Hi, I had open surgery almost a year ago and was still having problems four months after and thought the surgery had been a waste of time but my GI put me on Questran. Its a power that you mix with a...
Hi, I have not posted for a while as I had a resection in September and have, fortunately, been doing well. I have, however, been suffering from very stiffness in my knees when I have been sitting...
Its been a while since I posted as I had a resection early in September and have had nothing but trouble since. The op went fine, strictures removed and active Crohns according to my surgeon. Spent 6...
Thanks so much everyone, it really helps to know that others have felt what you are going through and I know my probs are minor compared to some, but as I said it has been a bad day (most of it in...
I know in the great scheme of things I'm not that bad and there are a lot of people with a lot worse things to complain about BUT I have got to the point where I am struggling. I had about 30cm of...
Hi a question for anyone who has had a resection and a return of Crohns. I had an open resection 4 weeks ago, about 30cm of small bowel containing strictures and active Crohns. My surgeon says I am...
Glad I read these posts. I have had several x rays, CTs and MRI's and have had explosive effects with all of the contrasts I have been given to the point I have almost not been able to stay in the...
Can't help with ileostomy, but I had resection 2 weeks ago, was in hospital 6 days in total (including day of op). First week home felt very tired and obviously had pain from wound site, but...
I had a resection 2 weeks ago and am still suffering from sudden explosive D and obviously discomfort from op site (25cm wound and about 30cm of bowel removed). How would I know, with all this going...
Well I am home after my resection for strictures with a 25cm wound to remember the occasion by. The bowel had stuck to the pelvic wall and my surgeon had to make a larger cut but the good news is...
Thanks Nanners, I will hope I don't have any. I am already on a low fibre diet and am going to switch to low residue about 3 days before to make things easier. Not really worried about op just the 24...
Love this forum ! I am having open resection next Monday 13th Sept)and was just thinking about what I would need to take in and the answers are all here ! I was told to expect to be in for about 5...
So sorry to hear your friend is going through such an awful time. Hopefully she will feel better after the surgery, adjusts to her new way of life and can enjoy herself. I am sure having such a...
Sorry you are having a bad time. I agree with the others, its not what you do or eat for most of the time. I am mainly on a low residue diet and symptoms vary from day to day (I have strictures from...
Thanks to all for replies, I do feel better now. Not sure if I am having open surgery or not (think it will be) will find out for definate at pre op check. Counting the days now and after the 'loo'...
lamb61, thanks for reply. Not what I wanted to hear !! Hopefully I will be ok, I had anti sickness meds after hysterectomy which worked ok. What was it like when they took it out? I need to know, am...
Thanks, thats a relief. I will ask at pre op check (not sure when that is yet). Sorry you are not having much luck with meds, I know the feeling currently on Pred, Metho, Pentasa and have come off...
This will probably seem very silly but I am due for a resection in a couple of weeks due to strictures and am fine with the surgery thing but am worried I may wake up with a nasal gastric tube. The...
I am on Methotrexate and I asked my GI about the occasional drink and his reply was 'of course, life's too short'. In agreement with sniper - moderation, anyway I have found the odd glass is much...
Good luck with surgery, mine is in 3 weeks so will be very interested to hear how it goes for you. Lets hope we both have a very long remission !...
Hi, I have had both these preps and actually didn't find the drinking of them too bad - it was the explosive effect that was more the problem ! I think I read somewhere that it isn't too bad to drink...
Hi Sofee, I can relate to this awful noise. I am surprised you can't hear it now as I type this post ! It is also very uncomfortable for most of the time and dam painful for the rest. I too have...
Thanks for replies. My disease is in the small bowel and GI thinks it is strictures causing the main problems (often experiencing obstruction symptoms which fortunately clears itself, unlike a couple...
Have tried Methotrexate, Remicade, still on steriods and not much better due to strictures. Seeing surgeon in a couple of days and need to know what I should be asking. Part of me is worried about...
I have started Remicade and am due my third loading dose next month. So far I have put on about 2-3lbs, I am not eating any differently but bowel movements do seem to have slowed down. After first...
Really feel for you. I have never had this problem with hospitals so can't put myself in your shoes. Try to focus on how much better you will be when you have had the surgery and give yourself a...
I am only on my loading dose (third due middle of August) but it seems to have made the stoamch noise worse. I have never had blood but had frequent loose stools. This so far hasn't made much...
So glad I'm not the only one. I was up all night last night with my stomach 'talking'. I tried everything from a warm drink to walking around but it didn't stop, I'm on my knees now ! I also get pain...
So glad I found this thread. I have just had 2nd infusion of Remicade and have already noticed a 'tyre of fat' around my middle. Seemed to appear overnight and I am eating no differently. Made me...
Sorry, I live in the Uk - what is a charlie horse ?...
When I had an obstruction my stomach swelled up and I looked about 6 months pregnant, had no bm, no sounds in stomach and pain was situated in middle of stomach around belly button. Also felt very...
After first infusion I felt tired, had more loose bowel movements and stomach was very 'vocal'. Also experienced worse joint pain which lasted 7-10 days. Had 2nd dose a couple of days ago and again...
and me ! It has got worse since I started on Remicade though and I have just had a bone scan and have Osteoporisis just to make things more interesting !...
I am due second infusion next week and am a bit concerned that since the first I have been worse. I am still on Pred and wasn't doing too bad on that, even had solid bowel movements. Now I have more...
Had first remicade infusion last week and had awful pain in my knees the next day. Strange that Remicade is given to people with Osteo Arthritis to help with pain. Had a bone scan today and have been...
I had first infusion of Remicade last week and my stomach has been 'unsettled' (was doing ok with the steriods) but I was very tired that evening and had joint pain for a couple of days. Next...
I had my first infusion yesterday and felt fine until suddenly in the early evening I felt exhausted and could harly keep my eyes open. Slept well but still felt drained of energy most of today....
Feeling rough today but these posts really made me smile just picturing the scene ! Maybe there is a gap in the market - any inventors out there ?...
Thanks for the comments everyone I will have to see what happens. At the moment I am being careful with my diet so it will be interesting if I can get back to eating more salad and veg once I start...
Be careful with imodium if you have any strictures it could add to an obstruction. I have used it in the past for special occasions but have ended up with bad stomach cramps which in a way have...
wow I thought I was just me turning into a grumpy old woman ! I was even worse last week when the doc gave me Pred without the coating on the pill by mistake (I didn't realise it would make any...
Same. Pains that come in waves that are worse in the middle of stomach around belly button. No bowel sounds, felt like I needed the loo but nothing happening and felt sick. Stomach was very swollen....
My funding for Remicade has been approved and I am having my first infusion next week. Question is how will I know if it is working. Sounds daft thing to say but I am currently down to 15mg of Pred...
I thought it was better than one I had before (can't remember the name) had no trouble drinking it or keeping it down. I also have a fear of being sick. It had the desired effect fairly quickly and...
Wow what a great doctor he sounds ! So what if 'people cope with worse that you' he isn't having to cope with it is he. Hopefully the MRI will give a clear picture, mine did, it seems I was worse...
Having had an MRI which showed fairly extensive active Crohns and strictures dotted about the small bowel my GI said resection is not an option. He wants me to start on Remicade for which I am...
Would have had pill cam but they can't use it if strictures are suspected (which in my case I have) the cam is likely to get stuck....
Yes definately feel worse generally if I overdo it and overdoing it is a normal day for most people. Get mad when I can't get that little bit extra done. Worse still is doing some overtime (yes I do...
I'm like Jenny - cant stop eating, especially craving sweet things (not me at all) whilst on Pred and have put on weight. Don't want to lose weight like crazy but everyone says "you look so well",...