So, I come around here every year or so to see if I learned anythng new. Well, guess what...I am one of the 5% of IBD patients to have it. It isn't a side effect or whatever bit basically, my biliary...
I'm trying. When I first had to deal with the PTSD I had, that's when I was seeing a shrink when I went back to college b/c I was flying into these rages. She told me the symptoms of where and when I...
Thanks for the offer. I think the plus of going away for a bit would be the rest allowed. I do know the serious warning signs...seeing myself actually doing any or all of the ways I could go out. The...
So, my shoulder's killing me again. I dunno if I retore something there but I keep fighting off the need to hit an ER for the intense pain that's come with it again. Beyond that; I'm not okay. Mom...
Hearing that makes me glad I have a good clinic that KNOWS me. Cripes, in the first year with them, something happened to a urine sample where it came out with no showing of ANY of my meds but they...
Thanks all....
This is kind of weird but basically I go from D to C in a flash. So when I went on all of the bile salt malabsorbtion drugs, I went from the constant D of YEARS to sudden C so painful that I can't...
The more I read, the angrier I become at my GI. I love the guy, truly but he said that there was no reason he'd put me on Marinol which is sadly all my state allows. I am in Missouri and even my PM...
I love grapefruit but I cannot handle any acidics. They and fiber cause more D for me then my normal 12-20 a day. I had to give up most of my favorite stuff due to acidics. Even tomato's can cause...
Thanks...
TO Dixie: Go to a Pain Management CLINIC. They cover a pain management doctor. I also had to undergo counseling with a shrink who specialized in pain management and depression. There is also a...
Oooh, anyone have select comfort? I'm specifically asking about it b/c I kinda need a bed that will uh, move but I'm also a change needed person. Sometimes my flesh is so tender that only super soft...
I'll send you good thoughts but don't forget: these pictures they take...are not perfect. That is usually why they do at least a secondary pic/test before moving to the painful options. I know its...
Thanks for all the kind words. I just thought it would be harder on my birthday, NOT this godawful day. I have a cousin who so kindly reminded me that my loss is not nearly as hers is since her...
Today is Easter and for the life of me, I cannot control myself. It feels like this enormous hole in the center of my chest is so empty that even breathing hurts. I woke up today feeling pain. Not...
That sounds hard but I felt better after my other resections...although not my last. Still, usually it's to rid the intestine of tissue so diseased and damaged that your boyfriend would definitely be...
Thanks much...uhhh and Tidalmouse....I can only really be J.O.I.E. not J.O.L.I.E. :-p...
Oh minnie. This is the first I've heard of you since I've come back about a week ago and I know for a fact that hearing "relapse" causes all the anger and frustrations and everything that made you...
i hope that everything goes well for you from now on. I hope that your tests find whatever is causing the issue for you and that whatever they use helps to heal it. Maybe you need to go on a liquid...
Thanks. I just don't know how to face all the coming years and decades of sadness without my mother. It sounds so juvenile but my mom was the center of our family including my aunts and uncles ever...
My PM doctor wanted to put me on the drug Marinol. That's the drug version of the pain killer in MJ, but my GI said there wasn't enough stats that showed it was worth it for Crohns patients to so it...
From a girls' perspective, I find it almost impossible to achieve an orgasm. And the antidepressant killed my libido. Course my hard working husband never comes on or asks me for sex. He always waits...
skeye- My PM had to keep me on oxycodone for what we call breakthrough pain b/c I was still feeling pain through the oxyContin. So, you might see if that's a viable option for you. At this point my...
I FEAR the addiction of the pain meds although I won't lie and say my Crohns has been better controlled since I started OxyContin. The way my Crohns manifested created a situation where I had to go...
Ah ha. Antidepressants. Well, last time I mentioned I was depressed to my PCP, he asked if I was taking the Cymbalta they put me on for the Fibro. Which I do take every blasted night. He said it...
Hi all. I'm not sure who remembers me, but I see some names that I remember when I last got on a computer back in 2012. See, I lost my job that LOVED at that time because my boss told me I "have too...
Removed mine in my first surgery when I was 22. It had a rupture anyways....
Umm...suck on popsicles. Which is all I'm doing now. But I'm still working. I just don't eat uh...anymore....
Oy's right. I was finally down to 5mg...and now I'm back up to 30mg as told to do by the GI. Here's to the hair on...well...everywhere. :-P...
Whimper whimper...why can't the pain stop and let me just SLEEP. I just tried to sleep again dernit. Like dreams but tummy hurt and had trash can ready for waking vomiting episodes. Only managed...
Feeling awful. Typing is so hard. Reading posts for the Crohns and Fibromyalgia and Chronic forums and honestly, it's inspiring mentally. I just can't transfer the relief and joy and pure goodness...
OH Gosh Sniper. You know what I'd do if I were you. Personally go to all these people, stand there and physically request all the paperwork, the reports, the films and their notes. It's a BIG file...
Everyone says distraction. My hubby bought me some oil pastels and the art paper. I also have chalk pastels. So, since I can't use my fingers so much I can still smear the oil and chalk gently. I'm...
RIGHT ON! TAKE A STAND AGAINST THEM ALL!!! I'm a public service employee. I work in a library and I'm the person people go to for help or to check out books. I try my BEST to create a happier...
I haven't really experienced any real relief from the predinisone for the roundabout 3 months of repeated tapers. I've got to talk it out with the GI when I get to see him next month. Good luck and...
Hehe, if you're vomiting, that's also a quick motivator in the ER. It freaks out the other patients if you keep vomiting in those bags or bowls. Plus, they fear infection/transfers. Take care of...
I'd talk to the surgeon again and tell him you honestly don't feel ready for work physically. I always have to fight the doctors to give me the "okay" to work earlier BUT I've benefitted from being...
Is it possible at ALL to contact the old PCM? I konw that a really good doctor will are enough to recommend someone who might be more compatable with your husband all his needs. Maybe we should all...
Honey, I can relate. It's possible that you've got a mild stomach virus on top of the Crohns flare. The pain I get on my period is awful. I know when my period's coming by the increase and intensity...
Okay, you all know I'm having issues with the center of my stomach area and it also radiates to the left abdoman directly below the bottom of the left ribcage. The pain is intensifying and I keep...
Thanks everyone. Been on Zofran. LOTS 'o times, hehe. Actually, the problem here is the SAME exact problem I've been having. It never went away. Just hid under the three-four months of repeated...
So, I'm tired. I fell asleep at work two weekends ago. I was supposed to be checking books out to folks and it was quiet the last half hour or so. I REALLY fell asleep. So, when I was supposed to...
Mines going to sound stupid. Don't throw up. Don't throw up. Manage at least the minimum of medicines and don't throw up. Get out of bed and don't throw up. Avoid the red drinks to figure out what...
Start with a soupy food. For me, I only wanted Spaghettio's when I could finally eat solids. I don't know why but it helped me learn to eat again. Half a can at breakfast, half at lunch and then I...
I feel awful. Went out to this nice kinda upscale dinner and had to go vomit three times. GRRRRRAWWW!!! Can't we just say "uncle" with our diseases...just once in awhile?! My regular doc put me on...
Ahhh, I wouldn't forget that on occasion you'll get weird spots that are cold like something wet hit your leg and you touch it and there's nothing wet or cold there. Same goes for hot spots that...
Ahhhh, and then fate steps in and smashes one down so the rest of us flounder to figure out where we go from here. I recall him as both names. He was a nice guy. My condolances to his family and his...
Well, no dairy. The GI and my regular doc both said that ANYTIME around a flare or after one, adding any kind of dairy including eggs into the diet cause too much mucous. Eggs cause issues with...
Honey, on the day after I work, I lay and do basically nothing. My body needs the downtime b/c of the day before when I did work. You'd think a 4 hour shift shouldn't cause so much pain but my...
Nanners, from what I know of all my past surgeries...get up and walking as much as possible. Even if its around the block or a couple more times then you normally would around the house. We all love...