I had the EXACT same reaction to Humira---they dosed me 4 more times with Humira, not believing me... now I am stepping into remicade... but they are watching closely---different dr. They will not...
Hi everyone- I have been on here off and on, mostly on the crohns forum, because that was the primary symptom. Long story-- 2 GI's later, 11 days in 3 different hospitals,-- I am finally getting...
Thanks Mama 6- that is where I am at now, and needed a pep talk.. I have RA and Crohns. The Rhuemie keeps blaming the crohns... the GI (who I like and FOUGHT to get to, thinks the RA is pushing the...
I just started MTX injections this past Monday- thanks for this thread. No side effects... and no change in symptoms. I gave the shot to myself with Doc supervising. I will take it once a week at...
AB Crohnie-- OMG! I want one! Kim in FL...
Lady G- I have same reaction to Iodine, yes, I am glad I didn;t know while it was happening--- Kim in FL...
Nanners-- my husband had a partial nephrectomy a year ago... it was open. USE a PILLOW at the incision side to help with walking.. made a huge difference... PRAYERS COMING YOUR WAY!! Kim in FL...
you just gotta laugh sometimes... I was so sick, but my last thought as I went under was, "wait until my co workers hear this..." And it did get quite a chuckle in the teacher lounge. Kim in FL...
I am on the Crohns board too--- and they just confirmed RA as well... so watching this thread... I was just starting to figure out crohns...for my body. Kim in FL...
Laying on your left side, just getting ready to prep you to go under and the nurse looks at you and says---- "YOU TAUGHT MY DAUGHTER IN 5th GRADE!" "Don't put her under... let me show her a picture...
Thanks tew cute... Yes- I think you are correct, I will learn what my body has to say. I already know, I am not weaning the pred tomorrow, if the pain is creeping up. I will wait until Monday and...
I am really new to this disease. Trying to learn all I can. I was only diagnosed May 25. I have also been dx with RA. I have not even started researching that one. I have two "ulcers" one in the...
Neat story Nanners! Kim in FL...
On my recent hospitalization- I was in a local hospital, Not in Miami, where I usually go. I had such problems with the nursing. I know they were understaffed and I was on the "we don't know what is...
I can't speak for the Crohns dx as I am only one month out for my dx--------- But, as for my husband, Tom, it will be 25 years on July 13 this year....married to my LOVE of my LIFE. One month after...
Roni- THANK YOU! /community/emoticons/yeah.gif I LOVE sourdough bread and had eliminated it. I also love cantalope...!and sweet potatos! So, I will try them individually....to see if they work for...
OK, I just figured out what SCD is (Specific Carbohydrate Diet,) And, my next step was actually to go see a naturapathic doc that was recommended by a friend--- Learn something new every day! I find...
spooky- not sure what SCD is--- newbie... I am going to search now. I am also drinking coconut WATER--- it really helps with the pred side effects, very hydrating, a lot of potassium. I am in the...
Thanks for the input on this... I am currently trying foods (limited) and discovering what triggers... I had this general list. But- how do you eat to stay healthy? I was a salad, vegie, fruit girl?...
I am drinking it and having no problem...? But I am a newbie. I use the flavored and non flavored, it is great in cereal. I do watch the sugar count, and try to save the flavored (vanilla) as a...
This is why I am trying to continue teaching a light load for summer school- to get normalcy into my life.... you can become all consumed. Every little bit helps. Happy Birthday to your niece! Kim in...
They did do a "dummy pill" first and then xrayed to make sure it would pass. Kim...
Thanks everyone-- WOW- I guess the damage is done. But, I have made a decision to stop the shots now.... interesting thought though isn't it?? My GI is all over it--I am going to get my records from...
I spoke to my GI about fatality, she relieved me and said, more then likely the cause of death was something else, not crohns. She reassured me and I "*think" she actually knew whom I was talking of....
I have the same concern. I can tell you that my husband had Kidney cancer, and now most of his 6 mo follow ups are ultrasound-- with one CT scan a year... the urologist/oncologist doc said it was to...
The one I had last week- they didn't use stickers, they used a belt that transmitted to a video card connected to the belt, about the size of a blackberry phone? Kim In FLorida...
Hi everyone- I have done a search of the forum and found some topics on allergy injections, but in the forum allergies, not in the Crohn's forum. I have taken 4 shots for allergies for two years,...
Pill cam is easy--- it is the test that found the ulcer on my terminal ilium. I had colonoscopy, endoscope, and small bowel series prior to the pill cam. I think you need to cover all bases? Kim in FL...
Hi Heather- I don't have any kids-- unexplained infertility. My husband is doing well, we will have our 25th anniversary next month. His cancer is "gone" but RCC can re appear and we are doing follow...
I have had huge weight flucuations since I was in my 20's... and now we are thinking it was maybe Crohns all along. I do not eat when I am stressed. I am taking anti depressants and xanax as well.......
Thanks-- for the replies! I will go out and get the chix nuggets and I am glad to hear that others had the same issue with pred. As far as testing- I as just dx May 25- colonoscopy, endoscope, pill...
Hi everyone- I am Kim in Florida- 47 years old. I was dx with Crohns May 25th. I LOVE my GI and she is connected to Univerity of Miami and I have already been to UM for a second. My GI is easily...