Certainly look into the doctors at John's Hopkins. Dr Marc Lasarav is a great GI and Dr Micheal Marohn (I think that is the spelling) is an excellent surgeon....
I think it is common for people with crohn's to feel this way. Between the disease which can make us lose weight and steriods/other meds that make us gain weight, it's hard to know what "normal" is...
Hi- I was diagnosed when I was 14 and I am 28 now. I have had to go the route of heavy duty drugs and surgery. I am actually currently in the hospital recovering from my 2nd resection (first was...
I take tramadol and find that it really helps me with Crohn's related arthritis and my day to day belly pain. I can't believe that they would cut off your RX right away like that with no warning, you...
You sound like how I was a couple months ago...with all of my GI problems and hospitalizations recently I became extremely withdrawn and didn't want to leave the house. I didn't want to do any of the...
My 2nd resection is scheduled for next friday, Nov 26th. My first one was nearly 10 years ago and I remember the recovery was really tough. This one they are attempting to do laparoscopically so I...
Some people feel and improvement right away, but they say it can take up to 3 months to become fully effective....
All this stress only makes things worse for you and your digestive problems! You sound a lot like I sounded before I started taking Celexa for anxiety. I didn't want to "open that door" of taking...
I have had many obstructions and every single time they require emergency hospitalization. It is an understatement to say they are painful. It sounds like you are having an issue of some sort and you...
I just wanted to weigh in and say that when I am on prednisone I start getting side effects almost right away, within the first 5 days for sure. Insomnia starts first, then the crazy eating, moon...
Great birth story- congratulations!...
Hi- I have heard of a similar side effect (listed on the RX info) but I myself have never had anything like that. My only side effect was a gradual weight gain. I think you should probably let your...
Actually Entercort worked great for me but pentasa was never very effective at all. The only reason I ever wanted to get off entercort was because of weight gain, I actually really felt much better...
I had gained a solid 15 lbs or more on entercort. It makes me crave carbs and sugar with a passion. Pred has far more side effects but yes, entercort still is tough with weight gain....
I had one in Jan where I woke up and it was awful. Afterwards my Dr said we put a note in my file to request propofol from now on (beforehand). I just had another scope monday and they used it and it...
I personally hate pred. but insomnia is one of the side effects that you can do something about. Ask you Dr about a short course Rx of ambian or something similar to help you out while you are on the...
HA! I get the side effects instantly. The only good thing I can say is that the side effects go away pretty quickly once you finish the Rx- but you have to be totally off of them....
I agree. I had no issues with Pentasa but I also saw very little difference or benefit in taking it. I felt like I was spending an awful lot of money and taking lots of pills everyday for very little...
I have been on it for about 5 months and although it has helped with my joint pain, that is about it. I am still very unwell....
I'm glad to see I'm not the only one who gets so mad about this. I feel guilty to even vent or complain, it's like they want us to suck it up and be long-suffering (literally) and get on with our...
Ostructions CAN hide from ct scans and coloscopies! They are not the only tests out there by any means. Please get another opinion, who cares how great this Dr is for other people. He is not the best...
I have never done this but I am going to try this year. Since Jan I have been saving all of my Rx receipts and plan on getting a print out from the hospital at the end of the year. We'll see how it...
Has anyone ever had a Retrograde Enteroscopy and can tell me what to expect? I am having one on Monday and just want to mentally prepare myself. I've had the standard colonoscopy before, how is this...
I've always had bad eczema, since I was a baby really so I always wondered about any connection. I do have Crohn's related joint pain that ca get quite bad sometimes, but Humira has helped that....
I love salads and I eat them all the time, but food it's typically a trigger for my CD....
I just take the regular/common probiotic suppliment that you can get at wal mart and I found it to be helpful in general. I also eat yogurt but not everyday or anything. I know there are lots of...
I just had to chime in on this thread as well since I've also heard everything under the sun in regards to Crohn's disease. People who don't have it simply do not understand what it is like. That's...
I've had two misfires! One was a faulty pen and one was totally my fault, lol. It happens....
I would call Humira and speak to a representative for advice. They might just send you the pen instead....
I decline to take it all the time. I actually just got out of the hospital yesterday for another obstruction. It was my eighth in just over a year and I am also waiting on my 2nd resection. I tell...
I quit drinking all soft drinks over a year ago, just as another way to improve my overall diet. The extra sugars and artificial sweetners in beverages might not be harmful but they are certainly not...
Entercort is leaps and bounds easier on me than pred. I still have some side effects though which are a bit annoying- like weight gain and yes, some peach fuzz on my face that I've never had before....
My opinion is that in the US you should absolutely not disclose any illness during the interview process if you want the job. They aren't allowed to discriminate but how could you prove that was the...
When I take prednisone I take terrible insomnia and heart racing too. Try asking your Dr for ambian CR to help until you finish up your prednisone....
Spooky described them very well. Intense pain where you would end up needing to go to the ER for pain meds, also nausea and abdominal swelling. This is not something that you can just deal with at...
I've always been very short, I'm 5'0" now and 28 years old....
Try taking L-lysine. You can take them to prevent as well and then higher doses to cut your healing time. I rarely get them but when I do L-lysine is the only thing (including trying an Rx) that has...
For me, an obstruction starts off fairly mild. It is centered around my belly button area and comes in waves. Over a period of a few hours the pain gets more and more severe and I usually start...
My dr said I needed to take aditional vit. D and my multi wasn't enough....
Just wanted to chime in and say this is exactly how I was after my resection, it's totally normal. I don't remember how long it lasted but a few months, I'm sure....
I personally have no desire to broadcast the details of Crohn's disease to the world. I'm not saying this is what you do at all, but think about it- do you enjoy hearing other people drone on and on...
Thanks for the info, I agree that it very well could be the other medications. I will be talking with my Doctor as soon as possible to get her opinion. I know it's just silly vanity but if there is...
That's a good point, I can request that they add those test to my next blood work up if they don't check them already (and I doubt they do)....
I take a daily multivitamen for b12 and folic acid. I am also on pentasta but I had been taking that for a good ten months with no side effects at all...that's why I attributed this to Humira....
Well I just got out of the hospital actually, from another obstruction. But I had 5 of these obstruction "episodes" before going on humira and never had any hair loss. Overall I am not really any...
I have been on Humira since April, so about 4 full months. After about a month or two I started noticing my hair was shedding more then usual- I really thought it was my imagination at first. Well,...
I had a bad flare through pretty much my entire college life and I would say that there are zero ways that Crohn's Disease can be used to your advantage. I had a heck of a time trying to work hard...
I have been told not to take it....
I don't think you are asking too much, it doesn't sound like you want her life to revolve around you or that you are being too self centered. It sounds like you just want a little time together to...
This was a very common side effect of the prednisone for me....