Hi Leah, I'm 21 and I have been dealing with Crohn's for four years. If you want to e-mail me so you can talk, feel free to. You can find my email in my profile by clicking on my username. Maybe if...
Thanks for your replies, everyone. :) I actually am going to school right now, this is just a summer job for me...but it is one that has advancement possibilities in the future. I appreciate...
So last summer I worked as an airbrush artist for a company that does custom artwork inside of amusement parks. During that time I was considered to be one of the best newbies they ever had (overall,...
Lovely, I had the same thing happen to me when I took Imuran. In fact, it made me so nauseous that I couldn't even stand up without feeling like I needed to throw up. I also had the burping problem....
I was just d/x'd with endometriosis several months ago. 2 years after my Crohn's diagnosis. I've always had difficult periods though, so I think I may have had it longer than my CD. Regardless, it...
To give you a little bit of back story- A couple weeks ago I started having some problems with urinary incontinence. I didn't have any pain while urinating or anything else, and it was very mild, so...
Hey keepingfaith, I was in your exact position about a year ago. Things have gotten so much better since then, but I know how awful it is when you're experiencing it. If you want someone to talk to...
Hey Jon, Your post really caught my eye because I am the same way. I'm to the point where I refuse to do a procedure if I'm even a little bit lucid. I have severe anxiety about procedures I've had...
Thanks Nanners. I called off for my training session today, hopefully I'll be able to go in for the next session on Friday...I'll talk to them about the whole situation then. They knew I had Crohn's...
I hate to complain, but I feel like everything is just piling up like crazy right now. I'm in a really bad flare up (one of my worst) and prednisone isn't helping. It probably isn't to my benefit...
So, I'm going on my 6th month of prednisone at 40 mgs. I've been between 60 and 20 this whole time but can't seem to get any lower than 20 without major Crohn's pain. I feel so discouraged. I've...
I've taken them in the past when things get really bad, and they do help. I've had minor side effects, but nothing that outweighed the benefits I experienced from being on them. I've taken Zoloft,...
Hey everybody, I've been on prednisone since November (with several taper attempts with no luck). Every time I go below 40 mg of pred, I don't get my period. In fact, I missed my period last month...
QueenAngel, I see Dr. Harrell at University of Chicago and I love her. She's absolutely amazing. From what I've dealt with the other doctors there, they're all good too. Good luck :)....
I had Dr. Inkster as my admitting doctor when I was hospitalized in the Clinic. She's super nice, I think you'll like her. She was very thorough....
There is a blood test for Celiac disease. You can ask your doctor to run it, it's very simple. However, a lot of Chronies have non-Celiac gluten intolerance, so you might want to cut out gluten from...
I went in for my endoscopy this morning and I ended up refusing to do it. I told them a week in advance that I was tolerant to Versed and couldn't take it to sedate me. Everyone just kept telling me...
I'm feeling especially anxious about this endoscopy tomorrow. I just had a SBFT that showed a possible stricture in the beginning part of my small intestine and my GI wants to take a look. Normally,...
SCotter, I did stop using Humira after my loading doses because I KNEW it was causing my anxiety. Also, anxiety and psychiatric disturbances have been added to the Humira side effect list, you should...
I'm currently a student- and here's my advice...get in touch with the school's disabilities department. If you register with them, they can send a letter to your professor in advance and explain your...
I've noticed a huge change in my periods since starting. I've been on Cimzia for about 4 months now, and I'm lucky if I even get my period. I've been one of those right-on-time kind of girls forever,...
I read the other thread about re-doing the loading doses...but I only just got done with my loading doses 3 weeks ago. Like I said, my doctor has me doing one shot every other week...but like Zena,...
Hey everybody. I started Cimzia about two months ago, and it has made a world of difference. After my loading doses, I was symptom free for the first time in two years. I have a problem, though....
I will too. :) List your email in your profile. To do that click "my profile" and then edit profile. Thanks! Don't want the spammers getting you....
I can't feel the shots either, until the very end, then it stings just the littlest bit. Let the Cimzia sit out for half an hour before giving the shots (I think it says that in the instructions)....
I've been on Cimzia and Humira. They both worked fabulously, but for some reason, I had severe psychological side effects with Humira (a very rare reaction). Cimzia has been a God-send. I was...
The University of Chicago Hospital is considered one of the best, along with Cleveland Clinic and Mayo Clinic. I've been to both the University of Chicago Hospital and Cleveland Clinic, and...
Yes, I did feel different than when I was flaring. I was much more nauseous when I had c. diff, and the abdominal pain was different in a way...I'm surprised your doctor didn't tell you to go on a...
I'm going to start doing these as well. I just got out of the hospital yesterday, so I really need some motivation to not stay in bed all day. Also, I had my first Cimzia injections yesterday too, so...
A girl on youtube that does SCD videos uses the exact kind of DCCC. Idk if it's legal, but she makes it sound like it in her video. But yeah, I would check on yahoo too....
Thanks everybody for the well wishes. I did get to use the CT scan, and could hear them kind of talking in the back saying things like, "yeah, that's gotta be it. that's what they're looking for."...
I was admitted to the hospital last night following an episode of severe pain and vomiting. It's still going on, but they have me on some antinausea meds and dialuted, so I'm okay right now. The...
Birth control did nothing but good for me. Now that I'm off of it, my periods are the harshest time of the month Crohn's-wise. When on B.C. I consistently had 'perfect' periods. 3-5 days of bleeding,...
That's very true, Zanne. That is something to be happy about. I just hope I'm blessed with a long remission and don't have to deal with this "aggressive, severe" disease for a very long time. Also, I...
So, I just got back from my appointment with my GI after a very hard night of Crohn's attacks. I was sitting in the waiting room and a rep from Prometheus Labs comes in (you know, the people who do...
There is definitely a possibility that the Crohn's didn't show up on the scope. Do you have any idea if the GI got the scope through to her terminal ileum? Sometimes, the scope can't reach that area,...
Vomiting is one of my primary Crohn's symptoms, unfortunately. I don't know why it would only happen in the middle of the night for you though. It happens all the time for me. I usually just take a...
I've lived in Cleveland and Chicago with my disease and University of Chicago Hospitals take the cake. They are really amazing. The doctors care so much about your quality of life and HONESTLY...
I'm on narcotics and I'm 18. They really help with my quality of life. A lot of times, I think they're the only things that keep me from failing my classes. If you ask for anything, maybe you should...
I thought about it being a partial blockage as well. I had sushi the night before the last one...but that really isn't high fiber. My father brought up the idea of it being an abscess. I've been...
For the last month, I've had a few off days where I feel like I've been kicked in the stomach. It's generally right where most of my inflammation is (LRQ), but sometimes in my RUQ. I do have...
I am in the same position as you. Like sr5599 said, phenergan works wonders on nausea. It has saved me several times from having to leave class due to nausea/vomiting. It's really worth a call to...
Yes, it does. Quite significantly for me. My worst flare up to date was when I moved home from Chicago, had to stop going to college, switch doctors, dealt with drug toxicity from Imuran, found out I...
Welcome! I'm sorry you have to be here. :p Just a heads up- sometimes there can be active disease that x-rays never pick up on. It doesn't mean it isn't there. I've had CT-scans, Small Bowel Follow...
Wow. I had no idea about that. My B12 levels usual hang around 200-210. I've had three doctor's check it and have it be that low, but since it was at least 200, they didn't seem to worry. I've been...
I definitely agree with keeping it out to warm it up to closer to body-temperature. It stung A LOT more than I expected it to when I did my loading doses. There was no way I could have given myself...
Sigh, they call it "brain fog", I think. I've been lots of it lately, too. I got lost on my way to class the other day. I felt so foolish. I've called my boyfriend to ask him to come home, then do...
I'll try asking about the propofol. My doctor's nurse can be a...not so nice lady...so hopefully she doesn't shoot me down right away. I guess I'll have to play her sympathetic side and see if that...
So I talked to my doc about the increased pain and sleepless nights, and he wants to do another c-scope. ARGH! I just had one in Ausgust! Granted, the University of Chicago did it and not him, so I...
Thanks everyone :). Sometimes this disease has a way of making you feel a little crazy about your symptoms and what you should be blaming. Nanners- I'm skipping the 6MP/azathioprine because the last...