Well, it is late August and my dose has increased to 100mg in July as 20mg was not enough ... the sores are gone but my monthly tests just came back. Liver enzymes up. Will test again. I have stopped...
Early in my Crohn's Disease, I would get sores like that on my scalp ... that was in 2003 only. They wer very wet and 'seepy'. Fast forward to 2009 and for three solid years I have had sores in my...
I lived in Sonoma County (Santa Rosa) and highly recommend Dr. Paul Hornberger ... he helped me immensely. Worth the 45 min drive....
I had signifcant hair loss with Imuran. I couldn't didn't have the enzymes to digest the metabolites. Got a new GI and he switched me to Pentasa and the hair loss stopped. He said over a long period,...
I would suggest you ask the doctor if he will be testing to see if your husband has the right enzymes to metabolize 6mp. I was on 6pm for 2 years and went off in 2006 when it affected my liver. Went...
Thanks everyone. I have had herniated disks in my neck and back for over 15 years and have some neuropy but not to this extent. The swelling in my legs has gone down, but not the spasming and pain. I...
I was diagnosed with Fibro 20 years ago and my major complaints have been my herniated disks in my neck, migraines and Crohn's .... therefore, I've not really thougth about my Fibro - I take...
I've just started taking Dapsone after horrible mouth and esphogeal ulcers from two years. It was actually my dermotologist who recommended it after consulting with a GI doc who specializes with...
THank you to EVERYONE who replied to my post. It helps so much to know there is a community out there that "gets it." I went to work today and had to whisper and even that hurt. Hard to swallow food...
I could use some ecouragement. I have been dealing with inflammation in my mouth, throat and esphogus due to Crohn's for over two years. But over the last 12 weeks it has gotten worse. A lot worse....
You might be right. He is a good person overall and willing to discuss things. I'm hoping this post will allow that opportunity. The post seems harsh, but we need to solve this. The experience is...
I should say that this is the first time I've posted on this forum. I am a regular poster on Crohn's. I need to know where to start with managing my anxiety in a marriage. I've never really been on...
Situation... Off of Imuran 10 weeks as well as prednisone. Switched to 1000mg Pentasa 4x day. Chronic cough since, gotten worse. Went to my GP last week and got a Comuvent inhaler which helps only...
I've suffered from anxiety for a good part of my life and have been recently re-married for a little over a year. Long story short, I've had panic attacks on and off in my short marriage, far more...
Yep, happens to me....
Hello all: I could use any input. So, I've been struggling with CD since 2003, mostly abdominal symptoms until about 2-3 years ago. Boy, since then I've struggled with really bad mouth and esophogeal...
Hello. I just got off Imuran. I did not have the enzymes to digest the Metabolites at 150mgs ... and had horrible headaches. 150mgs was a toxic level for me ... google these terms and I'm sure you...
This post brought me to tears. To think that this disease influences our lives this much. Yes, so the meds we need to be on may not be safe to be on while pregnantg ... and some of us have active...
I have no idea what has "gone down" as of late, but I do care for you Nanners, and all the advice you have given for me in my time of need. And you don't even know me! How is that possible, that you...
So, I'm coming down from prednisone ... I'm on 2.5mg of prednisone and doing okay for the most part. I've found a new GI doc. He suggests, and I agree, that Imuran is not the Rx for me. At 100mg, I...
lalalaCD: I guess the purpose of this forum is for us all to weigh in and for this collective experience to help you. I contracted HPV from my ex-husband. I ended up having cyro-surgery in about...
Very interesting ... I should say that I have had surgery for fibroids, but I am not having heavy bleeding ... just incredible pain and it is associated when I eat. I really appreciate all this...
I have been on prednisone ... 40mg for 5 weeks now and ahve been having chronic lower left abdominal pain. My insurance waiting period just lifted for pre-existing conditions so just had a CT Scan....
Vicky: How do you know it is a partial obstruction and what is it an obstruction from? Last time it was an ileus for me ... this time I think it is the same thing. Just inflammation ... no stricture,...
KRW... I thought it was a post about port wine, seriously! I am so sorry you have to deal with this! I've not had these experiences but I'll keep you in my prayers!...
Thanks Dophin 424 ... and Monkiray. I just got a call from the nurse. The CT Scan was unremarkable and I see the doc on Tuesday. I think it inflammation ... but it is hard to eat anything or walk too...
I live in a tiny town and work in Tomahawk, WI - a beautiful town of 3500. We have some of these flavors, but strawberry powerade is my usual. I drink Powerade Zero as the sugar in the regular feeds...
Hang in there!...
I've been in a flare for three months now. My insurance finally kicked in last weekend and covers pre-exiting so I had a CT scan yesterday and will find out the results. Basically, anytime I try to...
Wow, this is so helpful. Even after 8 years with Crohn's, I have to learn how to eat. I didn't realize how slow and restrictred my diet needs to be during a flare. This is only my second really bad...
I don't know if I have a stricture ... what are the symptoms? My frustration is taht I've been on prednisone for 3 weeks now and not getting any better ... one step forward, two back when I start to...
I think I push it way too much. Why don't doctor's teach you this much? None of the GI docs I have ever had (lived in three different cities) coached me ... And what is your liquid of choice? Does...
how slow? When do you know when to progress? How many days? Weeks? Hours?...
So it has been three months and I'm still flaring. Tried Entecort and didn't work. Been on prednisone for three weeks now and barely getting by. Second ER visit this AM for servere abdonminal Pain....
Pretty constant at 99.5 and tylenol doesn't touch it ... someone suggested it is due to inflammation from the disease and not infection. Thoughts?...
I'm in a flare and have swollen lymph nodes in neck and groin. Question: why do we get them? Infection or inflammation? Any other signs or signals? How to reduce or should we? Inquiring minds want to...
Hmmm ... a lot to take in here and learn. GI Monitor App ... using Healingwell as a journal as sorts (and have looked at past posts myself and am amazed) ... do wonder how foods which didn't bother...
THanks Cupcakespinkgal ... is coconut water the same as coconut milk in this case?...
Bless his heart ... I'm struggling with my first big flare since we got married a year ago ... and he is trying to "fix" me ... he wants to help me and sees that I don't always make the best...
Is xlax really a good thing for someone with Crohn's to take? I've always been scared so I take stool softners ... ???...
Hey never knew about rehydrated salts ... will look out. Do you know a good source online? I am worried I have not had any bowel activity since Thursday and it is Sunday although I've been taking...
THanks for all your feedback ... isn't it too sad that I'd be willing to pay for this insurance and can't get it? I finally went to the ER and settled on having an XRay as it picked up my obstruction...
What should I do? He changed my Imuran dose 10 weeks ago and I've been in an active Crohn's flare ever sense ... four weeks on Entocort did not help. Magic Mouth wash and 40 mg prednisone cleared up...
Actually you can get Magic Mouthwash without an prescription with only two of the four ingredients: Benadryl and Maalox ... just ask your pharmasist!...
I've had CD for a while with mouth and throat ulcers ... new is the pain to my teeth (sensitivity to heat/cold/pressure) with nerve pain in my gums that seems to shoot up into my temple region....
Ask your doctor for a rx for Magic Mouthwash ... make sure it has Lidocaine in it (the rx can have up to four ingredients). Also check to make sure you don't develop a yeast infection from them....
I know, it sucks! Any change in Meds, esp Imuran causes my hair to fall out. I have long hair and a lot of it so that helps, except when it starts to grow in! I wash every three days ... and get into...
4 weeks on 9mg Entocort ... bowel shutting down so doctor just put me on 40mg prednisone. Here comes the moon face ......
I have been on Imuran for a year ... at 150mg presently and recently reduced to 100mg. I was increased from 100mg to 150mg 6 weeks ago after a metoblite blood test told my GI doc that my theraputic...
Hey ... thanks for posting about this all. I have an ultrasound tomorrow for left pelvic pain and I keep getting these sores (not blisters like herpes or anything) - just one at a time) which my GP...