I exactly have this same problem - rectal issues but nothing shows up on scope and biopsies are relatively normal, perhaps mild inflammation. This is going on despite max dosing of Stelara. I would...
for those using tacrolimus suppositories for proctitis - how long did it take to work? does it take longer than steroid suppository?...
Is anyone else experiencing a back order of Uceris foam? I have been waiting for over a week for my pharmacy to get it but they keep saying it’s on back order. This is at osco pharmacy. is anyone...
Hi I wanted to vent a bit about symptoms I am having while on Entyvio to see if anyone can relate. I have Crohn's and have been on Entyvio for roughly 2 years or so. It worked for the Crohn's but I...
With all the news out there regarding hydroxychloroquine (Plaquenil) + azithromycin possibly helping with coronavirus in small trial, I was wondering if anyone is already on hydroxychloroquine for...
I am on Entyvio and am getting ravaged by sore throats. I am getting them every 2 weeks or so, sometimes associated with cold symptoms and sometimes not. Really annoying as I have had several in a...
i did put off the infusion and felt well for 1 week prior to getting the next infusion. I have also gotten gastroenteritis while on Entyvio which was also very severe....
people on entyvio - can you describe your experience of having a cold or flu while on Entyvio? This is supposed to be the only associated side effect (upper respiratory infections). I had a cold last...
hmm...
Had anyone achieved deep remission, i.e. completely normal colonoscopy with normal biopsies. I just had a cscope last week and this was my result. For those of you who have had it, what did you do...
for the most part no though L-glutamine does help me with IBS type symptoms...
Were you taking methotrexate subq (seems likely given the dose your were on). If you were taking methotrexate orally, this probably wasn't helping much with regard to controlling inflammation. Oral...
simple answer - if it didn't make anything worse, keep eating it. Don't treat SCD like it's a religion. It's just a starting point. I have been on it for about 8 years now and over time have figured...
Hi I was wondering what people's experience has been regarding cardio exercise and Crohn's symptms? I am steadily increasing my endurance and now run about 4 miles every other day or so. I am in...
ileal disease is a recognized risk factor for having a more severe course...
i just submitted a stool sample to get microbiome analysis from ubiome.com. was just wondering if anyone else was interested. Could yield some interesting info....
A Humira pen can be left out of the refrigerator for up to 2 weeks. A pharm rep told me this a few months ago. If you don't believe me, call the company and ask. This is a fact!...
c diff doesn't cause skin lesions unless you are talking about decubitus ulcers from fecal incontinence from the c diff. In that case, I don't think it's the c diff but probably several strains of...
It can be due to steroids which are known to cause fatty liver. Fatty liver can progress to cirrhosis in a small percentage of people. The treatment is low carbohydrate diet which coincidentally may...
i agree, go for entyvio pentasa will be a waste of time...
i don't think that happens commonly with those medications...
you should probably get an MRCP to look at your bile ducts to make sure you don't have the beginning stages of primary sclerosing cholangitis (more common in ulcerative colitis but also associated...
man that website has been up for 6+ years and no new news about that has come out. I wouldn't get your hopes up....
whoa you have paws?...
Are you saying something isn't a cure if there is a small minority who don't get cured from a drug? I don't think any cure has ever existed that works for 100% of people. For the greater than 90% of...
I read the study and it does boast pretty impressive remission rates, but this was according to the Crohn's Disease Activity Index (which is largely symptom based) which has poor correlation with...
actually you're wrong, it is a cure. you take the medication for a fixed duration (anywhere from 12 to 24 weeks depending on the genotype) and you are CURED >90% of the time. I.E. you are hepatitis c...
The notion that pharmaceutical companies aren't interested in cures is ludicrous. First of all, you may not be aware but hepatitis C is being cured as we speak by new, name-brand medications such has...
FRAUD!...
I think this is a whole lot of nonsense. I'm Indian so I was eating lots of turmeric in my food pretty much from infancy and I still was diagnosed with Crohn's....
all right guys - let's end this. who's up for traveling with me to the remote corners of the amazon to recruit some indigenous stool donors (after carefully screening for HIV, hepatitis, etc) with...
have another crazy idea here, I recall using mouthwash pretty regularly, starting when I was very young. Anybody else do this and subsequently develop Crohn's? Wondering if the regular alcohol...
I did it and it probably was the biggest mistake I've ever made. I was doing fine, was 100% on the SCD diet. Then I got greedy and did hookworm therapy to try to broaden my diet. I didn't even get a...
I'm flaring up randomly right now too. i work in a hospital and have noticied way more ibd flare patients in the last month than usual...
I would not recommend Northwestern for IBD. At Rush: Dr. Mutlu, Dr. Keshavarzian, Dr. Swanson At U of C: Dr. Rubin...
wouldn't go to northwestern - their IBD program is notoriously the worst in Chicago. U of C or Rush is a better bet....
this has happened before but only when i was on some sort of a biologic medication. when i was trying diet or other weaker meds, when a flare came that meant bad news and it was hard to control...
as i've mentioned before, i developed full body muscle fasciculations from remicade and then now again with humira. unfortunately it's the only thing keeping me going at this point!...
too late woof woof woofwoof woof woofwoof woof woofwoof woof woofwoof woof woof...
I find myself envious of my dog's solid stools. Since he offers an endless supply of #2, was thinking about administering a dog fecal transplant. Yeah I said it - any thoughts?...
don't waste your time - tried boswellia for over a year and doesn't do anything...
I wanted to revive this old thread - i stopped remicade a while back and I slowly forgot about the muscle twitching though I think it was still going on at a low level. Then my Crohn's got out of...
I think bloating can many times be linked to specific foods that you are eating. This took me a long time to figure out. I used to have bloating some mornings but not others and I couldn't figure out...
there are certain GI fellowships that are better in IBD than others. if she did her fellowship 20 yrs ago odds are she didn't learn her IBD knowledge from fellowship at all (since the only meds out...
Yes I'm familiar with pml from JC virus but of course you have personal experience with it so you know more about it than me. Scd may work for you but I am very disappointed in it. I've been I on it...
it's mainly about quality of life, not just quantity...
i am now considering starting imuran. i had my tpmt enzyme activity checked and it came back at 17.8 which is relatively high. I've read some literature that suggests that the drug may not be as...
i've been on it for a few years and to be honest i don't know if it does much at all. i've flared several times while on it...
yup my WBC, CRP, ESR and even prometheus 7 tests were normal but I still had Crohn's on biopsy...
i used this recently and I just remember it being a rough experience but now worse than other preps like golytely or the old one fleet's. i was having multiple bowel movements relatively quickly. it...