Hi, I'm sorry that you have Crohn's. That's really hard news. Be gentle with yourself, while you figure this out. Look up all the meds, get to know what they can and can't do. Look into diets and Low...
I had a huge reaction to Imuran. And my doctor denied me too. I found out years later, when I was being interviewed for the human genome IBD project, that I was not alone, that was easily 4 years...
I've been on LDN for a year, a scope last fall still showed ulcerations, so maybe it wasn't long enough, but I have to say, I do feel better. My understanding, as I emailes one of the LDN docs is...
I've been on LDN since March 09. It was Rx'd to me by my Rheumatologist as I had Crohn's related tendinitis in my shoulder which spread down my arm. When I did my research and realized that it was...
Yes, well, if it's MM it's me. Do you know of others with fistulizing CD that has has used HT? Thanks Bertie, grins....
Totally helpful, Thank You Bee. I hope your doing well. Now, if someone could tell me if worms are helpful in fisulizing Crohn's, my day would be complete....
That's too bad. It's the never ending chit of IBD. LDN is an opiate agonist and cannot be taken with opiates, I should mention that. Did it occur to anyone that maybe LDN and salfa drugs cannot be...
You know I have troubles with the Yahoo forums, not getting responses, loosing posts. Annoying. 7007 perhaps you could ask and LDN + worth therapy person to post their experience here? Just a...
Good Evening All, Hey Nanners, how are you doing? This is all very interesting. I have wondered what's being going on in worm therapy but have been dealing with multiple issues, cuz after 25 years of...
HI, I am on LDN, which is helping a lot, and was looking at going on Humira to see if it would rid me of a fistula. I got in touch with Dr Zagon, (Penn state U. where they are doing the studies) when...
FYI RE: Formation of Fistula Fistulas can be very hard to visualize, even more so until the show themselves. J-Pouch and fistulas are not uncommon. Unfortunately, if the doc's can see them, too often...
@ Tsitodawg -- if you don't want to know about this, then stop reading this thread. If you want to take anti TNF drugs, then do so. We all get to chose our treatments and the side effects we are...
Ok, here's my take on this symptom. I think it's crohns, specifically a symptom of adhesion, though granted not all feel this pain, but the inflammation effects us all a bit differently as much as...
June, every one's CD is complicated.. I had a bad time on Immuran too, it took months for me to recover from it fully. I was also flaring so that didn't help, and my doc didn't believe the drug made...
For those of us more old school, pogo.com has free card and board games. I play bridge daily, keeps me.. ahhh, sane, yaa that's it, sane :)...
Yes, I had a not just a mesh rejection, which are most often benign, but an auto immune rejection of Polly Propolyne mesh. I had mesh put in in 2002 and that went fine, took a while to settle down...
I never took accutane, hell I barely had acne. I did have a 7 year bout with eczema for which nothing helped though and a bunch of different steroid creams and shots -- none of which helped... But...
I chew vitamin E capsules, 1 2x's a day. Works perfectly for me....
Not a typical reaction I don't think... The not going with cramping and bloating is something to talk to your doc about. They would have the results 7 days too. Best of luck...
I hope people keep posting on this thread... I've sent it to a friend with a stenton and will look at the abscess fistula thread. As bad as wearing pad is in the summer, I gotta say I've got some...
I just fired another GI. I swear I've never met a more unfeeling group of people in my life. I get along with all my other doc's, with occasional exceptions.. but .. buuuut... I just got a new GI, he...
My thoughts are with you June, hugs....
I'd go with the surgeon's advice. I think your life is about to change for the better, I really do. Opsite is a clear tap, in a roll, that you can keep things dry with. Cool stuff. M9 is a pouch...
I had an ileostomy for 4 years (wish I'd not got rid of it, actually). With that I got my first remission in 15 years. I got it due to sepsis after a resection surgery, so I had not time to think...
Something else to understand, your not sleeping is messing up your perception and guess what else lack of sleep causes, anxiety and panic. Between the steriods and 2-3 hours of sleep a day I became...
Tigerpawn, Why don't you try the pharmacist, they are experts at answering these questions, really. I have no experience with these drugs, so I can't share from that perspective, but a pharmacists...
June, the poops are still likely from the anti B's, with CD their effect is longer lasting. Also, you've started pro B's and this can give you poops too as your bacteria fight it out. So a little...
Fatigue is very much a symptom of CD. Maybe that's why steriods are Rx'd in part. Checking your blood work good idea. B12 may or may not help. I know there are different types of shots, and that this...
Candida? Maybe? I can look into this for you with an ND friend of mine. Or you an research it. Both perhaps... will let you know what I find out....
Yes, over time things will improve. Keep in my Entocort is a steriod, and it's messing with your mind/mood to some degree, less than pred, but still some. As you become more nourished your body will...
Good thought Navvy......
If you've ever had a blood transfusion yourself, your no longer able to donate. In Canada, our rules are country wide. IBD'ers cannot donate. My solution, I get my friends to donate instead, there...
Having had to go through surgery the hard way, severely underweight when I became fully blocked, I would have much preferred it if my GI had suggested surgery when I was physically stronger. I would...
Mine was taken out as that's about where the worst of the CD was. No biggie....
Breaaaaaaaaaaaaaath, deep and full now do it 4 more times. Your panicking, this is a reasonable response to an unreasonable situation. Keep the faith that this will pass, it will. In the mean time do...
Hi LC, I flared pretty much for 15 years, the biologicals where just coming out when I was so severly blocked that I had no choice but surgery. I lived with my CD mostly unmedicated for years, and I...
Awww shucks, let's not get all west-east about it. We both lucky we live in Canada :)...
Best to get something from your doc, or at least check with pharmacist re: benedryl mixing with your meds, and how it may effect CD....
My thoughts are with you too ((((Ides)))) Remicade doesn't go well with heart issues, as that was my reaction to it, so I can't take it. I will add to the suggestion/option list Low Dose Natrexone,...
Best I can suggest with the worries, is to let them go, think other thoughts, it do take some practice, but it can be done. Honest!...
We can't make you do anything, we can only suggest strongly that you go. Get a book, music, if your laptop has wireless, bring it too (hosps often have wireless for patients, you just have to ask)....
I had to wait a few months for surgery, and wish that I hadn't, all I did was get weaker as I waited. My recovery was complicated by sepsis, but I was truly messed up inside. So it took me months to...
I didn't sleep more than 3 hours a day for months when I was on pred, it made me very jittery. I'm normally a good sleeper, so the insomnia was a new experience (joy) for me. I did use Imovane (don't...
My pleasure Grand, I'd be curious to find out how it goes. Remember to start slow and don't get discouraged if there's a change of symptoms... ;) I'm guessing we're in the same city...?...
Olive oil is very good, generally. For those of you who take it straight up, and so long as it's not heated, cold pressed is totally the way to got. Full of good stuffs. Yummay!...
There's a post on pg 2 by Writer, just the abstract which was presented this week. LDN seems to be showing similar result percentages as standard treatments. In fact Dr. Smith, et all have yet to...
Oh Nice, HUG HUG HUG HUG HUG, I am so sorry to hear about your Dad, this is not easy even when your well. Actually, I think I answered Matt's question not realizing it was addressed to you, so, I'mmm...
I reacted to Remicade. And, as long as there is infection there is high risk of complications by the immune suppressants... more infection but one... So.....
Hi Astro, I'd rather you not be here for our reasons, buuuut since you are. Welcome to the forum, the toilet paper is extra soft ;)...
And tsitodawg, Thank You, smiles......