I had a resection in April. The first couple of days drag on, but once things start moving around again you get food :)...
When I was at Mayo, I think my nurse had at most 2 patients at a time. They always had tons of nurses up on the GI Surgery floor!...
It can take a bit of time to kick in. I felt it from the get-go, but my doctor told me that it can take a few sessions. Also, I found out that if you let your stress levels get out of control (which...
I wouldn't because people might see it and be misinformed. I would just set myself up on it, and then if I met someone I thought was great, I would tell them about it when I felt it was right....
I had surgery in early April, and they told me if I didn't eat much sugar and ate pretzels and potaotes and other starchy foods, I could potentially have solid BM's. I tried that after about 2 weeks,...
I seem to have upset in that general area whenever I start new medications/herbal supplements/vitamins and Iron. My doctor said that it's not really that surprising, and that it probably is somewhat...
It's unfortunate how your friends are acting. My friends did the same, especially a few of my sorority sisters who just couldnt seem to understand how drinking could negatively effect me if my...
I've been with my fiance for 3 years, and engaged for 2 years. We met at a social event, and really hit it off when he came over to chill and discovered that I had a puppy. He used that puppy as an...
I was coming on here to ask about this too! I attempted to go camping this weekend, and ended up leaving yesterday afternoon because I just couldn't seem to handle the heat. 95, but it felt like 105!...
I was on prednisone for at least 8 weeks prior to surgery, and continued with it through the surgery, and after for about 6 more weeks. They told me it would take a bit longer to heal, but that it...
I was in the same situation and ended up having surgery.. Getting rid of the really inflamed area made a huge difference for me, as I could not live my life prior to surgery. I would meet with a...
Hi MissCriss -- I had surgery at the beginning of April of this year as I had horrible strictures that were only getting worse. I was lucky to have mine done laproscopically, and only had to stay in...
If you feel alright prior to the trip, go. I went to Morocco in December, right in the middle of a nasty flare. Probably wasn't the best idea, but I enjoyed myself nonetheless. I knew that the...
You could always call up to the big hospitals (Mayo, Mass Gen, Brighams & Womens, etc.), explain your situation, and see if they could give you a name of a GI in your area that trained at their...
I read that they were going to start tests for Simponi for CD sometime soon -- but I read it about 4 months ago. If I can find the article, I'll add it here....
I had strictures in my small intestine that I had to have removed, as they were realllly bad. I would get really bad nausea and pain, and the worst part is that I wouldn't want to eat anything, as I...
I've felt like that in the past -- especially when I was put on prednisone for a flare. It just sucks the energy out of me, and I am sure that it helps me in some way, but it makes me feel like I...
I have such an issue with this too... I have such a hard time telling myself no! I try to let myself indulge a little if I have had a few good days -- but within reasoning. As in, when I want...
Do you have active disease in your colon? I had something similar to that happen to me when I got back from an international vacation that I took in December/January. It was horrible, and about 10...
Do you have your bloodwork monitored to make sure you aren't B12 deficient. That is the only reason they have me on B12....
Have you had issues with strictures? I had reallly bad strictures, and would bloat out to the point that people would ask me "how far along" I was... I looked about 140 when I was only 120, and felt...
Ok, thanks. I take methotrexate, and have taken azathioprine in the past, and may take it again in the future, but didnt want to if it was just going to be the same type of drug that I took in the...
I used to do that, but it seemed like everything was just setting me off, and sending me off to the bathroom.....
Are 6MP and Methotrexate the same drug? I know that 6MP is similar to azathioprine, but I can't seem to remember if it is the same type of drug as Methotrexate or not....
I had a resection in April -- 2.5 feet removed. It's been about 2 months now, and stuff still goes through me sooo quickly, however, it's become more predictable -- as in I know that if I eat, within...
Yup. If you wanted breakfast at 4p.m. or a dinner food at 7a.m. you could get it. Full menu all day!...
I liked the variety, and the flexibility was awesome -- you could order anytime between (I think) 7am-7pm, and it would be delivered within 45 minutes! It was great for me because I am incredibly...
When I used to be on high amounts of predinsone, I would still go out -- but would make sure that I was hydrated. I went to a baseball game one time when it was 100+ degrees F, and didn't eat or...
Remicade can be a pretty good drug, you just have to be very cognizant of how you are feeling. Have you looked into Methotrexate or imuran?...
Well it was interesting because they give you what is basically a menu with all kinds of choices on it, and they have some items listed in specific categories such as : low residue diet, soft food...
My first time, I think I was there 5 days. They are really good about getting everything scheduled quickly, though, and the hotel's up there will allow you to give a flexible date for check-out....
When I had surgery in April, they gave me this thing called Quease Ease. It's a little canister that you can smell when you are nauseated, and it definitely helps! If you google it, you can find it...
I'm on the injections, and have been since....February (I think -- it's been a long year already!) I didn't have any issues with hair loss UNTIL I had my resection in April -- however, I doubt it's...
I was diagnosed 6 years ago, and have had 4 colonoscopies to date. I didn't have any problems with the insurance covering them either, and if I did, I would have raised he** :)...
I LOVE coffee and tea! I actually worked at Starbucks for awhile, and was constantly caffinated for about a year! However, I had a resection 7 weeks ago, and since then have not been able to enjoy...
My GI won't prescribe them to me, and I really don't feel like going to my other doctors for them. As much as I would like to have them at times, I worry about becoming dependent, or the physical...
At my last Remicade pre-surgery, the other person who was having Remicade had the exact same thing, except they already knew that he had Crohn's!...
Oh, I hated being on predinisone!! I would wake up just soaked, and then when I would be at work, with the thermostat at 65 in dead winter, I would start pouring again!!...
What a cruel coincidence; to have Crohn's and then to have to deal with that situation. I've seen some pretty gross stuff in "middle-America", including diapers, ie, landmines.. However, if I ever...
When I had my resection, I had it at Mayo Clinic and wow -- they have an impressive way of dealing with all the different diets!...
Until you are on adequate medication, you will fear that you won't be able to be active. I was diagnosed at 17, and am 23 now. It took a couple of years to get me on the right meds -- I even had to...
Mayo is fantastic. They know so much about all of the medications, plus they run trials on new meds constantly. I have been going there for about 4 years now, and they have been able to help me so...
Great to know! Thanks for all the advice! I find out if I have a colostomy or ileostomy in 2 days -- eek! However, I'm ready to start on this -- no point in staying in pain if I can avoid it!...
Oh, well that is nice to know! Thanks :)...
Will doctors generally tell you a specific amount of time in which they believe that you will be able to have the reversal done? I meet with the surgeon on Wednesday to figure out if I am going to...
Chronielass: Thanks for your input. I am pretty aprehensive about this, but at the same time, looking forward to getting some semblance of my life back. I have strictures all along my Terminal Ileum,...
wow, thanks for all the information :) I'm quite excited about the prospect of actually feeling good again, and FINALLY getting to use my college degree (and get married!!)! I'm glad that this...
Yep, I have severe Crohn's and have tried pretty much every medication out there. It's either surgery or Tysabri -- which I feel is not the right choice for me. I just want to feel normal again! It's...
I'm looking at having either a sigmoid colostomy or an illeostomy (either way it is intended to be temporary) in the following month. I am relatively terrified about this process, as it just seems so...