I have been dealing with fistulas since the age of 10. I know where you are coming from and feel so saddened to hear when other people are going through the same thing. Every day it is so hard to...
I too have a BAD stricture and am waiting to have surgery till November. I get so aggrevated as well about how unhealthy I eat - it seems the more white products and processed foods I eat, the better...
I get lots of headaches and I think its from my Humira. Like many others on here, shortly after my shot I get them and they can last for a few days. I also just discovered Exedrin Migraine and that...
Just a Drop is AMAZNG. It has saved me from embarrassing smells at work, home, and public restrooms. My boyfriend and I always have one in each of our bathrooms. I was very reluctant that such a...
Thank you so much for all your advise. I have started the Canasa suppository. I am getting a few tests done and I also increased my Humira from 10 days to once a week. Hopefully these things will...
Since starting my Humira I haven't had a problem with D. Every once in awhile, if something I ate bothers me I will have a little D but lately its been normal, prob due to the stricture. Sometimes I...
how long did you have severe D after? And how much intestine did you have remove? My surgeon said I could have it months and I may not return to having normal BM's (or somewhat of normal) I know it...
I started entocort along with my humira. I too was afraid of side effects, because I get tremendous bad effects from prednisone. Low and behold, no moon face, no joint swelling or pain, no increased...
You have to go to a SPECIALIST for this disease - not a family practitioner. They do not have the extensive knowledge as a Gastro dr would. Please try to find one asap. It will only help you and...
I am so happy its working for you! Its great to hear good things about meds. I too LOVE LOVE my entocort. I was taking Humira alone and was still feeling icky but as I started the entocort, I felt...
I upped my does from every two weeks to every ten days and it has helped tremendously. I also started entocort when I bumped up my dose so I think the combo was a winner for me. I hope you can find...
Def the Pen!!!! The syringe hurts so badly. Pen is fast and as long as you ice and leave pen out for 15 minutes before injection...its a breeze....
I can refer you to my dr. She is at Jefferson in Philly and believe me, I have seen SOO many GI's out there from Cleveland, to NYC, to Jersey, to Philly and I am so fortunate to have found her. Email...
John510- where in NJ are you located? I am from the central shore area of jersey. Def get into finding a GI. PCP's are great and all for little stuff but this disease is serious stuff. I'm 27 and...
Yes I agree totally that a liquid diet jump starts you out of a flare. I'm going through it now and even if I ate mashed potatoes my intestines would be wrathing in severe pain. A week of pureed...
Yes I own it. I actually have read/own every Crohn's book out there. I would say its def worth reading. A lot of tips on how to be just overally healthy with food, supplements and what-not....
yes I have that problem too. It is so annoying and the big thing that bothers me is I am never clean and fresh down there or that there is this lingering smell. I am so paranoid that others smell it...
I had this done over a year and a half ago and it was a success at closing up the fistula. :)...
Yes I get pretty fatigued after my shot as well. The one symptom that really bothers me though is the headaches. They last sometimes up to 4 days after my shot. I hate it. No advil takes it away....
thank you everyone for your caring replies!! To answer some questions: I saw the head of board at CC Dr. Fazio and since he is no longer doing surgeries, he appointed his best surgeon dr. Zutchi to...
So to shorten a very long saga -I had surgery almost a year and a half ago for one thing but the lovely surgeon did something entirely different without my consent. While she did the wrong procedure...
I read her book and soon after ordered the Absorb Plus. Unfortunately it did not agree with me. (had me running to the BR) Everyone is different though and I wouldn't let my experience deter you from...
Ok so I have tried EVERYTHING as far as meal replacement drinks, powders, gels..... When those times come when food just doesn't feel good going through or if I want to add calories I want something...
http://www.luckyvitamin.com/item/itemKey/64181 HERE IS A LINK for George's Aloe Liquid...
You guys have to try George's Aloe Juice - it literally tastes like water, consistency of water....not thick or unpleasant taste as the others. I think its amazing bc I have tried all the other yukky...
I wasn't getting my period for years and it drove me crazy at the fact that every dr I mentioned it to wasn't concerned with it. I have been on the pill since age of 16 because back then my periods...
I'm sorry I didn't mention that Jefferson is in Philadelphia. I live Central Shore area of NJ and it takes me just under an hour and a half to get there....
I go to Patricia Kozuch at Jefferson. I have travelled all over far and wide and was NEVER happy with dr's unitl I found her - she is excellent!!!! Caring, open-minded, explains everything in a down...
Are any of you on Humira and Entocort and still have occasional flares? Do you think its normal that I am having severe flares while on such strong drugs? Its been 6 months since I began Humira and...
I was also getting a rash while on prednisone, although it was not itchy. My GI couldn't explain to me what was causing it and refused to think it was the prednisone. I sat and told him that I...
wondering if anyone has had this type of surgery? I am recovering from a sphincter overlapping surgery with mesh and have some questions for others who may of had this...thanks!...
I forgot that I wasn't going to be home the time I was supposed to turn my 24 hour yogurt off and it cooked for about 38 hours. Is this too long for consumption? Should I start over with a new batch...
I am also having a very hard time with gas lately. I have had crohn's all my life and NEVER had gas become an issue until this year. And it seems to just be getting worse and more offensive (really...
Thanks janicea! I wish I could experiment more with LDN right now but I am just in too bad of a flare and have been for the last 8 months. .. I am starting Humira actually. It was officially decided...
I went to see new dr - by the way she is wonderful - I think I found the ONE! Finally... nothing to worry about really like you all said. My worries have subsided but still is in the back of my mind....
thank you for your advice. It confuses me though because it seems like my body is not being suppressed because I have high concentrations of inflammation in my intestine. Doesn't this mean it is...
memorytheatre - Hang in there! I can only imagine the stress you are under. I was started getting symptoms at age 2 as well and not until now that I am 26 is where I am learning how much strength my...
Its a little piece of plastic/rubber tubing that is placed in a fistula tract to either drain or cut into tract to allow all the infection, puss to come out. It just allows the skin to stay open...
I have been bouncing around from probiotic to probiotic trying to find the right brand. Currently I am on VSL#3 and from all the reviews I think this may be the one but we will just have to wait and...
yes I was so ENERGIZED too while on LDN! It was the best feeling in the world. I was getting myself in the gym every other night, going all day long, and very happy all the time. Its almost a...
Ok I am very scared. I just thoroughly read my latest CT scan results from my ER visit a few weeks ago and it says: There is abnormal number if not size of lymph nodes in the small bowel mesentry....
I do not know how to pm you so I hope you get this. Kind of getting off track with the original post here but I am fascinated in these mushrooms. I bought bags of the real deal to brew my own tea, so...
I was on LDN for a 5 month period and just recently stopped. I do not want to play down LDN at all because this is the only drug out there that I have high hopes for right now. Within the months I...
yes I was loving it too - 40 mg - 10 lbs in 8 days! I can eat what I want - which is just crazy to me. THEN I started to taper to 30mg this week- that is when it all hits the fan and my love turns...
ozonehole -have you used lingzi as a way out of a flare-up? Or is this something that you just use as a maintenance...have you flared on them? I have read your posts on them before and was so...
No she is not going to do the next procedure. :sigh: :nono:...
Oh and yes I will never be seeing her again. She has yet to even call to see how I am doing after knowing how much despair I was in. I am having one of the best surgeons at Cleveland Clinic do the...
The surgeon knew I was in despair after the first surgery mishap but she just kept reassuring me things would heal over time and I trusted her word and allowed her to continue working on me. 3...
I had started Humira in Jan of this year and freaked myself out by reading too many horror stories and lymphoma cases, and terrible side effects. I am going in for more Humira and I am sticking with...
I am hoping the Humira works for me too!!!!!!!!! I have great hope this time around. Trying to stay positive and keep an open mind. I'll tell you what though - its been 5 days since giving into...