I haven't seen anything specific to c-sections/epidurals and LDN on-line, but someone on the LDN forum was going into surgery recently and asked about a timeline for stopping and Skip from Skip's...
I've been on Remicade about 8 years and the risk of TB freaks me the heck out. If you are at all worried, I'd say it's better to get checked out earlier rather than later. That said, the Mayo Clinic...
Hi OctGirl , I've been thinking a lot about the LDN recently and how much of an effect it's had, and I'm honestly not sure. I wasn't flaring when I started taking it and didn't notice a ton of...
I am so, so sorry you are going through this - and am sending lots of prayers and good wishes your way! You may have already thought a lot about this, but maybe checking with your docs to see about...
Hi Hope, It sounds like the first trimester hormones and (maybe) the progesterone supplements are causing the flare up. I’m glad you’ll be seeing your GI doc on Monday though and can see what s/he...
I'm not sure if you've had a chance to talk to your doctor about LDN + pregnancy yet, but just wanted to post something I read on-line: Can LDN be taken during pregnancy? How about while breast...
#TeamSCD!! /community/emoticons/smile.gif and always - #TeamRemissionForAll!!!...
I looked on-line and it seems liver function does fall under CMP, but that might not be the only/best test out there. I feel a little better...but have an appointment with my PCP on Monday and a call...
Wow. Thanks forum once again! I've been getting Remicade for 8+ years now and no one has ever mentioned checking my liver enzymes while on it. I've only had CMP, CBC, CRP and ESR checked. Would the...
Just wanted to say that your current plan sounds great. It can be frustrating to have to re-work your initial health goals, but at the same time, think of how far you've already come!...
I agree with everyone above. Definitely have your vitamin levels checked (I can't see how your GI doctor could possibly be against this!! I agree with Babeinthe Woods that it might be time to look...
"I was relieved that what I was feeling had a name and medicine I could take." I felt exactly the same way. I'd had symptoms for about a year before I was diagnosed with CD. Lost a ton of weight,...
Oh - also....you don't necessarily have to pay up front to use the RemiStart program - you just need to submit the EOBs once they arrive and then wait for payment from RemiStart. Most infusion places...
I use the RemiStart Program as well. I got a debit card the first year and could just pay directly with that - this year they are sending me checks instead. It is a little bit of work, but it's SO...
Thanks everyone so much for your advice and information! I'm going to keep working on me for now and make sure I'm doing all I can to get my body as baby-ready as possible :) My ob-gyn did recommend...
My main question for those with CD while pregnant is how healthy were you when you got pregnant? Total remission? Or just feeling better and having less symptoms? Did you talk to your GI doctor prior...
I didn't have to provide financial documents until my second year of the program. At that point, they prorate what you are eligible for based on what you earn. You just have to send in a copy of the...
Sorry if you covered this already and I'm missing it here...but what time of day do you take your LDN? And what is your RX for? I started at 4.5 mg and it was way too much for me to handle, so my...
I've used Remistart as well - it's a great program! it doesn't always cover all of your infusion costs, but every little bit helps. Your doctor will need to sign a form for them and fill out some...
I think a lot of docs are scared of lawsuits too. They can't say for sure what diet works best for everyone, so they don't even suggest it. Even my GI doc, who is part of the SCD study at Rush (and...
So glad you accepted the new job offer!! GOOD LUCK!!!...
chitownsick - Welcome to HW! Sorry that you are not feeling well and are looking for surgeons. :( I see Dr Ece Mutlu at Rush University and she is hands down the best of any GI doctor I've had (and...
I think you are 100% right on the die off from all the meds - I also took 1 diflucan at the start of SCD and that messed with me for the first week or so. It wasn't until after I went back and read...
Miracles - are you on 4.5 mg of LDN as well? I'm worried about your symptoms...not being able to catch your breath does not sound good! Have you talked to your doctor at all about maybe a lower...
Just wanted to add my support as well! Go easy on yourself - it's not going to be a simple process at first, but the more you keep doing it the better you will feel and the more second nature this...
I just started LDN (4.5mg) along with Remicade. I read on-line that you could take it in the morning too (to help with sleeplessness), but the last two days I've taken it in the AM I've gotten a...
Thank you so much everyone for your kind words and support!! It's especially nice to know that others have been through this before and have come out great on the other side. (((hugs))) back to...
Hello All, I've been wanting to post here for awhile since this site has been such a source of support and comfort for me, but it's been hard to share and to say some of these things out loud (or...
Sorry to jump in your thread - but that is a total bummer!! I was going to place an order with them on Monday!! :( I saw on the site that the starter had to be refridgerated and would be shipped in...
Spooky - Where do you buy your Yogourmet starter? I've just been using the Dannon plain, but wanted to try something new! I saw it on Lucy's Kitchen Shop, but it didn't look like you could buy it...
Dave - that is so cool - and very inspiring!! So glad that everything is going well so far and I hope you have an amazing time! (And maybe the chef is willing to give you the recipes so the rest of...
I really like New Chapter's Wholemega Fish Oils. I only take them with food - and then have no fishy burps! - but even if I forget and take them a little late the fishy taste is very, very, very...
It's so interesting to see what schedule everyone has for these! I'm OK with doing it every 2 years or so...I like to know what's going on in there too! My GI doc said it was fine if I pushed my next...
Thanks so much for all the info! That really helps to have a better idea of each....
Another question after my appt the other day....how often do most of you get colonoscopies? My last one was normal - one small polyp - some tiny patches of inactive Crohn's - some slight narrowing in...
At my last GI appointment, my CRP was still elevated (though all other levels were normal) and my GI doctor said that I might need to switch medications (I have been on Remicade for about 9 years...
Sending lots of good thoughts and healing prayers your way. {{HUGS}}...
artist guy - That is something that's always in the back of my mind! Luckily, my boss understands, or at least is understanding, so I feel like things are more secure with him in my corner. Everyone...
ugh. Feeling like this today! Or for the last month or so... My family mostly "gets" it. Luckily my husband does 100% and is always very helpful and supportive, but work is just the worst! I have so...
The support is amazing. And I love that I can pop in anytime that I want or need to. All of the information is so helpful too - it makes me feel more educated about the disease and more confident...
Thanks for posting this topic and thanks all for sharing. This is an issue that I have struggled with since my diagnosis at age 11. At that point I'd already reached my full height - 5'8" (I come...
Welcome to the site! Stress is a hard one to deal with....I find exercise and "me" time help a lot. I also see a cognitive-behavioral therapist once a week and find that very helpful in questioning...
Oh wow – a CRP of 4! That is amazing! Mine was getting up to 77...so they did have cause for concern. Though I'm sure with normal numbers like that it is really hard to get your doctor's attention...
I had this same debate recently with myself/my GI doc for about a month. I felt good overall. A little bit of pain from time to time after eating and some nausea, but no other real symptoms. However,...
Very interesting - thanks for posting! I'm going to ask my GI doc about MR enterography. My last SBFT showed narrowing, but they can't say for sure if it's scar tissue, or active CD. My GI doc and...
I use the bigger needles too - 25 G. Anything smaller/shorter than that doesn't get into my muscle (and I'm small with no muscles)....
I do a B12 shot at home once a month. A nurse came to my home and showed me and my husband how to do them ourselves so I don't have to go to the doctor once a month for one shot. My GI writes the RX,...
Mazelle - I am right there with you!! I really hate this test! And now I have to deal with the fun of getting the goo out /community/emoticons/tongue.gif I kept pushing back on getting this test...
Just wanted to say a BIG THANK YOU to everyone for the tips!! I had my SBFT today and it went really smoothly! The nurse didn't put out a straw, so I asked for one, pushed the straw as far back as...
What type of info are you looking for? I've used RemiStart to help cover the cost of infusions for about 2 years. It's a great program and is totally free. You just have to fill out and submit some...