The only thing that comes to my mind is pemphigus. I hope your friend is better soon ......
What kind of leg pain is it? Is it in the muscles, or in the joints, or just everywhere? I am so sorry that you have suffered for so long. I have to wonder if it is due to low potassium .....
Roni, I would continue with the prednisone and give it a chance to resolve the stricture. Hopefully, it is inflammation only. I had a string-like stricture that was 9" long that was thought to be...
I had a temporary colostomy surgery on 7/29, and have been doing pretty well. On Friday, I started having symptoms of a urinary tract infection and saw my doctor. I was put on Cipro, and have been...
Hi Roni, I had a temporary colostomy a little over 4 weeks ago, and have suffered with Crohn's for many years. I think the relief you would get would be based on where the ostomy is located in...
I have a temporary colostomy, and when I have had that sensation, I actually pass mucous. There is nothing phantom about it for me, as I have the pieces/parts - they just aren't connected. The first...
When I crave Chinese food during a flare, I order Egg Drop Soup from a local restaurant (without the green onions, and without MSG). It satisfies the Chinese food craving, and does not upset my...
That is wonderful news. I hope the best for both of you. Glori...
I have a colostomy, and hope that the output slows down to once or twice a day. Maybe it would be a possibility for me, then. Thanks for the response, Summerstorm....
I am new to this ostomy stuff, and the closed end bags sound absolutely wonderful, but I am not sure that two changes a day which my insurance covers would be adequate. I have Crohn's, so my output...
You are both in my prayers. Take care of yourself while you are so stressed. Glori...
While Mayo is unquestionably ranked #1 in the US for gastroenterology, Barnes-Jewish in St. Louis is so close to you that I wonder if you have considered it? According to this article, it is ranked...
My brother was diagnosed with Crohn's a few years before I was diagnosed, but both of us had symptoms for years prior to our diagnoses. We have a paternal uncle and a cousin on the same side of the...
Shower and dress Laundy Tidy up before parents come over for brunch Call insurance companies - I *must* do this today, as I have put it off for several days now! Take a nap to rest up for tonight...
I agree with the suggestion of a bath. Sometimes, the only way to escape the pain is to sleep. The problem is that the pain is so bad that you often can not get to sleep. Try the bath, then try to...
Termination Date: The actual date the coverage ceased. I found this on AFLAC's website - they have a glossary page. Good luck, Glori...
If you are considering disability, you definitely should not go back to work. From your recent posts, you clearly are not feeling up to it. Let go of the guilt, and focus on getting better. The...
Shower/dress - done Unload/reload dishwasher - done Humira - how odd that we all have Humira on the same day! - done Schedule follow-up appt with surgeon - done Call insurance companies - stalled on...
Hello Ivy and Choc. Ivy - I'm so glad the council listened to you. Choc - I remember when I was on disability, I used to tell people that I was "between jobs". Not exactly a lie, as I fully intended...
The only non-Crohn's thing that comes to mind is a possible Bartholin's cyst. I think it would be closer to the vaginal opening, though. Whatever it is, I hope it is scared of your broom, and just...
I am putting a towel by my bed TONIGHT. Lordy, that sounds awful! Glori...
Have you seen the USB flash drives that can be worn as a necklace that can contain medical information? I'm not sure that it would have been a solution to your problem, but it might be worth...
I had a rough night after probably overdoing things yesterday. So, I slept til noon, and have spent the rest of the day in slug mode. My son came over late this afternoon, and he and I edited his...
Thanks, Ivy - I had surgery on 7/29, and got home from the hospital a week ago today. The trip home from the hospital was four hours in a car, so that set me back a little on the recuperation...
Shower and dress - done Phone calls to lawyer and insurance companies - called lawyer, putting off insurance calls til tomorrow Unload and reload the dishwasher - done Water! - done Feed and water...
Hi Flowery! I applied for disability after missing six months of work due to the effects Crohn's was having on my health. I did not hire a lawyer, and was approved on the first round of the...
I was married (it was a rapidly deteriorating relationship, but the fact remains that I was married) when I was first diagnosed. I was trying to help my ex-husband understand what I was feeling, but...
This is my first TLC post, and since I just had surgery on the 29th I am going to keep the list pretty short: Shower and dress Phone calls to lawyer and insurance companies Unload and reload the...
I just had surgery, and made sure that I had some Ensure in the house for when I got home. I also like Progresso chicken soup, and macaroni and cheese once I get past the purely liquid stage. Make...
After having Crohn's for decades, I have joined the ranks of those who have needed surgery for the disease. I have a temporary colostomy, affectionately known as "Colette", and am home from the...
Thank you all for your suggestions, as they did keep me sane during the hospitalization. Flowery, I did decide on Colette, and she and I are both doing well. I am tired, and will post an post-surgery...
Dr. Bashar Safar with Washington University just performed a temporary loop colostomy on me. I highly recommend him....
A fever that high can quickly lead to dehydration, which can get out of control very quickly. I once put off going to the ER only to find myself so weak and dehydrated that I was shaking...
Becoming Undone: I had planned to bring the laptop - but movies! What a stroke of genius! Thank you for the suggestion. Redsoxgirl: I have been told that it could be anywhere from four to seven days,...
I am packing to make the four-hour trip to Barnes-Jewish in St. Louis for ostomy surgery on Thursday. For those of you who have always feared that Crohn's will result in this, it really is true that...
Just curious .. have you improved? Please give us an update if you are able. Hoping the best for you....
I was hoping it was the wing sauce, too. Good luck to you....
Has your doctor mentioned other drugs besides Tysabri? To me, it seems like that is bringing out the "big guns" before trying the standard issue stuff. What about trying Remicade or Humira first?...
Thank you all for the welcome. Artist, I can relate to the side effects from Imuran, as it elevated my liver enzymes to a dangerous level. I have also used Remicade with some success, but switched to...
I have lurked here for awhile, and decided it was time for a proper introduction. I was diagnosed in 2001 after 20 years of a "bad stomach". After going to the ER in excruciating pain, and undergoing...