Bob--I just slowed down and read your complete signature line--should have done that prior to last post. I see that it is your son suffering. I don't see much about it on here, but Xifaxan has worked...
Hi Bob, I quit the ANTI-Map therapy in December. I gave it five months but the yeast got the better of me. I was managing well on it in terms of symptom relief but no better than I did on Xifaxan...
My doc added Cipro to the mix this week. Now I am on : Clarithromycin, Ethanbutanol, Cipro and Rifampin. All of my side effects seem to have subsided as of now with the latest being acne and yeast....
Hi dietcoke-I started the thread and am doing okay on the Anti-map therapy (I guess). I haven't noticed any significant changes in my symptoms yet, but both doctors tell me to give it at least three...
j_web-I had a lot of gas early in my pregnancy as well. It stopped after a few weeks. I don't remember how long, but I do remember reading that it is common in early pregnancy for everyone. My...
What's LDN?...
Oh thank you, Nurse 1. I certainly appreciate you sharing your son's experience. It gives me hope and encouragement! I hope he continues to feel well. And me too. ;-)...
Thank you Tara! I wish you success too with the therapy. I'll keep you posted if I notice anything significant. I just started the Rifampin today after a little insurance struggle. I will be taking...
Oh--and I also remember him saying he will increase these dosages as we go, so I may be working my way up to your current dosages....
Hi Tara, Thanks for your feedback. I went to the doc yesterday. He does not like the fact that I am having the flu-like reaction and thinks Rifabutin in the culprit. So, he put me on Rifampin as a...
Winter is always worse for me. I do pretty well in the summer and feel like moderate sun exposure helps. Doc tested my Vitamin D and said it was fine....
HA! I spoke too soon. Tonight I have chills, low grade fever, aches and fatigue. Guess I will call the doc in the morning. :-(...
Just wanted to update that I am back full time to all three antibiotics with no side effects at this time. Crohn's seems to be the same as it has been but doc says his other patients began to see...
Thanks mastersmom. Good to know. I started back with the ethanbutol and the clarithmycin (sp?) yesterday and will start back with the Rifabutin in three to four days. He thinks the Rifabutin is the...
Thank you for the response, mastersmom and thank you others for the well wishes. The doctor said blood work shows my white blood cell count went very low. He had me cease the antibiotics for a few...
Well-the flu-like symptoms have kicked in full force. I go for my 2 week follow up tomorrow where I can discuss it with the doctor, but mastersmom if you are still out there, I wondered if you might...
Thanks so much for that link njmom. It sums it all up well! And, thank you mastersmom for sharing some of your daughter's experience. It is very helpful and informative. I am only in Day 2 of the...
Mastersmom-so glad to hear about your daughter's remission! I have been on Xifaxan since February, and it made me 90% better. Also, no side effects from it at all! My doc, however, says I need get...
I will downgarden. What is worm therapy? Good luck! Hope it works for you!...
I am beginning anti-map therapy on Monday. Has anyone had good or bad results with this approach? I will begin with Bioxin, Theanbutol and Rifabutin (spelling?). Just looking for feedback or thoughts...
My doctor prescribed 1 - 200 mg pill three times a day during a bad flare last month. I improved significantly within days and continue to take it with his approval. He says there is definitely a...
Very best wishes to you, CrohnieYogi. I am sorry for your pain. It's so scary when another wee one is involved too. My doc advises me to be happy with my one happy, healthy daughter. Of course I am...
I've been flaring since giving birth in Aug. 2008. Prednisone calmed me for awhile but I couldn't deal with the side effects. I begin Cimzia next week. Would love to have another but GI advises...
My doctor recently prescribed the antibiotic Xifaxan for my flare. Although he still want me to go to Cimzia, the Xifaxan has greatly improved my symptoms. He said its his secret weapon and that not...
Hi Nanners-- Thank you for the feedback. Is Immuran or 6 MP safer than Cimzia? I'm still unclear on why the Cimzia, Humira and Remicade or considered "big guns." I realize they suppress the immune...
The same thing happened to me when I went off the Pred. Symptoms came back but not as strong as they were. I lasted about five months before it got really bad again, and that's where I'm at now. The...
Thanks for the feedback. My entire colon is affected but it appears to stop at the TI, which is clear....
I have been taking Entocort for almost four weeks and think I'm starting to experience improvement. I've had a few good days after a terrible 3-4 weeks. During this episode, I had a colonoscopy which...
My doctor is working on prescribing me Cimzia. When I asked about Remicade, he basically implied that it is "old school" (not his words; my interpretation) and Humira and Cimize were a much better...
Thanks for the feedback. What type of side effects have you gotten from the biologics? Is it more favorable than the Prednisone?...
Thank you, Becoming Undone. I'm glad you are having success with Cimzia. What do you mean that you are "atypical"? :-)...
Hi everyone, I just joined the group and posted a question about Cimzia. Reading through some of the threads, I noticed that an introduction is also preferred. I just wanted to say hello and thank...
Hi everyone, I'm new here. Glad to have found such a helpful group. I have Crohn's disease. It was very mild until I gave birth. Since then, I've struggled (18 mos.). Had another colonoscopy today...