I had one done in January 2016. I also forgot to mention that I have awful fatigue. Wondering if it is a flare or the Imuran!...
I have Crohns colitis and take 150 Mg's. of Imuran daily. My last colonoscopy showed some narrowing and scarring, otherwise doc said things looked pretty good. I have been on Imuran for 8 months....
Has anyone here had low positive ANA and Rheumatoid Factor? I have both and my GP thinks it's normal. Does anyone have an opinion on this subject?...
Shirley~We have never chatted here, but when I read your post, I felt like I had to just say that you must be one incredibly strong woman! You are a hero in my eyes. To endure what you are going...
I agree with the others in that you do need to call your doctor. I was in the same "crappy" place this week. I had gone for 5 days with no BM, and I suffer from constipation, so I started to take...
I just had to chime in on this post. I, too, had a pity party for myself the other day. I think we all get to that point at one time or another. I took yet another hit to the old ego 2 days ago. I...
I have fibro and sleep apnea. I have been using a cpap machine for 7 years. I have to say that I had a hard time finding a face mask that I could tolerate all night. It took 6 months or maybe a...
Just a quick question~has anyone here noticed water retention while on Asacol? I have noticed that lately my left ankle is swollen and I can put a "dent" in it when I press on it. Any info or replies...
Hope the LDN helps. Let us know how things are going. I'm always interested in others' ways of treating this disease. Thanks!...
Everyone is so different when it comes to meds! I am currently taking 4 Asacol three times daily. I have been on this stuff for about 5 years, although the 12 per day is an increased dose due to a...
Hi Grace~I'm so sorry for your pain! I was wondering if anyone (docs) have ever offered the injections into the hips for pain relief. I have suffered so much with hip pain, and I finally broke down...
Sorry for your troubles with your disease! Please, as the others have mentioned, don't let it go untreated. I thought I was fine, and went off my meds, and am now having to consider going on Imuran,...
Thursday has always been a "no cooking" day at my house. We either use up the leftovers, or hubby takes me out. I'm the Princess, and I know it!!...
Sheila~So sorry about your knee. Will be praying that you will take this in stride, and that everything goes smoothly, and you will heal at lightning speed. You weren't being stupid! You were just...
I had mono before. 5 years after I had mono, I started having extreme problems with fatigue, and joint pain, along with extremely swolen glands, and the EBV was found in the bloodwork. They never did...
Love and hugs to you. Heal quickly, feel better soon!...
I sat out on the deck with the cat this morning listening to the storm roll in from the lakeshore. I LOVE that! I always feel so energized when I hear thunder in the distance! Got things done outside...
So sorry you're hurting so badly! It seems to me that when I hurt all over, I have really overdone things. When I over-do, I really pay for it, and I have to really be good to myself, as the others...
EML~The ab pro is not your friend in the PM before bed :nono: It's so stinking hot here too (Michigan). Hubby and I went to the beach at Lake Michigan today, and the mosquitoes there were horrible. I...
Good Morning! Well, I'm taking Prednisone for my Crohn's as of yesterday. 30 mg. per day for 10 days, 20 mg. per day for 10 days, 10 mg. for 10 days, then off (hopefully, as I have trouble weaning...
Jeannie~I am in Michigan, also. It has been brutal as far as the heat and humidity! I have learned to have a water bottle with me whenever I am outside this summer. It has also been the summer for...
Hey Melzy! Welcome, fellow Fibro-ite. The people here are awesome (myself included) :~D I hope you can be helped (if you need it) by the wealth of information and support....
Shirley~I'll bet you're glad that is over! Wow, what a strong person you are! You know, it's the quiet ones you have to keep your eye on. Hope you feel better soon. (((Hugs)))...
No iron skillets here, just an encouraging word. You WILL get through this. Be gentle with yourself, and ask for help if you need it. Your pain is no match for your spirit! (((Hugs)))...
Reading the replies to this thread are so encouraging. I could use a little of that. I have had so much pain for SO long, and I was finally diagnosed last year with fibro. I am finally coming to the...
I, also, use a cpap and have for about 6 years now. I cannot sleep without it. It did take some time to used to it, and the masks were a challenge, but I finally found one that I can tolerate. It...
Positive attitude, and gratitude for what you CAN do! I'm just having a hard time finding balance. On the days that I feel "normal" I tend to over-do, and pay for it in the long run. I'm 54, and...
I haven't taken it, but I was reading the fibromyalgia board last night, and read that one of the moderators for that board was using Puritan from Puritan.com. Hope this helps! I know I'm going to...
Seriously, Bag Balm. I got it in the pharmacy area at the store. It comes in a square tin. It helps me a lot when I need to use it....
OK, so I'm really, really desperate for some relief to this fatigue! I read through the Fibro 101 and saw that malic acid and magnesium is suggested. Have many of you all here used this? What kind of...
Oh my gosh! If I wore flip flops for more than 2 minutes, I would be bed-ridden for weeks! I have a pair of Chaco's sandals that I bought at a running shoe store, and they are fabulous, although not...
Those are SO funny! The sad thing is, I was sprayinging some dusting spray on a cloth today, and I sprayed it right into my face instead of the cloth. I can relate to so many of those!...
I, also, have used "controlled substance" pain meds. I rationed out 30 Vicodin over a 90 day period. Then the doctor switched me to Tramadol as it is not as strong, and it still helped keep the pain...
Desiree~Your day yesterday was horrific!! Thank goodness it's over! The one thought I had when I read your post is that you are incredibly strong and resourceful. You did what you had to do, and you...
I was on ad's for years. I weaned off, but had brain zaps like crazy for about a month until my body adjusted....
So sorry you have to endure this. You have each other, and that's a LOT! God bless you both, and prayers coming your way....
Hoping your pain eases. Things WILL be better! ((((((Hugs)))))))) to you!!...
Have fun! I think Wisconsin is so beautiful! I have a ton of family there, too!...
Hi Crazykitty~Your post is so touching, I just had to reply and say that the eyes are the windows to the soul, and that my heart goes out to you. Hugs, D....
Sassy~I loved your poem. You have quite a talent there! I, too, can identify with what you're saying. I'm a perfectionist in many things, including cleaning. I have had to learn to be more...
Sweating and fatigue are certainly issues I deal with. The sweating was made MUCH worse when my Doc put me on Savella for the fibro. Some meds can really show their side effects, so maybe looking...
So sorry you had to hear that from someone you actually trust enough to be honest with. I had a similar situation with my best friend and work partner. When I told her of my diagnosis of fibro, she...
Oh Sheeny~Sounds like you're have a pretty rough go of it to say the least! I wish I had some idea of what you could do for yourself. I'm just writing to give this thread a bump and to say that there...
Wow! I was just using google to see what others had to say about Flexitol heel balm before I visited the Crohn's board. I had my heel crack open with the most painful crack a few weeks ago. I have...
Maybe I'll be the first person to actually tell what a day in my life is with these fun health conditions I have. The psoriasis I have is in my scalp, ears, and elbows. I have had this ever since I...
There seem to be so many people who are reading the threads on this board! Who are you? Do you have psoriasis, or psoriatic arthritis? What do you do to help yourself? Any helpful tips you would like...
Suz~Thanks for the input! I do have psoriasis, PA, Crohn's and Fibro. Lucky us, hey?! My psoriasis is all over my scalp, and on my elbows. I have had it all my life. Getting the diagnosis of PA has...
Clean carpets, powerwash back of house, have a margurita in my hammock out back. :)...
Hi Silly~I was put on Savella in January, also. I worked up to 50mg AM and 50 mg PM, too. I couldn't take the heat, either! I was changing clothes 2-3 times per day, and there wasn't enough anti...
Update: I was diagnosed with Psoriatic Arthritis today. Doc put me back on reduced dosage of Savella, I was on 50 mgs. per day, now am at 12.5 for now. Atavan for pain, I got a cortisone shot into my...