It`s interesting that even in "remission", we need more days off. Remain guilt free is a hard call....
Hey Paul, thanks for sharing. I lost count over the days I went to work in "suboptimal" condition too, but you can`t avoid missing days when you`re inside a hospital or recovering from surgery. :-)...
I know that every case is different, but I would like to know... I've been lucky in the last two years (although I broke my hand in a fall and missed 8 weeks), with no absense due to Crohns, before...
Well... if you are in anti-TNF biologics, there is a solid theory (yet to be tested) that you are in LESS risk than the rest. Anti-TNF lessen your imune response to bacteria and fungus, not virus....
I have had the exact same simptoms you described as partial blockages. And guess what, the image exams didn't show any stricture... (TCs, MRIs, SBT, etc). Four years feeling the same simptoms. Then...
Hi, I'm writing to just let you know that I have had what you call powdery stool for more than a decade. And yes, the GIs usually don't pay attention to it. It is not related directly with any...
Hey NCOT, I just checked and happened to read about our 2nd surgery. Now you are an experienced surgery survivor. Another medal in this hard road! You are a great writer (I already said that a book...
Hey Usher! You are absolutely right about those who do NOT have a serious narrowing in the guts. Keep on. But, if it's the first time you're reading "that fiber results in obstruction", also keep on...
About the off-topic part... It probably won't help your spirits, but (as you possibly know) the autism spectrum is quite large. I have a dear friend who is in this spectrum and is impressively smart...
Hummm... that was my loading dose in my first time with humira. But it sounds plausible to me. Maybe I will sugest that to my doc in the next appointment....
It doesn`t sound like a flare. But do you know that you have more neurotransmissors i your gut than in your brains? So stress could explain that symptoms. Most people here would give a kidney to have...
Well, there is already a chance that you have adhesions due to inflamation. Surgery, even a gallblader removal cause adhesions. Tou have to weight the risk of adhesion conplications vs the risk of...
What a creepy history! I hope it ends well know that there isn't any sticture anymore. Expect some weeks of noisy D (it strats in 2-3 days) and be patient for it takes some months(3-6) to be back to...
Well... There is only one path to uncover the outcome of that apple....
Cool! Pls, keep us informed!...
My two cents are... When it comes to crohns, surprisingly people around here use to be waaaayyyyy more informed than the average doctor. O.o Just the way the things are. So... Get a second opinion....
Wohoo! Welcome Elizabeth!...
Thank you Habs! Today I took tea instead of coffee and it was better. The doc said it may take up to 8 weeks (!!) to get stable. Until there, Questran, tea and potty! But it's worth it. My appetite...
Thanks folks. Actually, I have some Questran but I'm afraid to take it so soon after surgery. Maybe a call to the doc may fix it... My mornings are very exciting, anything from 2 to 5 times until...
I had a surgery to overcome a stricture from my 2nd surgery (narrow staple!) and it seems to be going well. It was not 20 days ago. The thing bothering me is that this explosive D is hindering weight...
I'm just wondering how are you doing and if you did gain weight or still have questions. It was a bright post. A shame that only our caring Gumby answered. Take care!...
To loose stools you would lo need to eat fat. Olive oil is a good go. Mineral oil serves too. There are some stool softners that are not absorbed, using osmosis process (muvinlax in my country). Good...
Coin flip? I would suggest collecting your post for the last years, organizing it, and publishing a book with your history, from despair to hope, and crohn, ibd and stoma tips. I could order this...
When you are a famous writer it won't happen again, I'm sure!...
Hi Curv, Some days it seems that these symptoms will never go, isn`t it? On the other side, you are close to have an oficial diagnosis, and thats great news, that so you have a GOOD hope to be...
If you start a blog, I'm going to follow your posts! Good luck!...
Hey NCOT, I know that's a sort of old thread, but I didn't know about your surgery (ok, some time away)! I'm happy for you (although you maybe not always happy for yourself, you did brought...
South America is too far... Thanks!...
Hi, I'm just giving some news! The resection site of my second surgery was narrow (small round staple), and got narrower... I had a hint, but no confirmation in the exams (emr, sbft). After another...
Wow... So many adventures. With this pain, I (still) cannot relate. But since I'm coming back from another surgery, you example of piece of cake was very colorful!...
Wow... So many issues. First, I do feel for you. It seems that you are going to face surgery indeed. You should consider taking suplements with high protein (and calories) too, like boost, ensure and...
Yes, It sounds perfectly common and compatible with CD simptoms. So it's good news to be diagnosed. Hope you start your treatment soon....
Usually, pred is the fastest working drug in inflammatory diseases. So it shouldn't take long. GPs and GIs are often not good with pain killers... If you had joint pain too, a neuro or a reumy could...
Chicken broth is almost medicine. Very easy on tummy. Bananas, tapioca (manioc powder), almond or rice milk. Apple sauce. Rice. Fish. I like salmon a lot... And usually avoid red meat and beams. Good...
He actually used staples. The surgery was on Wednesday. I was released today, but I keep worrying... I have some pain in the abdomen, that seems to be gas. Temp: 99.8F or 37,7C Low appetite, but...
Dear crohnie fellows, I've just gone thru my 4th surgery. Maybe that's makes me a veteran, who knows. So far it's going ok. I'm passing gas on the 3rd day. But there's still pain all around. I took...
I take it with some juice at breakfast. In some emergency situations I have taken it at night too... but in a regular basis - it's at morning for sure (to me)....
I just came back from my forum vacations and thats what I get... I can't think of a rolecoaster more scary than that, maybe because you not obliged to them. I think about you, and the no guts part,...
@Pmedic It's good to "hear" that. Pred is so weird... it's like a cursed miracle. Or a cane with a adverse lottery. It's not for weak hearts. Ignorance is bliss here. Right now, I'm off pred and...
Ouch! Reading this I consider myself privileged. I have good insurance with copay (10%), and a not so good with no copay, so I have to keep balanced. My copay approved humira fast, buy 10% here can...
Just my two cents... This suicidal guy, IMO, didn't had "only" crohn issues. We don't know his family history (divorces, affairs, children wars, etc) or depression history - a huge issue for many,...
Hey Glundh, thanks for the information! In a side note advise, to receive more responses it's a good idea to start your own thread. Sometimes we can, not in purpose, kidnap other person thread. It's...
" could this be from the aspirin so quickly?" Unfortunatly, tha answer is yes, it could. We don't know if it is, but it could. Aspirin is as risky as most anti-inflamatory drugs, and usually is not...
Fissures can hurt a lot. Here (Brazil), most toilets have a little shower just besides our "sitting" place". It cleans all out and I just have to dry the area. In portuguese is "ducha higiênica"...
The bowells are not critic organs... but they make you miserable :). You can die of a perforation (infection/sepsis) or a hemorragy (bleed to death). But I'm not very creative. But I think most...
Hello, How about some patience :). I just tappered to 15mg and started sleeping well again. Or stop the benadril then start over after a week... Then you can avoid slleping pills. Luck, Daniel...
Wow. I just got back from a trip and thought you were saying goobye to the forum when I read the topic. I'm really relieved that you are going to be around bothering us with your "pain in the neck,...
Hey BU, frustration and lack of energy are tough enemies indeed. But it's good to hear from you. Hang in there!! I have the hope that, if we manage to get going more 3-4 years, there are some good...
Could it possibly be the healing effect in the mucosa increasing the absorbtion efficiency off our bowels? Make some sense for me....