Thank you all, Have left a message with my GI and am going to see the GP next Tuesday (earliest I can get in). We don't have a Rheumatologist in the town that I live, so i guess it will have to be in...
Thanks Matthew, I was a bit afraid that I would get a "get to the doctor on the quick" post. I can't believe that if the bowel isnt a big enough worry for us, that we have to be on the look out for...
Hi to everyone Well I've been off the forum for a while. Have been having some trouble with tiredness and sweating..still! I started Pentassa 2000mg daily almost 2 weeks ago. No side effects to...
Hey june, My GI wanted me to start imuran, I asked him if I could start on a 5ASA first. He agreed and I have recently started pentasa. Yet to see if it will work or not, I am having another scope on...
Hey everyone, Have been off the forum for over a week now. Have not had a good time for a while. Anyway able to at least come to the computer and just say Hi. I have read some of the posts and some...
I can certainly relate. Its annoying, frustrating and embarassing. Especially when someone not suffering from CD next to you says "jeez, go and eat something!" What's a typical grumble to them is an...
Hey, full plate all right. Central and left radiating chest pain/burning definitely sounds like reflux. Are you burping heaps? Anyway, would'nt hurt to be on a PPI (protein pump inhibitor), they...
Just wanted to say hi and welcome! Well, I see from your post you have certainly been thru the wringer, and in doing so I am sure you can offer heaps of advice and reassurance to others too. Youre...
Prednisone has also kept me awake too. The GP gave me a script for a night sedation which gave me about 4 - 5hrs of sleep. Not alot I know, but it was a relief to have some sleep on board. The name...
Hi Nate, Welcome...glad to have you. Always willing to chat if need be. Lots and lots of support here, as Nanners has said. Do check in and let us know how you are doing. Some seem to be on here more...
I started pred around 4 weeks ago and didnt notice any change for the first week and then...WHAM! My face became puffy and it was noticable to those around. Given that prior to staring pred, for...
Lyn, I agree, the blood from your stool maybe coming from the small bowel. The small bowel (as you probably know) is the longest part of the bowel. So even if the large bowel looks OK and the a...
Good on you for giving it a go!! I hope very very very much that it takes you down the path of good health. I have also heard of studies with worms that work for your system and become like little...
Hi Astroboogie, You will find alot of support and advice here on the forum. Plenty of people willing to help and comfort at any time. Sorry for your diagnosis, but at least here you can ask the most...
Vicky, I guess the possibily of it being kidney stones in both kidneys is not impossible. Maybe another suggesstion could be that of a bilateral kidney infection? Sorry I cant help to much, but best...
Hi fingerscrossed, Given your history, it is really improtant to seek second opinion. I have learnt that crohns can flare and then go into a remissive state. But as time goes on the flares become...
Grandpato2 - Thanks for taking the time to read my update. As what you did with the info you received from the posts on the forum, my GP is also open to such suggestions. He seems to be interested in...
specialknbug, I am sorry I cant help you on this. All I know is that I am on prednisone and that is certainly a "weighty" med. I was 47kgms before starting this about 4 weeks ago and am now 56kgms....
Hi guys, Nanners- yes, I have read that Xanax can be very addictive and my GP did warn me of this. I think when he saw the sweating, he couldnt believe it! Took just one yesterday and the sweating...
tsitodawg, Thanks for the reply. "gut feeling" (pardon the pun) is that yeah, there is something going on. And the colonoscopy did reveal coliits throughout the large colon. However, I am going on...
I guess it depends on what sort of problems you're referring to. But if its problems relating to your health, one think I learnt from day 1 on this forum is that there is a enormous amount of...
MToronto2, No no travel to note, and I'd like to think that I'm quite a hygienic person!. Cant rule out a true IBD but at least I can rule out it the future any doubt that conflicts with GI vs...
Ivy, Yes. Did I mention before that my GP says there is a good IBD team at Concord Hospital. I will get back to him shortly and request a referral to them. Dont want to tread on the toes of the GI...
Hi all Well, yesterday I went to see my new GP. I cant say how wonderful he is. I was in his office for at least an hour. My hands were sweating unbelievably as were my fee tand my shirt was...
Absolutely for me...I am also stressed with finacial issues and a couple of other things at the moment and the crohns definitely lets me know that its not a fan of stress. How to combat it? Well..for...
Hi guys First of all, thankyou so much for jumping in and getting back to me so quickly. I guess I retracted for a couple of days just to "kick the cat " (so to speak), have a cry and scream. Just...
Ivy, Not too much pain, just a bit crampy - not the problem. Diarrhoea is under control somewhat, present but not overt at present. Just feeling isolated I guess. Finances a huge worry. GI doesnt...
Hi guys, I have posted some replies yesterday, but have not been on the forum for a couple of days. Not because I am feeling well, but quite the opposite. I know of a new member who has just joined...
Dreamlady, Charlee again, we certainly sound like we are pretty much on parr with our current treatment and pending treatment. I am going to see my GI in a couple of weeks and am going to ask him if...
Hi Dreamlady, Charlee here, I am Australia too - about 5 hours drive from Sydney. I too am newly diagnosed with crohns and am dealing with exactly what you are. Fear, worry, what the future holds etc...
Hi all, Well, have given it a couple of days now, and am sorry to report that the one night of no sweating was just that! Still seems to be present. Coming into winter down here shortly so the days...
cannynancy, I have just had a look on the web - googled - low dose naltrexone and sweating - there were a couple of sites that indicated side effects of sweating and night sweats to taking LDN. Check...
Oh....you guys...even going to the troulbe to look at the dictionary..feeling the love now! Its so nice to come on and see what people are writing when you post something, even if you think its a...
Jo, Thanks for the reply. Would rather here of things that go wrong on meds so it gives me questions to ask the doc and weigh up the good with the bad before starting. Also gives me something to...
Hi Rita, Welcome! I am new to the forum also. Recently dx with CD. You certainly have your hands full with your family, but I bet your kids are your pride and joy! I havent been on any other forum...
Thanks for all the posts, Seems to be relatively individualised. I would be happy if I could wake up and just feel like I could get on with things. Severely battling the mindset of a chronic illness...
Hi Ziggy Glad you joined. I am new to crohns, dx April 2010. Been on pred for almost 4 weeks and GI wants to start a longer term med in a couple of weeks. Sorry to hear you are having trouble again....
Hi all, Recently dx with crohns, and trying to combat all the signs and symptoms. I went to a new GP the other day and told him that the constant SWEATING and NIGHT SWEATS was just one on the...
Ivy, Late to reply, sorry. Not good at this internet thingy. But have cottoned on to LOL. Laugh as loud as you like - good for the soul! Yes, it is complicated, but I get it....your sought of like a...
Hi Jo and thanks Ivy, Sorry for the late reply, Jo (I was telling 1vy I was'nt very good at the internet - new to it). I have recently (3 weeks ago) been diagnosed with crohns and was wandering if...
SydneyJo, Have been on the crohns forum and ivy6 told me you might be on this forum..calling on you because I have been recently dx with crohns and live in Aus - about 5hrs drive from Sydney. I am...
Ivy, Will go to the rheumatiod arthritis forum and post out SydneyJo. Havent yet joined Colitis Australia but have looked at the site. You almost need a GPS to surf the net when youre new on it...and...
Ivy, Regional, but not in the sticks. Regional city - one public hospital - where I work, another private hospital. GI specialist here who has an endoscopy centre with his practice and surgeons...
Ivy, Someone from Aus too! Fantastic - yeah, I know. Just in that overreactive initial phase. Can I ask, where are you up to with the crohns and what treatments. Living in rural Australia. Nearest...
engineer555.9, I am certainly in the infancy of learning about the tx and mx of the disease. As with the commom cold, you can have a bad time with it or get thru it relatively unscaved! However, this...
Not 100% sure, but if you have only just started the injections and havent changed anything else, it sounds like it could be related. Google B12 injections and symptoms to see if they could be...
Mtoronto2, I,ll take an intermittent back pain over a pulled arse tendon from a dunny visit. You win!! Thanks for the advise about bowen therapy - will look into it. Laughed alot at the end of your...
engineer555.9, Wow!! I dont know where to begin. You have been thru so much. I dont know how you have pulled off studying for a degree and are just about to complete it. You definitely are a success...
Grandpato2, The lower back pain is a sharp, grabbing like pain right in the spine. It doesnt favour the left or the right and remains central. Doesnt radiate anywhere. Presents itself when I am...
Well Ive only been recently diagnosed with CD and can only wish it was "irritable". I agree, the world, probably especially journalists need to recognize the difference between IBS and IBD. The...