When I took Humira I was told that the recommendation was thighs or stomach but I could use another area as long as there was ample fatty tissue. As long as it is not injected into a muscle because...
I am currently on Remicade and have been for 2 years (with the exception of 5 months where I tried Humira. The past week or so I have been extremely fatigued but unable to sleep at night - tossing...
When I started Remicade I was told the weight gain was from my body actually starting the nutrient absorption process again. Yay for your son!...
I actually know someone who was diagnosed with UC only to find out several years later that it was Behcet's diasease that was only manifesting in her GI tract and ulcers in her mouth. After years of...
I loved Remicade. In fact, I know that alcohol is sort of a no no with CD but I'm in my twenties and was able to eat salads and drink socially on occasion with no problem on Remicade. If you start...
Thank you so much for sharing such great news with us. This gives others us of great hope since info regarding biologics an pregnancy is so hard to find. Congrats!...
Also, you may want to ask your doctor for some orally dissolving zofran for nausea the first few weeks and when you up your dosage. It gave me great relief!...
6MP did not work fo me...unfortunately but I also have a tendency to get the more rare side effects. Even though the Prometheus serology test said I could take 6MP, I had to discontinue it after...
I was taken off remicade because it gave me drug induced psoriasis. My GI at the time claimed she was no longer comfortable giving me the medicine and told me I needed to be switched to Humira...
Unfortunately, that test is not reliable and those were the exact words from my doctor at Mayo. My results were interepreted as a non-existent chance to develop UC or CD throughout my lifetime. While...
isergodur- I would definitely show that to you doctor. I have had a few issues with my injections but it has never swelled up or turned that red on such a large area. Hope you get some relief....
I had the small intestine MRI enterography done at Mayo in Scottsdale. The doctor said its a very useful test if there are issues with your small intestine (but my Crohn's was never shown to be...
I am in Austin Texas, which is notorious for allergies. While I dont have horrible allergies there are so many things that the headaches and nausea could be attributed to. I started Humira recently...
My extremely tactless GI that told me Humira pens shouldn't burn has me panicked again (don't worry I'm in the process of looking for a new GI). At that same visit I told her that I have had more...
I switched from Remicade to Humira when I was well controlled so unfortunately I have no idea of guessing when you will get some relief. I absolutely agree with you that injecting in the thigh is the...
I actually take it out of the fridge about 30 minutes before I inject it. My nurse did that the day I got 4 injections and suggested that I do the same. She said throuout training Abott has always...
Thank you for the suggestions. I think I will try a little higher up on my addomen as I'v been doing it a little below and to the side of my bellybutton. When the nurse met with me to give the first...
I took nystatin too - I found it bothered my stomach (it was extremely sensitive at the time)so they switched me to a week of fluconazole pills and it worked just as well....
Fongers06 - Do you find that the ice helps? When I had 2 injections a few weeks ago I did one with ice and one without and the spot where I had iced hurt much more. However, I also have found that...
In a follow-up with my GI yesterday she asked me how my Humira injections had been going. I told her it was fine... that I have found it more helpful to inject in my abdomen...but that it still burns...
This would happen as soon as doctors are gone for the weekend... I was at dinner tonight when I started getting an unusual feeling on one side of my face. By the time I got home it was becoming...
The sleep number has been one of the best investments I have ever made. It is pricier than most but I figure if I'm going to spend 6 hours in it a day ( 1/4th of my life) it's worth it!...
I started humira 9 days ago and now my addomen appears more and more distended by the day. I do have some pain, but not anymore than I had on Remicade. The distension is becoming slightly more...
My OBGYN said that area can often become inflamed during a flare because crohns seems to manifest itself in the easily agitated epithelial cell areas and that's one of them....
Yes. A few days after the infusion I was not having any of those symptoms and it has stayed that way. I do however have some centralized abdominal pain but they have not been able to find what...
My crohns got symptomatic after having appendicitis. They think it could have been a result of my infected appendix or the antibiotics. Though you can't for sure tie the diagnosis to a cause, I know...
Hope you have an 8 or 12 mg tabs of zofran that dissolves in your mouth. My symptoms definitely stuck around for a longer than what the docs said they expected. At one point I kept those ice pops in...
I just got pancreatitis from 6MP at the beginning of june. Even after my amylase and lipase got back to normal it took more time than that for my body to recover. I loaded up on zofran and stayed on...
Sweetnakira- According to my doctor everyone is on pretty much the same schedule and dose. While Remicade is usually infused every 8 weeks with a dose that depends on weight, Humira comes in a...
I just wanted to tell you the world needs more people like you. My fiance left me as soon as I was diagnosed with Crohns... in the hospital no less. His lack of support has caused me to develop...
I just got my loading doses of Humira yesterday and frankly it made me feel like a wimp. With all the procedures and pain we deal with I thought it would be a breeze...but it didn't go as well as I...
Chronic pancreatitis is definitely something I cant stop worrying about. It's terribly painful and I'm not sure mentally I can handle one more complication that I have to deal with the rest of my...
A little over 2 weeks ago I developed pancreatitis on day 14 of starting 6MP. When I got to the ER, my amylase was 6 times what it should have been and my lipase,(which should be between 12 and 60)...
Just last week I got pancreatitis from 6MP. I was on my 14th day of it and it all came on so suddenly. Monday night I was fine and by Tuesday morning when I got to the ER my amylase was 6 times what...
I would definitely use the capsules. You will go through them faster than the packets but I think it's worth the cost,...
When I started remicade, the nurse told me centocor would supply you with remicade for up to a year if you lose your job. Hope that's true....be sure you check it out with the company!...
I just got back my lab work and CT scan results and I do have pancreatitis from the 6MP. They told me there isn't much you can do for it except go on all liquids, take pain meeds, and obviously stop...
I am in the process of coming off Remicade so I have started 6MP. The 6MP has caused a lot of nausea and some vomiting. But starting sunday night I have had some pretty severe upper abdominal pain on...
Thank you guys for all the help and encouragement. Yesterday, they added a medicine to my night time med routine and for some reason it made me SO dopey, which is why my post last night sounded super...
So far tonight I'm doing ok. They doubled my zofran dose and gave me the sublingual dissolving tabs. I haven't thrown up this evening yet so hopefully im making progress. Starting tomorrow I can take...
I just spoke with my doctor and she is going to let me try taking them at bedtime. I had not tried that before because it specifically says on my RX to take them in the morning. She also is calling...
I'm really sorry to keep coming back with questions about this...I'm just not sure what to do. My GI is taking me off Remicade and trying to get my on 6MP as fast as possible. I started 6MP last week...
I have a darker complexion and always tanned, never burned....until I went in the sun on prednisone. It was the only time I have ever been sunburned. I would definately be generous with the sunscreen...
You may want to ask your doctor for a prescription for Zofran or something for nausea. While some people don't get nauseated, it is the number one side effect of 6MP. I just started 6MP for the...
My Remicade infusions cost around $6,000 each time I went (every 8 weeks). I only had to pay my copayment and they do have a program called Remistart that helps pay your deductible etc. I would...
Are you avoiding phenergan because it makes you sleepy or are you just trying to stay away from meds? My doc switched me from phenergan to zofran and it works so much better for me and doesn't make...
Thanks for the suggestions. I'm going to see if my GI will consider lowering my dose. I weigh just under 100 pounds and I am supposed to be taking 75 mg. I suspect she put me on a higher dose because...
I started 6MP 4 days ago and I am on the highest dose that my dr will allow me to be on given my weight. The first 3 days I was pretty nauseated in the morning but I feel like today it has all caught...
I went to Mayo in Scottsdale, Arizona and I was there for 7 days. It's definitely case by case but it took several days to get a special MRI scheduled. They will ask you how long you have planned to...
Two months before I got the crohns diagnosis they thought it was appendicitis. I had abdominal pain and vomiting. In the CT scan my appendix was blocked by my slightly inflamed colon, which they...