Nicecupoftea, I have copied the story onto the post...Thanks for the advice......
Here is a link to what I have for a GI...I live in a small town on the North Carolina Coast and GI dr's are Very limited...Time to Drive to Virginia I guess for a New GI, What do u think?...
Yeah this is a article in the local paper about my GI Dr. http://www.dailyadvance.com/news/physician-reprimanded-3rd-time-2111773 I agree I need to look for new dr... And I will ask the nurses in the...
Thanks for the replies ...Sorry to not be clear, I just was at a bad point in my life when I wrote that and really needed to reach out to others who have to deal with this awful disease.. After every...
I am on Remicade and I get sick every time I take Remicade...I get the flu (that kills my crohns) that last for months, and I just don't feel like I can take it any more.My GI Dr is the worst and...
I also take about 6 immodium each day....I have discussed this with my Gastro Dr. and he has no problem with it...I've tried to cut back and the major DD comes right back......
Yes, I feel your pain...I also found out this year that I have Bone Infarct in my knee.. I'm also depressed about this, and what the future holds...I have been unable to take anti inflammatory drugs....
I am in my first year of taking Remicade...It has made a major difference in my life...and hopefully in my insides. I'm just really worried about my health..I know when u take Remicade that there is...
Thanks for the reply's.. I have been told this from my Gastro Dr. Several times...and every time he makes that comment it makes me worry about him being my Dr. One Problem I have is I live in a very...
I take Remicade every 8 weeks....How often should my Gasto Dr. order Blood workto be done to check my liver and other things?...
I was wondering if anyone could help with a quesiton. I have had Crohn's for 5 years and finally have been able to get into remission this year after my 2nd Bowel Resection. My question is my Gastro...
I also have been helped my Nanners...Here's hoping your surgery if needed goes smoothly and with little pain. I'm PRAYING for U......
June you are so welcome...I have my email address on my post, if you would like to talk further I would welcome your email. I am a 46 year old mother of two and feel we have alot in common, in what...
Hi June, I feel your pain...I can relate to many of your problems..I also have alot of joint pain..I have had crohns for many years and have pain in also all of my joints. I was told last week that I...
I've been told to take a baby aspirin everyday for 3 months, for the bone death in my bones that they just discovered (which they say came from the large doses of steriods I've had to take over the...
I'm still trying to accept having Crohn's Disease and now they tell me that the pains in my knee and many others areas is Osteonecrosis (bone death) and that it is probably from all the many doses of...
Thanks everyone for all the ideas and comments...So very helpful.. So to answer some of the questions....I tried to put the link to the article, but couldn't seem to get it to work... I feel like I...
I've been doing more Crohns research lately, and came across a article about Remicade... I have found that Remicade was initially approved in 1998 to treat Crohn’s disease in adults. And they knew as...
You will begin feeling better each week...I had my 2nd re-section in Oct. 2010 and it took about 3 to 4 weeks to start feeling somewhat better. I am now 3 months out and have to say I feel the best...
I was doing some research today on Crohn's Disease, and learned something new. The article I read said that Dogs can get Crohn's Disease...Does anyone know anything about this? I was really surprised...
sad what we have to think and deal with...I feel your pain....
I was wondering if anyone has ever had this problem. I had my 2nd resection 3 weeks ago today and have been out of the hospital 2 weeks. My problem is that the vein on my hand that they used for the...
Dr. Says my blood test shows a good level..... Said not to worry about blood loss... (not a easy thing to do, 2 weeks after a Resection) He said that if the bleeding has not stopped in 2 weeks, that...
The Dr. office finally got back to me this morning.. They sent me to get blood work. Have appointment with Dr. who did the surgery on Wed. Just to update...The bleeding has thankfully slowed...
Dear Mirowpl, No , it doesn't have a bad smell..... Yes, It's bleeding alot...With every BM...Which is alot since surgery....I've had very bad D every since. Usually about 5 to 8 times a day. When...
I'm really worried...I'm 12 days post 2nd resection and about 4 days ago, I started seeing alot of blood in my bowel movements. At first I didn't think alot about seeing some blood because before...
I am 1 week post surgery, and noticed today that i'm having drainage from the surgical site. I have a 7 in cut with staples. The staples sites and scar is very red. Is this normal? On my 2nd...
Nanners Just to clarify I had a epidural , they didn't offer a nerve block...But It worked just the same...it was wonderful. I was in the hospital for 6 days, and was able to keep the epidural in for...
I wanted to thank everyone that contributes to this site. The suggestion to ask my Dr. to do a Nerve Block for my 2nd. Resection surgery was one of the most important tips of information shared to me...
I just got home from the hospital, and have to say I fell like I just got beat up... But I now have it behind me.. I was wondering if anyone remembers, after their resections, how long does the...
Well I got the blood test results today, and I have been able to get my potassium levels up....They will do my surgery Thursday... Very Glad , just very worried....
I got a call from the Precare nurse on the pre- op blood work, that my potassium levels are extremely low. They say that if they can't get the potassium level up that my 2nd Re-section surgery on...
Hi, Sorry U feel so Bad, But I know just how u feel. I am looking at my 2nd Bowel Resection next Thursday on 10/7..I'm not looking forward to it one bit. I also have trouble finding something to eat....
Thanks very much....I'm hoping for a better quality of life...I don't like living on pain pills....
Went to surgeon today....He wants to do my 2nd resection next week on Thursday...Not looking forward to that.. This time I'm on Remicade...And they tell me that will make a difference .. My first...
Thanks for the advice...I appreciate it..I will also take your advice and not freak out yet. Thanks again...
I'm seeing the surgeon on Tuesday to plan my 2nd resection..I'm also having alot of pain and blood from the anal area, so my Gastro Dr. advised me to also talk to a anal surgeon specialist in the...
Good luck with your surgery.....I feel your pain...I will be having my 2nd resection soon also. I am scared to death, I guess because I know what to except. I'll be praying for your fast recovery....
Thanks...It's great to know that I'm not alone on this...I worry anytime I don't do what the Dr. says..I don't want to make him mad..But I've got to stand up on this one....
Thank you all very much for all the great advice...You gave me alot to think about...I really appreciate it..It's so so good to have others who are dealing with this crazy disease....
Got the bad news that i have to have a 2nd resection done...Boy do i not look forward to having that done again. It's only been 4 years since I had my first surgery. I had several complications post...
I have changed everything that goes into my mouth since finding out about having Crohns, except cutting out Diet Pepsi. I am addicted to it. It's about the only thing i drink.... I know, it's not...
I have been on prednisone so much, and have such bad side effects, with no real relief from useing it....I decided to say no more...at least for now. I'm looking at my 2nd resection at anytime, and...
Well I'm alittle worried about getting Remicade on Friday...I've been so sick for years that I'm very hopeful for a change in my quality of life. My question is, when u take remicade does it make u...
I live in a very small town with only one gastro dr. He doesn't work with me or anyone.. If you can't afford his visits, u don't get his help. Well at this time I can't afford his visits. So I Can't...
They are 3 years past expiration...Yet after taking them for last week I can tell they are working.. All the same effects as always..... I know that this is not the best, but sometime u do what u...
I feel your pain...I have the most dry skin ever..Especially my hands and feet. I've always felt it was associated with Crohn's Diease....
I know that we shouldn't self diagnose ourself's, But in this Economy with no health insurance and being self-employed....Sometimes u have to do what u have to do. I needed to be back on prednisone...
Just stated taking in the last 2 weeks a Fish/Flax & Borage oil (all in one pill) supplement. It seems to be making the D a little better. Still having to watch what I eat, but seems to be helping....
I feel your pain.....I had to stop taking Humira too. One reason the pain of injection..Unbearable more each time. Also I work with the public and stayed sick all the time....Also I worried alot...