Thanks so much for your reply. My daughter had the scan today, haven't got the results yet. I did try to catch a glimpse of the pictures but had no idea of what I was looking at, is the inflammation...
Hi Just wondering if anyone has had one, and what is the procedure like? How common is it to have crohn's in only the small bowel? Thanks...
Hi Thanks for your replies. My daughter had one yesterday and they couldnt see any visuals but given her history (she had ulcers a few years ago) I don't want to get my hopes up thinking its not...
Hi I just wanted to know if when you have an colonoscopy if the Dr can usually tell straight away by sight, or do you have to wait for the biopsy results? Thanks...
Hi Just wondering what peoples first symptom of a flare is, and how long does it usually take to progress into a full flare that needs further intervention/drugs? Thanks...
Thanks for your tips. It turned out she got the bug but only throwing up, so it worked out all right. Thanks...
Hi My Daughter (almost 3yrs) has crohn's and she has been flaring up the last few weeks with joint and tummy pain. Anyway she isn't too bad at the moment but my son has a gastro bug today, threw up...
Thanks for the replies, wow I didn't realise you could lose hair from steroids, that is terrible. My Daughter is very young so growth is a major problem with the steroids, I really don't want her on...
Hi Just wondering what is considered to be a normal, low, mild, high CRP level in relation to crohn's disease. I did read it somewhere but now can't find it. Thanks...
Hi My daughter has crohn's, she only had a short course (1 month all up) of steroids recently, but the disease is coming back again quickly. Anyway I was reading about all the side effects for...
Thanks Gail, she hasn't really been scratching it, hopefully the dr will call today....
Hi I am just wondering if anyone has had a sulfasalazine rash before and what it looked like. My daughter (2yrs) has been on ssz for about 5-6 weeks, she has been known to get rashes from time to...
Hi My 2yr old has crohn's and joint problems associated with it. Anyway long story but she went on steroids for a month, it wasn't until the last week that I thought she was almost symptom free, then...
Hi Dorri, thanks for your reply, they did say when the crohn's i sunder control the joints will be too, but seems that nothing is really working that well. Claudine, I am in Sydney, I can't figure...
Hi, thanks for you reply kazbern She is on prednisone now, it was only suppose to be a week on it but it was extended for another week and then two weeks coming off, so last week she had a reduced...
Thanks for replies, I am still not sure if she is in remission or not, I guess when the prednisone stops we will probably know for sure either way....
Hi I just wanted to know how many symptoms people get when they aren't having a flare. My Daughter is only 2 so its hard to tell sometimes, but she has been on a long flare with joint pain too, she...
Hi Ok well I saw the gastro and he says that because she had a growth spurt she grew out of her dosages so I am now doing a higher dose of pentasa and starting of flagyl for another three weeks but a...
Zanne, good point I will ask for a script today or confirm if he will give me one after surgery (he does the scopes). I am also going to tell him that his reception needs to squeeze me in for an...
Thanks Vicky, well the rash has eased off today. Um what does a steaky stool mean exactly??? Well finally the gastro rang............... the rheumatologist emailed him this morning and he called me....
Hi Zanne, yes it is pretty much his standard of care (I think only a couple of times he rang within a week), his specality is crohn's disease, and as far as I know the only peadiactric gastro whose...
Hi me again I am sorry I am just so depressed. On Tuesday I called the gastro to see if he wanted to continue on flagyl since it hadn't worked, now the reception said he or she would call back. So...
Thank you Vicky & Gail. I am trying to stay positive, so far the last 19 months she has been treated with flagyl, pentasa, probiotics & Ferro liquid, and so far no real side effects (except flagyl a...
Hi Exitwound sorry I just saw your post now. The only way I can get through this is to not think too much about the furture, although its so hard. My Daughter saw the rhematologist (sp?) on...
Hi Thanks for your replies. Gypsyfp the thought had crossed my mind that it could be an abcess causing the pain?? Although she has had hip ultrasounds and xrays, would that pick up on abcess? Good...
Hi Sorry for my lack of replies, it has been a hard couple of weeks, my DD is still getting bad joint pain on both legs and she started flagyl on Tuesday (for three weeks they said this time), it is...
Hi sorry just another quick post, she has been in and out of hospital all week, can anyone tell me if the joint pain comes and goes from one side to another???? Thanks...
Hi Can I just say that crohn's disease is f$%^ed! When my daughter was part diagnosed at 13 months I cried myself to sleep for weeks, then with the drugs they gave her seemed to get things under...
Hi Thanks for your replies, will be back to reply more later but thought I would share that she is walking again, just like that, so she couldn't move her leg for 48 hours and then ok, Drs said it...
Hi I have posted on here once before about my daughter, she is 2.5yrs and has unconfirmed crohn's disease. She has biopsies done when she was 13 months old which said they were consistant with...