe flare. I was on prednisone and spending most of my days lying on the sofa. It made me have to have a very minimalist approach to...
I don't think people realise how CD affects every aspect of your life. I know cancer does too, and I know that none of us are wishing we had that instead, however there is almost no second of the day...
I said the same as ZenaWP - make sure that he stays until you are in the recovery room and awake... THEN he can go run his errands....
That would explain why food can go through us so quickly if we have Crohn's in the large intestine. 2 hours to go through roughly 20 feet, and then a quick 5 minute trip through the 5 feet of large...
I would tell him HE is welcome to go and do the things he needs to do once you have safely woken up from the anesthetic. YOU will be resting quietly at the hospital with a good book, or in a nearby...
My GI recommended that I eat All Bran Buds with lactose free milk and yogurt with bacterial cultures every day. I find that if I do that every day it really helps, and I notice if I miss a day or so....
That is fantastic news, and isn't she lucky to have your support. All the best to both of you....
I get on and off rectal bleeding for which I am currently adding Salofalk suppositories to the oral Salofalk to try to keep it under control. This has been going on for a while, but it is mostly...
I found not much difference between 40 and 20 in terms of side effects. I only start to feel less of the symptoms when I get below 20. I just posted also that perhaps you need to go higher to jump...
Sorry to add more, but I forgot to describe the bathroom... If you are claustrophobic it will be a little challenging, I have to be honest. Obviously there are no windows, and it is very small....
I have flown a lot in my life, and quite a bit since my diagnosis in 2005. I have to say that since my Crohn's became active flying is a lot less fun. First, I try to do daytime flights, after I have...
The first time I took prednisone it started working almost right away. This last time I took it I was on it for several weeks and it wasn't working. I was taking a dose of 30 or 40, but I ended up...
When I got to 10 I tapered to 7.5, then 5, then 2.5. I had to go back up to 10 a couple of times because my body needed a bit more time to adjust. The trouble is that our natural level is about 10,...
Thanks so much for posting this, Ivy. I think fatigue is the hardest part of this DD. It reminds me constantly that I am not well. I really appreciate reading this and recognizing that others...
Don't get me started on this!! Actually, my experience is with LTDI, not SSDI, but I will add my thoughts anyway. I was diagnosed with CD in March 2005. After working some and being off some, I...
Bagels do tend to sit heavy in your system. I would try to drink water, and maybe some tea. Hopefully that will help the bagel move through. I find that I feel nauseous if I have anything heavy...
Yes, I did the drinking too. It was pretty unpleasant, but no more so than any other procedure. You drink several glasses of the sweet chalky stuff. Then you wait a bit until it gets into your...
I like cupcakespinkgal's strategy, but I would check with your doctor. I have only taken 50 and below, and I took 50 all at once in the morning. However, I was pretty much bed ridden at the time so...
It is good that you are having a colonoscopy, and hopefully you will get biopsies taken and get some answers. I think it is fine that your PCP made his comments regarding the rheumy's report. That...
I use a hot water bottle, which feels great, and tylenol with codeine if really needed. I am in Canada, so I can get the tylenol with a little codeine over the counter. It is not much codeine, and it...
I think have mentioned before that my GI sometimes doesn't give me a full run down of my test results, and that I find things out months later either when he decides to tell me or my PCP reads the...
The problem with inflammation at the rectum is that it can be acute but not show on the blood work. I was literally swaying in the ER having lost a great deal of blood and feeling awful but my blood...
I agree with Ivy. I would definitely ask for a dietician. You should be able to get referred to one who would know how to combine your 2 needs. In your case it is essential that you get the balance....
My GI told me to avoid lactose when I was diagnosed. I think that a lot of people with CD find that dairy bothers them. It may not be that you are lactose intolerant, but that dairy is a food that...
I am going through some gynecological stuff too at the moment. It IS age related, in the sense that mid 40's is when certain things regularly come into play, apparently. For example I have uterine...
I don't know for sure, but my feeling is that inflammation and dehydration do not help teeth. Both happen with Crohn's. The hygienists that I have seen are always surprised by the level of recession...
My worst time is around March/April, and I have had my 2 serious flares then. I also have trouble in October. I attribute it also to those being times of greater stress at work, as I am a teacher....
I know that my GI always says so. After the colonoscopy a yogurt or yogurt drink with probiotics would seem to be a gentle way of getting something back in your stomach and rebuilding the good...
In retrospect I have always had times in my life when I had abdominal pains, and I had even had ultrasounds to check on things which found nothing. It was the stress of my divorce that put me into my...
I am so glad you are home, and that you have some wonderful help as you recover! Now is not the time to even be thinking about it, but I think I wrote before that the knee surgery might not be that...