Thanks for the embarrassment and you should have just erased the whole thing or handled this privately....
This was the message Nanners left on facebook and asked me to update you all on: Still in hospital. On Wednesday they change the doc on call. Now just chg'd docs and I have one who doesn't believe in...
I would be shocked if you had already built up antibodies after 3 treatments. What dose and frequency are you on? Most people start at 5 mg per every 8 or 12 weeks but that is a really small dose...
Most people with Ulnar Nerve entrapment can actually solve the problem through physical therapy and sleeping with their arm wrapped up in a towel so it does not bend. It is when it gets to the point...
This is such a coincidence that you are posting about this subject because I just had surgery 10 days ago for this very thing. I too am on remicade and I thought it may have played a part in it until...
I want to first agree with the good advice that has already been given. Please pay attention to what Nanners wrote and never forget it because it it really common to find the correct med, stop...
Ivy, I am completely impressed that you know about R.S. and the whole setup of my organization. I had no idea lol .We do have weekly contact in at our church services with the other members and the...
Luckily, when my wife has a baby, our insurance covers for a few days in the hospital to recover. Hopefully it stays that way when or if she ever gets pregnant. I was supposed to have my gallbladder...
Mrs. Dawg lol I like that. She is actually a really healthy person and had her first medical situation of her life when she had her appendix out. She is just really busy due to the fact that she...
Thanks for the support, I really appreciate it. I just heard back from my G.I. and she wants to delay it for a week after my surgery. I am sure that I can handle an extra 10 days( adding the days...
A few weeks ago I posted about a surgery that I may have to have do to nerve issues in my elbow. For the past few years I have been watching as my 5th finger on my right hand started to curl up and...
Becktoria, can I get a list of the bag of books for my wife? jk Things will get better in that area once you start getting your disease under control. Be honest with your husband about the situation...
I am on SSDI also and I am not too worried due to the fact that this disease is always up and down and can change on a day to day basis. When I was approved, I would have only fit a couple of the...
Daunting, I really am sorry to hear of an all too familiar struggle that most of us went through during our diagnosis process. Crohn's disease is such a difficult disease to diagnose due to the fact...
Gabapentin or Neurontin is most commonly used for neuropathy but also used for the above mentioned. It is a good pain med but it takes a while for your body to full adjust to it. I am on a really...
After reading a few of the replies about crohn's disease and colon cancer, I decided to do a little research.(aka a google search) This is a topic that means something to me because my grandma and...
Pain medication is a tricky area because what works for one person may not be effective for another. I personally take hydrocodone 10's and it helps with the pain but does not eliminate it. Some...
I have asthma and still take hydrocodone. It honestly does not have an effect at all on my asthma. You can also take acetametaphin or extra strength tylenol. Even an antispasmotic like librax would...
The diagnosis process for many takes a long time and can be frustrating. For some it a quick diagnosis because their disease has gotten to the point of needing surgery when they go in or the damage...
Incredible advice by IAmthe Walrus(greatest name on here). Smoking is horrible for Crohn's disease and will cause you way more harm than benefit. Good luck to both of you and your fight against...
Crohn's colitis is still crohn's disease. It is just another way of saying that a person has Crohn's disease mainly of the colon. It is not a different disease....
I really like what Ivy posted about never requesting a medication. It is very appropriate to let your doctor know what is happening to you and the emotional toll it is causing but probably not...
Canuck Guy, Welcome to the group and I echo the sediments of all the previous poster in understanding what you are feeling. Your situation is very common and I would dare say that the majority of us...
Even though Cigna had picked up the whole bill in the past, did you still register to be able to recieve remistart assistance? If you had received their approval of benefits and are still within the...
I always knew that the Giants supported people on steroids but not prednisone. Just kidding,(longtime A's fan here) I actually posted this story on facebook as well. It is really sad to read about...
Insomnia has always been one of the side effects of the med and the disease for me. Since I already take medication for pain and neuropathy, I always try to schedule my doses around bed time to help...
Heather, I am sorry that you have had to join our club but it does not mean you were given a death sentence. It is time to do what my dad always says and pull yourself up by the bootstraps and take...
I used to work for a well known internet provider doing some tech and your issue happens more than you think. An easy fix is to download spybot search and destroy and lava soft adaware. Both of the...
I have had multiple root canals due to the steroids that I have used. I even ended up with a staph infection in my jaw after being a huge dose of prednisone for a year and having 3 root canals in a...
Staph infection is everywhere and everyone has it on their bodies at all times. Most of the times our immune system will fight it before it even begins to infect us. Sometimes the staph infection is...
What kind of meds are you taking for pain meds?...
Kayley, It is not rare for both males and females to both go through periods of low sex drive. Your disease does not help things either in that you are sick and you hormonal makeup can be all over...
I have been on remicade every month for 7 years now and would be happy to answer any questions for you. Most of the above posters have already given you a good description of how you receive the med...
First things first, YOU ARE NOT BEING PUNISHED BY KARMA WITH CROHN'S DISEASE. Crohn's disease is not a punishment for anything any of us have done or didn't do. Like everyone else here, you have an...
There are 60 year olds on this board with Crohn's disease. Why does your doctor not put in a port? Many of us here have very bad veins and need ports. As for the burning out stuff, this disease does...
mdf34 is absolutely correct in what he is saying. Remicade is a drug that has to build up in your system to reach it's full potency. After being on remicade for about 5 years, I thought that it was...
Did they premedicate you with anything else besides the dexadon? I get the same dose as you every 4 weeks and it is a pretty potent dose. I have been doing it for nearly 7 years and the premeds are...
This subject is one that you are always walking a fine line with. It is very important to educate those around us about the disease but it is more important to do it in a proper manner. All too often...
I love having a member on the board that is a dentist....
I had an issue where I had to have a tooth removed due to prednisone. Prednisone was horrible on my teeth and jaw due to the fact that it drains your body of calcium and vitamin D when you are on it...
Bart, welcome to the forum. There are actually a lot of members here who were originally diagnosed with U.C. and later rediagnosed with Crohn's disease. There are also quite a few of us that have...
Nanners, I am sorry that you are having such a hard time and I believe that this is a situation that should be able to resolved through compromising. When you speak to your boss, I would bring a...
I have been on all of the TNF inhibitor meds and it can be deadly to start on one if you have an infection. If your infection is being treated with antibiotics, they may start you but it is worth it...
Junerainbow, I am on both Remicade and Neurontin. The remicade does help with the arthritis but when it gets bad, a narcotic med does help. I have peripherial neuropathy similar to Ides but Neurontin...
Erwin, I am so sorry that we have to welcome you to the Crohnie club but it is good that you came to this website for support. It really sounds like your disease has been in remission for quite some...
Do you go to school? Some universities offer their students or alumni the chance to buy insurance. Snivler is correct about most states having already started their highrisk pools and that will be...
This law stinks....
I had to have my tonsils out after being diagnosed with Crohn's disease due to the inflammation in my body. Constant inflammation in the sinus cavity and throat caused me to get several colds, sinus...
I know what you are talking about as far as the burning pain and it can really be difficult. I use a combination of solutions to help with mine. First, I use remicade to keep the problems at a...
GMaister, where are you from? I noticed that you mentioned not knowing what the word for dead vein was in English. I am just curious now about what your first language is? You speak very good English...