Had an area of inflammation on my upper eyelid following surgery for strabismus repair. Brought it to the eye doctor's attention after a few weeks. He was perplexed, and put me on a short-term course...
Last time I was in the hospital, one of the GI docs told me yogurt is great for you, but to make sure it says LIVE ACTIVE CULTURES on the label if you want the most benefit. Most of them do not say...
I also have heard the same statement about the disease burning itself out; the person who told me was the Remicade rep who came in to talk to me during one of my infusions (I had had an incident of...
Do you get Solumedrol with your Remicade? I end up feeling like that too, but I blame the steroid, rather than the Remicade! :)...
I also had the same kind of fistula and have had no problems since being on Remicade. I believe it is healed....
Yes, I agree, you need to see an eye doctor right away! I had pain and light sensitivity, and the eye doctor said I had active iritis and immediately put me on steroid eye drops and other numbing and...
Toes and fingers can get white and numb from Raynaud's.....
I like mine plain and sprinkled with red wine vinegar!...
When I was on Imuran or 6mp I had frequent blood tests; at least every month. Then they added Remicade and dropped the Imuran because of bloodwork showing liver function tests elevated. Once I...
It took till a week or two after the third infusion, and I have been feeling pretty well ever since, and that was over a year ago. I have been getting them every 8 weeks ever since. Hope it works as...
I got hives 10 days after the 3rd infusion; after the GI doctor consulted w/ the drug company, they had me go see a dermatologist, then once diagnosis was confirmed, they had me take 40 mg of pred 2...
Sorry, that starred word above is supposed to be iritis. If you did have that, they would prescribe a steroid eye drop (which is not expensive), to be used immediately....
I have had tons of eye problems since being diagnosed w/Crohn's.. There can be many causes; iri***/uveitis was the worst. If your eyes are painful and really sensitive to light, get to an eye doctor...
Have been on Remicade for about a year now, and lost about 8 pounds; of course, my husband left me in March, so that might be the cause.. Don't have to cook anymore, tho :)...
I have had that whitish stuff always preceding a flare; I don't know if it is mucous or pus... Make sure you are not running a temp or getting chills, if you are, call the doctor. Same thing if you...
They had to stop it because my liver function tests were elevated. I really did feel awful, like I was being poisoned...
Yes, they also give me 40 mgs of solumedrol into the IV each time I get Remicade, which is a steroid. That definitely makes it hard to sleep; it is not your imagination! I also have to take pred 2...
Well, I thought I was happily married; dated/lived together for 5 years, married for 25, two great kids now in their 20's. In past 3 years went from perfectly normal colonoscopy to fistulizing...
They started me on Imuran last April, went for second opinion, they got me on Remicade also in August; good thing because liver tests got elevated from Imuran and had to stop suddenly. Have been on...
Good luck; please let us know what happens....
I had the same thing happen to me about 4-5 years ago. You can look up spondylolisthesis It is great you were diagnosed so early; I had the MRI first, which only showed a bulging disk, then 3...
Just a thought, because I don't think this happens very often, but did the Asacol help at all before? I am one of those people who cannot tolerate any form of Mesalamine/asacol/lialda etc. It makes...
Don't get discouraged; I did not see a significant improvement till a couple weeks after the 3rd infusion, and Remicade has been the only thing that worked for me so far!...
I also had uveitis (iritis) last year right before a really bad flare where I ended up in the hospital for a week. My eye has never gone back to normal, although they say the uveitis is gone, and...
When that happens to me, I pay a visit to the osteopath, and get an adjustment. He works wonders for me, and it usually lasts a couple months....
Last time I was in the hospital, one of the doctors told me not to use Activia (too bad, cause I really liked it). She told me that is used more to make you go, and that yogurt is good, but to make...
If you have access to a health club or Y with a pool, a water exercise class or water therapy would be great for you. Any exercise improves your mental well-being, and from personal experience (I...
I agree, don't take the Advil! You could ask for a prescription for Ultracet (Tramadol). I have taken it for back pain/hip pain....
I've had some headaches and nausea from the Remicade, (usually the week after) especially the first 3-4 times, but that was really outweighed by the benefits of the drug. The side effects have been...
Oh sorry, I forgot, and the dentist also told me to try switching to Biotene toothpaste and mouthwash. Some ingredients in regular toothpaste and mouthwash can cause problems, too....
I used to get tons of mouth sores, and the ENT told me to try dissolving a tsp of salt, and a baby aspirin in a cup of water. Stir well. Do NOT swallow, just swish in mouth,(and gargle a little if...
I started on Remicade in August, and it has been the only thing that has worked for me (besides Prednisone). Have tried mesalamine & Lialda, which only made things worse; and had to stop Imuran after...
Becky, how long did it take your eyes to go back to normal after the iritis? It took a few months for the photosensitivity to go away completely, but it just seems like they have not been right ever...
I was tested for Sjogren's by an endocrinologist 2 years ago, when I was having terrible problems with dry mouth and thirst. (This was a year before the dry eyes started). He said the blood test was...
June, you sound like you have the exact same symptoms as me when I first started. After colonoscopy, GI dr. said it was either crohn's or colitis, not sure which, but he put me on the hydrocortisone...
Good joke, Sniper!!...
Has anyone experience eye problems with CD? I was diagnosed with iritis a few weeks before I had to be hospitalized w/CD, and although the iritis cleared up with steroid drops (and prednisone for 3...
Thanks! I was wondering how long you can stay on Remi...!...
Hi, I am new to the forum. 57 year old female diagnosed w/ fistulizing Crohn's after 2 years problems w/ bleeding, mouth sores, stomach problems. Initially they thought it was ulcerative colitis, and...
Hi, After my third Remicade infustion, I developed hives all over my arms and abdomen. Showed GI doctor, who got in touch w/Remicade company; they made me go to a dermatologist to confirm it was...