Thank you all! I did try Benefiber before and didn't like my results. I honestly think I was so sick that I just have a bad memory that had nothing to do with the Benefiber. I will check all this out...
I am getting ready to start on some fiber to bulk of stool. Previously I used Citrucel but don't have any right now. I do have FiberCon though. If anyone is on Fiber I would like to know which...
I've been on LDN since June 2010 and it has really helped me alot. I had to go off of Humira due to a severe case of Shingles. So I tried LDN and have had good results so far. Had never heard of it...
YES they do!! I CANNOT take Azithromycin at all. Get D everytime. I won't even try it. Just a few weeks ago I also had an upper resp infection and got a shot of Rocephin and Cipro. Ended up with...
For some reason I was under the impression that these two drugs are VERY similar. Now I'm not so sure. I took Asacol for 17 years and just recently had another flare and my GI switched me to Lialda...
Yes, me too. However they are telling me that thing I hear all the time about risk vs benefit. I spoke to one of my regular docs today and he "thinks" it is ok. I have another appt on friday with my...
I'm in the same boat with most of you. Salads and fruit keep me in the bathroom. I LOVE them too! Have to space it out when I do choose to make the wrong choice! Hahah!!...
I think my GI is wanting me to get the vaccine before I go back on Humira or any other biologic. I really can't decide what to do. I am also on 10 mg of Prednisone right now and they want me to stay...
I had my last Humira injection in mid May of this year and by the middle of July I was getting in bad shape. It doesn't take long. I suggest Asacol and probiotics and actually I decided to try LDN...
I just started on 10mg of prednisone for my joints. We tried this in hopes that it would also help with my gut for now. I am not absorbing the whole 10mg though. I can just tell......
I have read some about the MAP Theory but it I haven't taken the time to sit down and take it all in. I hope with all I have that the vaccine can be given to those of us that are already affected!...
My GI spoke with an Infectious Disease dr. that is in a group that I approve of. Together they decided that I SHOULD get the Shingles Vaccine and 7 days later I should start taking Valtrex. I am...
Thanks. I am anxious to hear what he and his colleagues have come up with. I have a feeling that none of them really know what to do...... I do know that if I thought it was safe I would get one b/c...
good to know. I've had acupuncture and I love it. Maybe I'll start that back as well. I do all sorts of unconventional things for my CD. I'm pretty sick right now....just hope this lialda does...
If any of you have read previous posts I have made then you know that I was on Humira and Immuran when I broke out with Shingles. It was bad. I was hospitalized and I had IV anti-virals every 8 hours...
I started on Lialda today and I am wanting to know something about it. Does it just work on a certain area in the gut? I have taken Asacol in the past and I thought these were the same thing and I...
joy47, Your words are so correct and also sweet and kind! I agree with you. I think I will tell him the mad at the disease and not at me part. Oh, and I've mentioned counseling and of course he said...
Hmmmm.......40 doesn't sound so good, huh....
I may be to the point of choosing to go to Mayo Clinic or Cleveland Clinic. I originally thought I'd go to Mayo in Jacksonville but then my GI's nurse told me that she thought Cleveland Clinic was...
Roni, forgot to give you a reply....I have accepted today that the LDN is not going to work for me. I made my appt with my GI and I dread it! I really had faith that LDN was going to be perfect for...
Garythepilot, Thank you! I hate all that you have had to go thru as well! The life is definitely sucked right out of me at this time!!! Think my husband needs to read your comment!!!...
Mine hurt from the day I started till my last injection over 2 years later. I feel that my pain tolerance is quite high as well and my GI reacted about the same way. I quit doing the pen in my legs...
Blueberrydecaf, you really helped me alot! I'm sure it is hard being on both sides but gives you an inside view of both! Funguy, just a misunderstanding. I hope the LDN kicks in rather quickly too!...
I don't care why this person thinks this but I hope and pray they are right! That would be the most wonderful news!!!!!!!!! I thinks it's kinda nice for something positive to be on here! Thank you...
I get asked daily by my family if I'm feeling any better. This is 17 years people. Obviously they are in denial. I also can't stand this one..... well, you look good! What does that mean anyway? I...
Yes, but on my signature my current meds are listed. I thought people looked at those. The different things that I was referring to was the LDN and HBOT. I assumed that CD patients knew that most...
Okay, first yes I tell him everything and I hide nothing. The dr. has talked with him in the past so he should remember that. Next, I AM taking meds to better myself but I have to give the diflucan...
I have a question. I was on Humira for a little over 2 years and had to go off of it and Immuran due to a severe case of Shingles. I have been off of it since mid May 2010. I am currently trying LDN...
Bactrim always works great for me. I am actually on it right now for a skin problem....
I absolutely cannot take Keflex! It makes me sooooo sick and I stay that way for months so be careful. Make sure you take probiotics....
My husband is having MUCH trouble understanding why I don't want to continue to go out with all of our friends. I am sick and have lost about 17 pounds in the last month. I have aches and pains that...
riesasmom, Was wondering what you and your daughter ever decided to do about the hookworm therapy. I too am on LDN and working on getting the yeast out so the LDN is not working yet. I am heavily...
I don't know the name of the test. I know that I have way too much yeast in my body and have since I started Humira in Feb 08. Couldn't hardly get rid of thrush, and then constant yeast infections...
njmom, Thank you for the information. My dr. did mention that Diflucan is processed thru the liver and I would need blood tests....
She didn't mention it. What makes it safer.....maybe I need to inquire with her. Do you think this may be hindering a response to the LDN? I've read other people's posts where they say that yeast can...
Well, my test results for yeast just came in and I am very high and start on diflucan tomorrow for 6 weeks....
Now I can even get into the HBOT thing b/c of bowel movements or should I say straight brown water running thru my system. Don't know what to do b/c I really think it is a good thing for CD patients....
Okay, another question. I am now 2 1/2 weeks into the 4.5 mg dosage. I am really sick. I have progressively gotten sicker. I am out of energy, loss of appetite and when I go to the bathroom it is...
grumpygi, Just reading your post and I am NOT telling my GI what I am doing. He would throw a fit! He's against anything that isn't biologics and I'm guessing b/c of the gravy train idea. I...
7007, I've got a question. I'm getting ready to sign up for hookworms. However, my CD is spread throughout my large intestine and rectum. Will these work for me or will I need the whipworms too and...
Well, I've only had 3 sessions. My last one was wednesday and I got sick up in the day afterwards. Not b/c of the HBOT. Had a fever maybe due to CD or virus. The doc doesn't seem to want me to do it...
cupcakespinkgal, I sleep like a log also. Maybe 1-2 nights I don't sleep well when I increased my dosage but from then on I sleep great. I have heard people say the same thing. Hopefully it is fine....
BeeSting I have never had pain from CD until now. I feel pretty sure I have candida. Do I need to be checked, need a prescription, or are over the counter meds effective. I've got to get this ball...
The dr. I went to this week is going to test me for that. I did the at home test that is not a positive thing and it told me that I have candida. I told him about it. I feel sure that I do....
Praying for your wife. Also there is a group on Facebook that is a prayer group that has many members and I partially keep up with it. There is a msg sent out every night to all the members with...
I went up to 3.5 mg and everything is fine so far.....not sleeping great but getting plenty of sleep anyway....
Well, had my first session and loved it. Didn't know if I could get in that thing or not but it was just fine. Liked the dr. also!...
I have been checking out Skips. Will call them when I get back...
Okay, thanks just wondering. This dr. really believes in his HBOT for many things. I am getting ready to go and am very anxious to see what he says....
dms40, I've got another question for you. When you posted that I should try to get HBOT in a hospital or clinic....is it dangerous or is it just that whoever administers it should be knowledgeable...