Hi folks, I had a PillCam done on Monday morning. They had to place the pill via EGD because I was unable to swallow it. I was on a clear liquid diet all day Sunday before having it done. I have not...
Finally caught up with my doctor today. She wants to scope me....again. I am not happy about this. They just scoped me in April about 2 weeks after a severe flare that put me in the hospital. It came...
I got that from a combo of Remicade and Prednisone....
Ok, so. I have been having major issues since Friday and I'm getting very concerned. I've been having bouts of excruciating abdominal pain and cramping that pass within 10-15 minutes. It feels like...
Oh great. I was afraid that's what it was. Thanks for the reply. *steels self for a rough few weeks*...
I've been on the evil that is Prednisone since April. I am in the final stages of tapering and have been doing okay-ish with it until I dropped from 10mg to 5mg. Since then, I have been plagued with...
I am 3 doses into my Remicade experience. Like you, I went on it very quickly - I had been hospitalized and prednisone alone was not doing enough for me in my doctor's opinion. I had the TB test and...
For the record, mine started before I was on any meds for IBD. In fact, mine started around the time when I think my disease originally became very active (around the time of my multiple ER trips in...
Oh my gosh. I thought this was just me. My left ear has had this problem for well over a year now. I've mentioned it to my doctors and they've shrugged it off. If you come across any answers, I'd...
I know I'm still a newbie here, but I've been totally thrown by this. I lurk and read, and my heart goes out to his family....it's scary to see the full picture of what this disease can do to you....
This actually happens to me a fair amount....urgency, and then I pass nothing but gas and mucus. My GI says it's from chronic inflammation. Wish I could be more help, it's painful and frustrating. :(...
Getting it put it was completely anti-climatic for me. I had it put in at my 6-week checkup after having my baby, and I was TOTALLY freaked out about having it done. There was literally one sharp...
I have a direct number for the nurse practitioner at my GI's officer. She is beyond awesome about calling me back and helping me with things. I have to say I'm jealous though, what you have is above...
Hi everyone! :D I'm due for my next loading dose of Remicade on Monday. I have no idea if this problem is linked to the Remi or not, but thought I'd ask. I've been SUPER tired the last few days...
Yup, sounds normal to me.....I get up an extra half-hour earlier now to accomodate my waking bowels, lol....
I have an IUD (Mirena) and it doesn't seem to bother my bowels one way or the other....
I've been feeling like that the last week myself. I'm beyond tired of it. I've been drinking regular Coke like crazy because it's one of the few non-prescription meds that takes the edge off for me....
Oh geez, I hate it when that happens SO much. :( You have my sympathies. All I can say is, it's times like those that I'm glad I have an iPhone. Passes the time, lol....
It never seems to tie to anything I eat in particular.....it likes to show up when I've had multiple bad days in a row. It's like my gut gets so disgruntled it doesn't want to act right. I do take a...
Arghhhh. I've been flared for going on 4 months now. Things are sloooooooooowly settling down, but last night/today I have been suffering from some absolutely violent gas. The kind that makes you...
I take the Target brand gummy vitamins. They don't taste as good as the One A Day version, but they're a lot cheaper....
I start with Darvocet and it usually works quite well for me. If that doesn't manage it, I also have Lortab and Diluadid for major emergencies (usually only used to get me to the ER......). I do like...
I have this problem with my PCP's office too....they always tell me that my problems are 'too complex' for them and to call my GI. Until recently, my GI was over 2 hours away, so that was a problem....
Oh my gosh, that sounds terrible! I hope you get feeling better soon. :(...
*waves* I'm a long-time WoW junkie/addict - I currently run one of the top casual raid guilds on my server. :) I'll play anything I can get my hands on though. I even still have a working Atari 2600....
I had this done awhile back. It was a piece of cake. The stuff I drank looked and tasted like water (but had whatever the magic ingredient was in it), and then I just hung out in the GI department...
Ok, I survived. The MRI showed that the vertebrae sliding around has torn the disc slightly; it's not good, but it's not as bad as it could be. The doctor is recommending physical therapy for now,...
I had a completely clear scope a week after being in the hospital with a horrible flare. So frustrating....
Flagyl does that to me, every single time....
I have seriously had it with this flare. It's been ongoing since mid-April. Has gotten a little better, then will randomly degenerate back into the 'really bad' territory. I'm still on 10 mg of...
June, I have no advice, but I just wanted to offer sympathy and hugs. I'm so sorry you're still feeling so badly. :( *hugs*...
I also use Almond Breeze, but I don't follow SCD or anything. I do find it sits better with me than soy though, and WAY better than regular milk, hehehe. :)...
I've been having a horrible time with this. I'm in the panhandle region of Florida where it's easily been 95+ everyday with 95%+ humidity. I can't STAND it some days. It makes me nauseous and...
I have this problem as well - when I was flaring hard it was a non-stop thing. If I dared to eat, I felt like throwing up for a solid 2-3 hours afterwards before it would abate to a low rolling...
I actually had my second infusion of Remicade yesterday and so far - knock on wood - I'm headache free....
1asalsa, yes, that is part of what the doctor told me. It's reassuring to hear it can sometimes just be treated via therapy....I really really really do not want to have surgery unless it's...
I had a headache for almost 4 days after my first Remicade infusion. Tylenol helped, but man, it was aggravating. It did finally go away though. I mentioned it to my GI and he said it was pretty...
Have you tried Chex? It's a rice cereal, and it usually agrees with me. :)...
Thanks for the comforts, guys......they actually did offer me pain meds, but I passed since I have a pretty good cabinet for the belly trouble that I almost never touch as it is. If it gets bad...
I have had multiple scopes - half show colitis, half have been completely clear. It appears to be a crapshoot, no pun intended....
So my back has been hurting. Lots. I went to put my toddler in the bathtub on Friday night and it totally locked up and my knees went out for about half a second, resulting in me faceplanting the tub...
I had this problem with the one CT Entography I had. Whatever they gave me for contrast was just mixed into Gatorade, so it was quite palatable and not bad at all. But man, about 3 hours later....I...
If it's something unusual for you, I'd certainly call your doc about it and see what they think. However, since you're not feeling too terrible, I wouldn't be TOO worried about it. I almost always...
If they haven't, ask that they send your urine off to be cultured. I suffered from a very persistant and stubborn UTI for MONTHS that didn't show up on a regular test, but when the nurse practitioner...
One thing that always has helped me is plain, regular Coke. Not diet, the real stuff. For some reason that always seems to help mild cases of nausea for me. You can also buy something called Emetrol...
I also have this upper left quadrant pain almost all the time. The worse the pain gets, I start running to the bathroom more and getting more mucus and blood. That said, my current GI gave me a...
I totally have the racing heart issue with Prednisone, especially the first few weeks I'm on it. I feel like I'm on speed or something, it's terrible. The lower the dose gets, though, the problem...
Nice to meet you. :D...
From what others have said here, that sounds like a blockage of some sort. I would call your doc ASAP....any pain that severe and unusual for you certainly warrants a call, IMO. I'm sure others more...
I personally have not had the rash issue, but when I was researching Remicade, I do remember seeing multiple posts about people saying they had problems with a blistering type rash from it. Bring it...