There is no one better than Clark Gerhart. I speak from personal experience....
When you have narrowing, you can also have small intestine bacterial overgrowth, which is pretty easy to fix, it could easily be felt higher up that the narrowing in the illeum. Google SIBO and see...
There's three pharmacies on this page in Canada that compound it, you can take it with prednisone up to a certain dose (you'd have to google around to see what the dose of prednisone is), i think...
Why not just find a doc more open minded? My GI would not give it to me, but I had no problem getting it from my GP. Go figure....
I doubt you'll see a phase III for a long time since the safety profile was passed by the FDA around 1985 Phase III for 10x the dose. It takes millions for Phase III. Hope I'm wrong, but.......
FYI: Background. Dr. Jill P. Smith’s original article, "Low-Dose Naltrexone Therapy Improves Active Crohn’s Disease," was published in the Jan 11, 2007 online edition of the American Journal of...
Hot off the presses. Use Of Naltrexone Reduces Inflammation In Crohn's Patients by Penn State Hershey Research on Tuesday, May 24, 2011 at 4:46pm Hershey, Pa. -- Naltrexone reduced inflammation in...
njmom: if she's putting a gauze or a bandaid on it, tell her to put a little vasaline on the gauze just enough to make a slight film. -j...
I'd send him a personal note with your experiences. He needs to hear it! Mark it personal on the envelope and drop it off yourself. :)...
I started at 4.5 and it gave me insomnia. I lasted about 2 weeks, backed off to 3, spend 2 weeks at that, raised it back to 4.5 -- worked like a charm. If I had it to do over again, I'd have just...
I got one word for ya: UDI's Best. GF Bread. Ever. also at trader joes....
also -- painwise I'm lucky -- I manage on half a vicodin and some coffee in the afternoons when it's bothering me. Caffine activates the opiate. You must be in a whole load of pain. I'm sorry to hear...
Hey! Yes, I'm still using manuka honey mon-fri, with a vasaline gauze (just vasaline on a gauze, not that awful yellow pre-made stuff) to cover, specifically Kerlix -- and clobetesol with a vasaline...
don't worry too much, the worst thing is a reschedule, right? Also, I usually start going easy on the solids the day before and pre-prep with some magnesium supplements the day before the prep. I...
Oh well, in my case there was no test per se, they found my appendix during the lapropscopy all covered in adhesions and took it out. I was happy when they found it (and happy they took it out). I...
A cyst/s that bursts can cause adhesions. ALong with everything else you're doing, you need to "where's waldo" your ovary. Abdominal adhesions are no fun and almost impossible to separate painwise...
I wonder if you had an infection that the prednisone was masking? See if you're feeling better over the next few days, that'll tell you more than anything....
My reaction to the test was the same. It was one of the clues for me I was allergic to carageenan cutting it out has improved my life immensely. Might want to google it a bit. :)...
Yes, they can do surgery - but you have to be careful to find a very good doc b/c of the risk of adhesions afterwards, which is a whole other issue. I'm betting on cysts - that's a MUCH easier deal...
Oh also, I know this sounds insanely simple, but I use a lot of peppermint tea and gas-x to help move the gas around the stricture when it happens. maybe that'll help you too. Also, if you decide to...
you could certainly have a cyst - but that's still a lot of pain. I predict your ob will look very attentive when you tell her the pain pattern. remember to update us when you go, and in the meantime...
Magnesium / milk of magnesia....
Pain with obstructions can be anywhere in the GI tract, depending on where the obstruction is. If it's an adhesion from the belly-button camera then it can be there, but otherwise it can be anywhere....
When I was 20 I had 2 ovarian cysts, complicated by endometriosis. One was the size of a grapefruit. You could feel it externally. The first doctor I went to about it told me to stand, cough and said...
Judy, to me, you're textbook partial obstruction. It's probably scar tissue from your last surgery.... at least that's what it was for me. I had a great surgeon take care of mine, although sometimes...
I use vertericyn: http://www.vetericyn.com/ it's the same as microcyn for humans http://www.oculusis.com/ if you want to be amazed log into the mexico part of the site in english and look at the...
just read today the most common reason for falsely elevated hemoglobin is being dehydrated when the blood is drawn, fwiw, i read about it today coincidentally for another reason, and thought i'd toss...
just an uniformed guess about the patent... right now LDN has to be compounded in capsule or skin cream form. IF it's to move into mainstream medicine, it'd have to be produced by a pharma co....
I had to switch to LDN creme to get past the candida issue. Worked well. It also allowed me to rachet back the dose to 3mg and work up, because i also had the sleep issues. Interestingly, backing up...
I didn't have any luck with steriod shots, and honestly you need to find a really smart doctor to help you with PG. It's a really tough diagnosis. See if the shot works at all and make sure to keep...
jp: I'm on LDN monotherapy. My remission was only from LDN alone. No other drugs. Two years later, it's still my only drug. My remission was verified by colonscopy at the 4 month mark. Also, I have...
I use the cream, works perfectly for me....
I'm another Jill Smith patient - and I asked her this exact question -- and her response was that I could expect further improvement as my immune system started to work correctly on its own from the...
pmedic: no, not personally -- but I read some about it being used for sinus infections with good result. Apparently diluted honey is still very active, I think in the sinus thing i read it was maybe...
This year I spent quite a while learning about biofilms AND psudeomonas arginosa. FYI. The manuka honey thing rocks. NJmom -- try to get UMF20+ you can see the exact thing I use here:...
I haven't even had a cold since I've been on it (knock wood LOL). re pain meds: if you take it before bed, you're okay to take the occasional pain med during the day. I do it all the time....
I use it every day as part of the treatment for my pyoderma gangrenosum. It's been amazing. I use it now instead of aintibiotics and silver/sulfa (SSD) - njmom, what's up with your daughters skin? I...
Try http://www.ldnscience.org/ it was night and day for me, it didn't work slowly at all. I felt better in a few days,. it's so harmless, everyone should try it first if they can -- rather than last....
get it compounded as skin cream and mix it in with her makeup. I'm sure a compounding pharmacy would help with the disguise!...
Jill Smith at Penn state who's my doc also says that there are in her opinion long term beneficial effects/ improvements to be had as my (or ones) immune system stabalized with the LDN it would work...
Whoa! What was the med? super hearty congrats!...
I skipped the candida issue by switching to LDN skin cream. that's an option as well you might look into. It's been like magic for me....
I'm only on LDN for the past year and a half. One thing I'd have done differently was to have started low and worked up on the dose. LOL....
do you have an appendix? Sometimes the pain starts out high right and then moves lower more specific to the location of the appendix...take it easy til your doc appt!...
((hugs)) maybe you can get into pain management docs? that's their job and you need your pain managed!!...
Yeah LOL I have to watch what I eat because of strictures - not crohn's per se anymore. My problem is food gets stuck because some adhesions are still "kinking my hose". I shy a bit away from gloopy...
pentasa nailed me at about 2 months. I'd certainly say it'd be possible, either your body reacting to the sulfa or the asprin. For me it was the asprin part of the compound. For most it's the sulfa...
I'm also gluten free -- I really think just after a few days that really being militant with the anti-carrageenan diet is helping. I'm sure others like Nanners can eat it no problem, but for me it...
There's really no way scientific way that LDN at 4.5 milligrams would ever impact your cycle. It'll impact your sleep though. If I were you, I'd defintely second what spooky said. starting at 4.5mg...
I wonder how much of the success of SCD is due to elimination of carageenan. Certainly some of it. It's a hard one to diagnose, i found this by chance. i did a little more reading it also increases...