I've been on it for almost two years and had a good remission on it - able to hold down a full time job and have a life. Will be coming off it shortly to go back on mercaptopure as unseen side...
YAY looks promising :)...
sweet potatoes and yams are two differnt veg surely? I can't eat yams without pain but sweet potatoes (kumara in NZ) are well tolerated and full of good stuff :)...
no side ffects at all - wonder drug for me :)...
I am keeping my crohns in remission following a FODMAP exclusion diet supplemented when necessary with 6mg budesonide for stress induced flares (I live on an earthquake faultline that is very active...
Dfdave thanks for all your positive help and advice over the years - found you to be extremely positive, generous, open minded and respectful. I am a little amazed at moderators from other groups...
glad you are feeling a bit better. I didn't tolerate azathioprine but 6 mp worked well for me. They are pretty much the same drug but the way we tolerate/sythesise them is different. I also find...
dropping wheat made a huge difference to the IBS side of my crohns and when I removed FODMAP foods it got even better. from bloating and multiple bowel movements to pretty much normal but it took...
good luck nanners and I think expert advice from a specialist attorney is certainly going to be worth its weight in gold esp after 22 years with them :) very glad you are at peace with this huge...
Perhaps the 6mp hasn't got the crohns under control and you need to stay on the entocort longer? I don't sleep well for a variety of reasons and being on entocort has not made it any better or worse....
Thanks Guys - the hospital at QT comes under the Southland District Health Board and is known as 'the Lakes'. Sits on the Frankton arm of the lake by the airport. Might be hard to find online as it...
Happy New Year Everyone /community/emoticons/tongue.gif My break from the earthquakes didn't quite go as planned as I ended up having an unplanned stay in Queenstown Hospital with a fairly painful...
YAY FODMAPS I am so very pleased it is helping those annoying side issues and yes if only if would do the fatigue as well we would all be celebrating big time haha Still maybe eventually reduced bms...
Ivy makes good sense even when she is half asleep ;P and like Ivy I am quite sure wheat sensitivity is an increasing issue for many. I follow a diet that avoids FODMAPS which includes avoiding wheat....
Hi Mike ditto what Roni says :) I am GF and use cornflour (cornstarch) a lot as a thickener in sauces and gravy with no ill effects. I also eat plain corn chips and nachos if they are GF but stay...
Bless you Ivy - going friday for 4 nights and taking our daughter and son in law with us as they lost their house this year so even before this last round we felt they deserved a break (other that...
highly recommend it Gail, I just blitz fresh or frozen strawbs with a little sugar syup and barcardi in a food blender then serve in a martini glass - ahhhhh ;P...
congrats Daniel - helps me too long may your remission last :)...
I am taking Mum home tomorrow now and then we have decided to head down to Queenstown for a few days to get away YAY how was you menu on Christmas day? I thought about you as I sipped my strawberry...
Thank you so much Gail and Ivy for your kind concern and good wishes. I do hope you both had a relaxing christmas day! We were very lucky as we only lost the power for half a day on friday so no food...
Thanks guys it has been a terrible afternoon but we got the power back a wee while ago which is a relief. I had just driven for three hours to bring my elderly mum up to us for christmas when the...
I tried buckwheat twice - once in pancakes at a cafe and once at home and both times I can honestly say it was all I could do not to gag. I just didn't like the taste but maybe it is like quinoa and...
heavens 32 pill is crazy - I drink a normal size glass of some very nice tropical tasting drink once the night before then another in the morning. Go the loo a dozen or so times and that is it - easy...
I tried spelt but it was right up there with wheat for me - total no go :( My christmas treat will be homemade strawb daiquiri made with bacardi, fresh strawbs and a drop of sugar syrup blitzed in...
Brilliant find Ivy - thanks for sharing :) I will certainly be trying her easy Lemon Meringue Pies as well as the carrot cake mmmmmmmmmm...
good advice from conmire and I would add take your own drugs with you for if you get sicker and make sure you have health travel insurance in case you get really ill. on a brighter note everyone I...
YES very ... pain during a full blockage was worse than passing a kidney stone whilst in labour with my second child and trust me that was no picnic ;P many people with crohns will never have a...
good luck with that - very suprised only 6mg entocort esp when you have been on pred as most specilaists would be on 9mg for at least the first 3 months - might be worth checking ? I am back up on...
My specialist is very supportive and has me on Vit D supplements plus regular Vit B12 injections. He also supports a good probiotic and a FODMAP diet which we both believe helps me enormously. Going...
I really do feel for you - such a frustrating thing for a teenager at an age they don't want to be different from their peers. Hope you get some good help and support from this group - they are a...
white sugar but finer ground (not icing sugar though) - you buy it in the supermarket here but you can use plain sugar and blitz it a bit in a food processor :)...
really pleased to hear the remi is working for you after such a rought year DOUBLE YAY :)...
I am supposed to be going back on 6 mp in February after a break of three years and if I remember correctly I did get some side effects from it the first time round but they settled down after about...
wow I can't beleive how much you have to pay out of your own pocket. I think the only thing I ever had to pay out for any of my surgery was a paltry sum to rent a TV - we are SO lucky down under in...
50g best quality GF dark chocolate 100g butter 200g caster sugar 2 eggs lightly whisked 1/2 teaspoon pure vanilla extract 75g ground almonds 1/2 teaspoon GF free baking powder pinch salt 110g chopped...
If I break the diet I feel really tired and grumpy and the bowels go crazy again then it takes me about a week to come right once I restart. Unfortunately I have a bout of SIBO at the moment so back...
sounds delicious well apart from the milk for you. must admit I often go on their website - great for all sorts of crafty stuff and recipes so have to admit somethings Australian are very good indeed...
actually it was really funny as I ended up in the kitchen TWICE: once looking for a loo and the second time avoiding the lift (still nervous about being stuck in a lift post eartquakes even when I am...
come one it is probably the BEST light bulb joke EVER! My dietician seems to think small amounts of forbidden foods can be tolerated if you are in a remission phase but I am well aware that if I push...
double :-( do you think that fact you have to go out of town for work next week is part of it? Last time I had to travel on business I had a flare the week before and I am sure it was partially due...
low blow re the cricket Ivy but then I guess you are still licking your aussie sporting wounds after we won the rugby world cup LOL and please don't mention the hiding your netballers always give us...
I am just doing the usual english style christmas with hot ham, turkey, roast kumara, spuds, parsnip, brocolli, carrots and peas, then pavlova for me and traditional Xmas pud and trifle for the rest....
I did a drop from 80 to 20 then off completely in a similar way to the one your dr is suggesting last time I was on pred and it was OK. I am lucky now as I get entocort instead of pred and it is much...
absolutely no idea but sending you a big hug {{{{gail}}}} :)...
3mg is not enough to bring remission. Usually 9 like then taper like gumby said but the lower dose may be to offset still being on pred. I would have thought you would have been better off pred and...
YAY for clean sweet smelling feet :) and good luck with the GP visit. My wee android tablet is a godsend - they are under NZ$200 now so in Oz I guess that would be $1 (ha ha antipodean joke about how...
my kids gave me a pink nintendo ds lite and I do the 'brain training' to keep my grey cells working (not sure I am a good recommendation for it though LOL). I have a nice light 7" android tablet too...
I am absolutely disgusted if what I have just read is true. I hope whoever took away their moderator status is reading these comments for those of us who have been around a while. I am indebted to...
good luck with your recovery :) I found arnica cream then bio oil (post scabbing) smoothed and faded my surgical scars. still use bio oil daily and swear by it esp as I get older, dryer skin!...