Nanners Since all this happened nothing has been the same around here in this forum or with me. I will be one of the ones leaving although I did just add to a post for Dragonfly because I really...
I was just reviewed again and I didn't even have to go into the SS office. Sometimes they do want you to see some of their doctors. Please do yourself a favor and talk to all the doctors you normally...
Eveofs I'm so glad you are posting for Sniper's benefit and not letting a few people who keep writing multiple threads and posts to bury the unresolved controversy that has caused so many of us to...
Nanners thank you so much for your dedication and also for writing what I have suspected - that people have been coming on here to agitate and disrupt this forum. I don't know if it was someone I...
This forum is a dot com NOT a dot org which makes it a FOR PROFIT enterprise and as such Peter, his wife, and whoever else is on the real life board of this HW company stands to make a handsome...
Thank you Big Betty, unfortunately I come from a miserable family that have mistreated me basically from the time I was born. Which also brings me to the expression that we cannot choose our...
I went to the ER about 5 years ago with intense pain (which had been going on for days) in my LRQ. I told the ER doc that it felt like my right ovary had just exploded. She sent me up to get a non...
This is the first time I have checked the forum this weekend and I am in deep shock! If it wasn't for Nanners and Ivy giving such great solid informed advice over the last few years that I have read...
I take my Pentasa on the 12's (midnight and noon) and on the 6's (am and pm) I sometimes miss a dose because I am sleeping through it but I always manage to get at least 3 grams a day. As far as the...
I just had my first bone scan this month and it showed that I was one step away from osteoporosis. Since I have only been taking my 1200 calcium and 1000 vitamin D3 daily for the last 2 years or so...
Hi gilsonal I have very bad Crohn's Arthritis and also Migraines as well. It doesn't seem to matter whether or not I am having GI symptoms. I also have painful swollen sinuses and dry eye as well as...
OK so let's suppose that my on and off cigarette smoking has helped me get Crohn's (I really don't think so btw) but had I gotten UC instead everyone would be saying that it was odd because all the...
Excellent post!! Thank You sooo much for this! I will think more on the subject and see if there is anything I can add, but you guys have way more experience than I do on all this. NY VEGGIE...
pb4 - just for the record, although I was playing in and occasionally eating dirt, this dirt was in the middle of NYC and no where near animals that may have defecated near by.. it wasn't in the...
Are you taking the Entocort in the morning? Just wondering as most of it does not go systemic and really shouldn't be affecting your sleep. I'm so sorry you aren't feeling well Gumby. I was on both...
The only way for me to get a decent amount of B12 is with an injection from my Dr. Sublingual didn't do a thing for my anemia. I was wondering how many of you are injecting yourself and if you live...
I never had GERD or any other stomach issues. I could eat anything but I was a lacto vegetarian since I was 14.. I was diagnosed when I was 55 years old. I never had diarrhea or constipation until my...
No meat fish or poultry, eat lots of turmeric, extra virgin olive oil, calcium, D3, probiotic yogurt everyday, lots of tofu, pasta, cheese, lots of B vitamins, gluten doesn't bother me at all so...
so not true.. even with taking large amounts of D3 everyday for years my D levels continue to be borderline low I don't believe this study. Something must have been flawed with it. I have read too...
I used to eat dirt when I was a little kid, and ants, when I was digging with my little pail and shovel.. I thought the ants were chocolate sprinkles. LOL. So I had plenty of bacteria and all sorts...
Sorry for getting to this post late. My computer is in an awful state. Not sure if you have met the surgeon yet. I also know that things work very different in Canada. I have been very lucky to have...
Whenever I need to have an antibiotic prescribed I ask for Cipro. I know I had to take that several times for my GI stuff and it is a broad spectrum antibiotic which works pretty well in all parts of...
I'm 57 and I have never used artificial sweetners AND I MEAN NEVER! I have read every label on everything I've eaten... This was long before I was diagnosed I've never even used sugarless gum AND I...
Geessss I'm very sorry you have been deleted and "told off" for expressing your opinions on here. I read something of yours and then the next day it was gone and I got very mad. I do not want you to...
I've thought about leaving this group several times myself because although, I know that this group is here to help and support sometimes (more lately) I've gotten so mad at what some of the members...
What ever works for you. I was put back on Entocort when I decided to buy it from Canada so I could stop the prednisone. Also, all my doctors were very concerned about me staying on it. But as you...
Hello again YP9 My Crohn's was mostly in my Terminal Ileum and adjoining tissues. I recently had the bad strictured and scarred/inflamed parts taken out but before that I had to avoid anything that...
You may just have fluid in your middle ear. I had that for an entire year (heartbeat was driving me crazy) and then it went away. The ENT wanted to cut my eardrum but I didn't like that idea. Have...
I had the worst headache of my life while I was in the hospital for something else. When I finally had the chance to see a neurologist, she sent me for a MRI and then a MRA and it turned out that I...
YP9 - Only some people are allergic to soy. Thankfully I am not one of them and neither are you it would seem I am starting to eat overcooked vegetables and some fruit but I am still mostly on a low...
I was initially put on Pentasa and Entocort when I was first diagnosed which helped me but ever so slowly. About a month later I had to be put on prednisone 40mg with a 10 mg taper so I was on it...
I agree with Nanners, I have done countless hours of research on line and read numerous medical papers and most conclude from their research that biologics heal too quickly and make strictures worse....
The standard test for TB now is the Quantaferon Gold blood test. It is much more accurate than the PPD and is used extensively in other parts of the world. I can't imagine why they keep using the PPD...
I know that you probably don't have a "Trader Joe's" in the UK but they sell frozen mashed potatoes in the shape of these little ovals and you just grab a handful and throw them in the microwave for...
BRAVO!! I'm so sorry you had to deal with these idiots without much help from the school hopefully they can find a new situation for you with nicer people...
My PPD came back negative while I was still a patient in the hospital so they started me on Entocort. After I got home my arm got pretty itchy and just a little pink. My GI thought it should be...
My doctors and I talk with each other. It's not so much that I "believe" in them, but they listen to my concerns and are all very smart. I suggest things sometimes and they explain their reasoning to...
I've wondered where the numbers have to be where a dr finally says "OK you have to have an infusion" Also I'm amazed that one infusion could last so long. I know we have iron stores but I didn't know...
They make these vests and/or jackets for photographers (dare I say hunter vests?) with tons of different pockets.. it's a look..lol Also the military look is everywhere.. jackets with tons of...
Everyday I have cream of wheat cereal (farina) with honey and a little milk for breakfast. My other safe foods are tofu (I scramble it with lots of turmeric and add some sea salt and black pepper....
Firstly, you don't have to have an infection or an abscess to have a fever with inflammatory diseases. Our immune systems can over work at any time and give us fevers. No one knows why exactly so it...
As many of you mentioned I went years with doctors telling me to take more xanax or advil and that all my pain was from fibromyalgia or kidney stones that no one could find with a non contrast cat...
My GI told me that if I ever have a fever that goes above 101 to get myself to the ER. The fact that yours is 101 and you have been taking tylenol means you need to call your GI or regular doctor...
Once you have had a surgery, and the surgeon has sent whatever they took out of you and also biopsies from other areas to the pathologist, there should NEVER be a time where another GI isn't certain...
Almost exactly a year ago I was rushed to the hospital ER because I thought I was having an heart attack. They had me in the ER for about 17 hours. The blood tests showed that there was some heart...
kazbern - what if you went down to 2 gms of Pentasa a day? Do you think it might be worth giving that a shot to see if the ringing stops. I have it too on and off. Mine was much worse when my middle...
I had this happen to me last week (and I take tons of B vits daily) and it cleared up as mysteriously as it happened. Dragonfly just remember that zinc it competes with iron in our bodies so if you...
Nanners - I'm so very happy to hear that your first day back went by pretty well. One more day and then it's the weekend yayyy!!...
I was initially told in the ER that cat scans can only detect thickening and that it is necessary to have a colonoscopy/endoscopy and also a small bowel series to check the extent of damage inside...
I don't have anything good to say about he big shot Mount Sinai doc I went to for my second opinion. I found him quite obnoxious. He did spend a fair amount of time with me but he said some things...