Nice find. The drug is listed as: RHB-104 95 mg clarithromycin, 45 mg rifabutin, and 10 mg clofazimine Clarithromycin: A macrolide antibiotic used to treat pharyngitis, tonsillitis, acute maxillary...
Didn't see this posted yet. This sounds like great progress and brings our disease into the light some more :) UCF researchers closing in on cure for Crohn's disease:...
I've been using VSL #3 for a little while. I can tell that I feel worse if I haven't taken it for a day or so. It is expensive and I had to get my employers HR involved to get insurance to cover it....
Once again I couldn't convince my doctor to prescribe an antibiotic. I don't think it would hurt to try......
I plan on calling my family doctor tomorrow to see if I can talk to him about getting on cipro and flagyl. My GI refuses to believe over growth can be an issue. I recall my family dr. prescribing an...
I'll have to ask about the pill cam. My doctor hasn't even mentioned it to me as an option....
That's no fun. My GI's NP wanted me to have another scope, but I told her no. I said I know I am flairing and you don't need to scope me for it. My last two scopes I was perfectly awake and asked...
I can usually tell I am going to flare or in a flare because I have to urinate more often. Almost like an over active bladder during those times....
I used to take librax. The first time I took it I was about to start eating and my food got really blurry. After that I didn't experience it a whole lot. It helped me some, but not enough....
My dentist also said my gums were inflamed. They said it could be due to bad brushing habits on the gums. Which I could agree with and hope its that instead of the Crohns...
Hope you get feeling better. I am taking a short dose of Pred right now as well because I will be traveling for work in a few days. Up until today I was doing ok......
If your bathtub is right next to the toilet you could replace the shower curtain with those sliding shower doors. That way you will have a "wall" to rest on when needed....
Yea, I went from having no cavities to having 4 four. I also have receeding gums. It sucks......
For some reason I can't handle ensure or similar brands. I get extremely gassy and don't feel well. I can eat dairy all day long, but not those drinks. I may try the instant breakfast to see if I can...
I used to spell it wrong as well. It happens I guess......
good luck!...
Thanks pb4. I will give it more time (at least a month or more). I am feeling more gassy since I've taken it so I am hoping it is helping the fight against bad bacteria in the gut. I have been...
I don't think my doctor likes talking to me. I always talk to the nurse who relays information back to me. Then if they want me to come in they set me an appt. with the nurse practitioner and I have...
I just started taking Propolis Friday night. PB4, have you tried increasing your dose from the 1 cap / 2x a day? If so, did you notice any improvement? I am starting out with 2 caps / 2x a day and...
I didn't have a lot of luck with entocort and took it for several months. Glad to hear its working for you....
Sorry for the delayed reply. I was on Imuran and Pentasa for a while. They even threw in entocort for a short amount of time. They were trying whatever they could to make me feel better. The tests...
Soft, yet strong TP. :tongue:...
I live about 2 hours away in Evansville and have a good doctor, but may be too far for you. If you want the name just let me know....
I have two life insurance plans. One my parents got for me a looong time ago before I was ever diagnosed. Then I got a second one through my employer and recently raised the coverage. Didn't get...
I feel envious all of the time. So much I decided to eat those spicy wings and sometimes I will get away with it, but that just builds of a false sense of hope. Because the next time I eat them, I am...
I always wondered how I would react if I ever had to take it. I hate getting shots, blood drawn in the first place. How on earth could I give myself an injection? Maybe current users have advice....
It is important if you are lactose intolerant. Not as big of a deal if you are not. I can handle dairy so not big problem for me....
My diet isn't always low fat. Actually not near as much as it should be, but my body doesn't seem to retain any fat anyways......
spooky, Do you know if they started with a low dose of difulcan? I've read that if you start high that it can cause flu like symptoms due to the die off....
From my experience (not personal) with blood thinners, once you start bleeding it is hard to stop. Since Crohnies have a tendency to bleed I didn't think that would be good....
good luck....
I am visiting the in-laws this week and my father-in-law takes coumadin to thin his blood. This got me thinking because as we get older we have to add prescriptions to our already huge list of meds....
I've been taking LDN since around last December or January. I started at 2 mg then went to 4mg after a few months. I felt great after 3 months. Then I started to decline a little and inquired about...
I still need to go to bed! Almost 1AM here....
Visiting the wife's family for the next week and the drive went well and Saturday was our first day here. For lunch I had some sliders and chips and for dinner we went to a Japanese hibachi grill. I...
Be sure he drinks plenty of liquids to help keep the kidneys and liver functioning good. That is a lot of meds for anyone to take on....
I haven't tried it yet, but I may if my current probiotic seems to wear off. I am currently taking fortify by natures way. Before that I took reuteri by natures way....
I feel your pain. The pain is the worst feeling ever. Then after my BM I would have this throbbing sensation down there and consistently got worse (and more painful) the closer I got to my next BM....
Not too familiar with the spasming myself, I usually get the feeling of a charlie horse sometimes. Where it tenses up real tight and I can't help but to push when I don't need to after a BM....
sweet. I take vitamin D twice a day. 1000 IU at lunch and another at dinner....
Have you tried looking into LDN (low dose naltrexone)? It's cost is really low compared to other medicines and hardly any side effects. Usually the worst part is getting your doctor on board. Luckily...
I saw that article the other day. If it didn't cost $3k I would consider it. The whole having worms inside me doesn't bother me that much, but its the price that gets me. I would do it in a heartbeat...
I currently take Florastor in the morning and evening. I had been taking Primadophilus Reuteri in addition to the florastor but just switched to Primadophilus Fortify...
Good point. I just assumed a family doctor couldn't do a GI panel. I might check into that....
Glad to hear no changes from last year. Hope things only get better for you....
I was up to 150mg on Imuran and found it did nothing for me. Not any better than Pentasa and sometimes I just felt not well. The blood tests showed I was border line acceptable on 100mg and then was...
I suspect I may have an over growth of Candida in my intestines. I saw my doctor today and asked him about it and was told he didn't believe in yeast problems related to medication. He said even with...
I understand not wanting to have the moon face and I have taken all kinds of medications myself. At one point I would have been happy to have a moon face then feeling bad....
I've heard that entocort doesn't enter the blood stream so you shouldn't have moon face. That said, it didn't work for me so I can't be of much help. Hopefully someone else can comment....
It's in the TI and really the only other thing I have is Analpram for the pain in my bum. That helps with sitting down and everything....