I have been on Remicade for over a yr now and I still get headaches. They arent as bad as in th e beginning, but still no fun....
Unfortunately with both my pregnancies it has been difficult. The Remicade definitely helped in some ways with my second pregnancy, but it also had some really bad things come along with it :( By the...
lovemyboys09-My first baby i wasnt on any drugs and got really sick. I only gained 11 lbs, but she came out 7 13 luckily. With my second baby I got pregnant right when I started Remicade. As soon as...
Hey O2 I have found with my crohns I am pretty limited, but I have learned to be creative. My biggest food issues are gluten, sugar, salt, dairy, and processed foods. Gluten-I use rice cakes to make...
If I find out that I am pregnant I will post. I just hate the waiting game to find out. With my last pregnancy i tested when I was 3 days late and it came back negative. Waited anther few days and it...
In Flanders fields the poppies blow Between the crosses, row on row, That mark our place; and in the sky The larks, still bravely singing, fly Scarce heard amid the guns below. We are the Dead. Short...
I have been on remicade since august 2009. Its started out great and worked well. It then began to wear off sooner and sooner after each infusion to the point where now I am taking it every 6 weeks....
Im sorry to hear she is having such troubles. I have a 7 month old little girl and this brought a few tears to my eyes. :( i couldnt imagine having to deal with that. A little one shouldnt have to...
You are super funny. I dont know how you come up with those. I can never think outside the box lol. Those made me laugh though :) Thanks...
Thanks nanners and sniper. Im not as funny as you sniper so i wouldnt know where to start :)...
That post made me smile everytime I read it. Made me feel better to have a laugh about our condition. I'm still learning how to navigate this website so I apologize early if it is super easy time...
Lol and I thought I was the only one who felt better as soon as the appointment was made. I was told it was all in my head :) Funny thing its the same when I really have to go to the bathroom and I...
Sorry to hear your pain Blacky :( I also live in canada and understand totally. All the docs ever tell me to do when my hemoglobin is low is to take iron. I find the best from that works quickly is...
My personal experience is it was my last option. :( I am still refusing surgery as long as I can. I think people avoid mostly because of its reputation to be hard on the body. The "scary" side...
Hoping you the best with remicade. It worked wonders in the beginning for me but tapered off and then all of a sudden it started to do its job again. Kinda of confused, but I will figure it out :)...
I have been on remicade for a yr now. After the 4th or 5th dose it started losing it effectiveness. I would say it would work for 3 weeks out of the 8. In the beginning of this yr my doctor got it...
Mazelle343 I am 24 with 2 little girls. I had my first daughter when I was 21. I was told I couldnt have kids lol. Obviously they were wrong. :) I unfortunately got sicker with both my pregnancies....
mlb1229. I know how you feel. Not knowing which way to go. I havent been on entocort but have been on Prednisone before. Personally Pred is a horrible drug that just masks the problem. I couldnt...
NCOT I have found my doctors get concerned with my weight. I am 6 ft1 and am currently 137 lbs. Not sure what that is in kgs, In the past 3 weeks i have lost 8 lbs :( I also cant fit into any of my...
Thanks becoming undone. I have had many a discussion with my doctor about drgus. I have been on every drug they can give you and he wants to do surgery next :( He said maybe to LDN. Since I am in...
Hello everyone. Just wanted to introduce myself. It has been a very long time since I have come on here. I have been super busy with my 2 little girls. My oldest is 2 1/2 and my youngest is 7 months....
Thanks patientspider. A nice hot bath sounds good. And a movie is in order tonight :). We did go out to the lake this evening for a little bit. The water was like bath water. Perfect.my daughter had...
Hey, I recently stopped Humira. It was causing me severe head aches and fatigue that i couldn't handle. I had a colonscopy just before I quit using it and it showed some changes, but not enough for...
After years of asking my doctor to do a celiac test via endoscopy I finally just got tested last Friday. I had done the blood work for it but it came back negative. I was told by a doctor that it...
I have gone through 7 doctors already here in Canada and none of them will prescribe it to me. They seem scared to? Im at the last stage. Remicade and if that doesnt work surgery. :( I have a friend...
I feel for ya. I range between 135 and 150. In january all my clothes were falling off of me and now they are getting tight again. I had just gotten rid of all my skinny clothes when i got sick...
I dont find this laxative to have the same effect as the lemon phosphorous stuff for the prep of colonscopies. Any info would be great....
So I leave for the hour drive to Prince George Regional Hospital soon. Not looking forward to the procedures but its what has to be done. Kind of worried about the after effects. Just had a...
Ya Vancouver BC. thanks tummytroubles...
Hey, I have been on Humira for about 2 months now and have noticed headaches and blury vision. Havent talked to the doctor about it yet. I don't think I will be on it for much longer. It seems to be...
Hey I will be moving to Vancouver soon and would like to know if anyone has a great doctor down there? G.I....
Thanks for all of your knowledge. Oh and Nanners I meant to type 10 yrs lol not 10 months. Thats the estimated time that my doctor gave me. The experience that he has had with his patients. Hopefully...
Blossom .1st thing, my doctor said that it was 3 months to see if it would work. I still have 2 shots left so a months worth. Since being on humira I have been feeling worse and gaining weight none...
Soooo. . . . my new doctor has requested another colonoscopy and upper endoscopy :( next Friday the 29th. I just had one done in October and it didnt go so well. I ended up in the hospital for 3 days...
If I would have known that I was going to have out breaks from my herpes on Humira I wouldnt have even started it. :( I see my doc tomorrow and Im going to tell him that I dont want to be on this...
Thanks :)...
Hey everyone. I just started Humira on April 3rd. My doctors opinion was that I would do well on it. So far all it has done is made my tummy worse and the fissure that I had near my tail bone was...
Hey Jordon59. What caused your bone problems? I was on prednisone for 2 yrs and it caused me to have oste openia. Bad thing on my part is that I havent been taking the didrocal that they prescribed...
Hi everyone. I am actually just starting humira for the first time today. Why does it have to be refridgerated? Is there anything else I should know about the drug as well?...
Hey all. Well this is very discouraging to me to hear. Really scares me. I am curently waiting to get the money for my prescript ion for Humira. My G.I. didnt tell me anything to to do with the drug....
My family doctor has told me that my G.I. has decided to put me on humira instead of remicade. Is there much difference?...
UNBEARABLE...
This is exactly how I feel to. Down to the last tee....
hey. I will be starting remicade soon does anyone know if methotrexate can be used at the sametime?...
Even as I start to write this post I have partially lost my train of thought of what I wanted to right. I do want to thank you all for posting replies. It's nice to know I am not the only one...
I'm glad I'm not the only one. Lol. Sometimes I put stuff in the wrong places. I have been known to put the dishes in the fridge....
Wow. That one person saying it's like having to where glasses for driving that we should have to wear diapers is just ^&*^R$R&**^**(( to many bad words to say. Ignorant people. :(...
Soooo. . . even though people say they are in remission do they still have diarhea or do they actually have a good solid poop. /community/emoticons/blush.gif ...
Hello all. In October I started Methotrexate. Previously I had joint pains in my knees but never thought anything of it. I stopped taking it in the middle of January because of lack of effectiveness....
I find that when I am flaring I feel stupid. I have to write everything down. People have to tell me things over and over again. I have to be reminded to do things. It gets to the point sometimes...