Thanks. My remicade has been increased, so hopefully that helps. I had it about 10 days ago & thinking I notice a difference, will see!...
I haven't been on here in awhile. I have had CD since 2003, been on remicade since 2011. I am feeling "okay" but not as good as I did a couple years ago. In the last year I have developed joint pain...
Hi all, I haven't been on in awhile - I have been mostly in remission with remicade (getting another colonoscopy in February to verify that)! I had remicade on Thursday, and beginning Saturday night...
I've been on remicade for a couple of years - and it has been miraculous - it's like I never had crohns! I just had an infusion a week ago - the last infusion I started feeling kind of "icky" during...
cheers to that Kazbern!...
Just a word of caution about the melatonin - it stimulates the t cells in the immune system sO can actually make CD worse... Google melatonin and auto immune diseases - of course, I am sure it is...
Hi all, In the last 6 weeks I have been getting a strange rash on my neck (itchy, dry red patches) whenever I go out in the sun with sunscreen on (by the evening the rash appears and then takes days...
Hi everyone, I have to have a hysterectomy in October :( I am on remicade for crohns and it is working really well - but I don't know if I should be on it before / during surgery. I asked my gyno and...
I was just going to post about this!! Since starting remi I have gained about 25lbs in a year! I have always been overweight, but really think it is the remi and not just because I am feeling better...
I have PCOS and Crohns. I also am never underweight - quite the opposite due to the PCOS! The cause of PCOS is insulin resistance - it is important to eat a low glycemic index diet - the challenging...
Thanks pb4 - I will ask my GP next time I am there....
Thanks everyone - I got my infusion today and feel fine. The nurse hadn't heard of it - but I will mention it next time I see my GP - unfortunately (and fortunately) I don't see my GI until the end...
those are some good ideas - I will ask my doctor - do you think it is still safe to go ahead with my remicade on Friday?...
I have been on remicade over a year now -and it has worked well! Over the last couple of weeks I have been getting some slight tingling in my hands and feet. It is not too bothersome - off and on,...
I can't drink at all when I am flaring - but even when I am not (like right now) I realized I can't have more than one drink at a time, and seem to do better with wine, etc. I read online that the...
my crohns pain when i have it usually shows up as that burning/tingling feeling - usually for me to the left of my belly button. Last year it signaled a flare (in retrospect) once it started...
what a tough situation you are in! I have no words of wisdom - hang in there, we are all thinking of you big (((((hugs)))))...
I agree with ambling - each to their own, and may we all get well on our own paths. I am really glad some have found diet to make all the difference - and, for those who didn't it does NOT mean we...
Hi Whelp, First of all, I'm sorry that your son (and family) are in this situation. I also have Crohns with no family history. I have always been kind of "anit med" too and if I was feeling "good...
if the crohns wasn't enough (and the other things that have happened) it really stinks to feel anxiety on top of everything! (((hugs))) - that is really hard! I agree, talking to someone may help....
oh Lovely, That sounds so terribly frustrating to say the least! Even harder when it is coming from a parent. I have a family member who thinks I just need to naturally balance my degestive system -...
Can't stress enough make sure you have health insurance and that you meet the criteria for "stability" before you go and a policy that covers pre-existing conditions. Also, in my case last time I...
I didn't get hives, but I did get a very hot inflamed rash on both my arms from imuran and 6mp - my GI made me stop taking both - my CRP shot through the roof a couple days after taking both drugs my...
thanks for responding CD - my GI also said bladder issues were not a "common" side effect of remi - but hopefully a gynecologist can do some more investigation. I have frequent bladder leakage now...
Thanks! Fingers crossed ......
I took antibiotics for a UTI about 8 months ago, and I actually felt BETTER on antibiotics... so I am sure it probably depends on the person! I know that docs prefer certain antibiotics over others...
Ambling - "for big problems seek small solutions". I love that, thank you for sharing that. That statement makes me exhale and think about small, kind and compassionate ways to move forward instead...
Has anyone had any bladder issues on remicade? Just curious. My bladder has been fine my whole life - but several months after remi I had my first UTI and then have had leakage problems ever since....
I had a reaction (bad rashes, hot, inflamed) to both imuran and 6mp - that is what led me straight to remicade - and it actually has been a blessing in that regard, remicade has been fantastic....
Thank you, Nanners. And thank you again for all the love and support you have given over the years. I will stay and I hope others will too and move forward. Understandably we all got a little upset...
Sniper, I agree with your sentiment about what has happened to Nanners and Ivy, but I am so sad to hear that we will lose you too - I hope you may reconsider down the road. Your humour has helped...
perhaps Ivy and Nanners should start a Crohns Group somewhere else? Let us know if you do, ladies - many would join you!!...
I am shocked and blown away! Nanners and Ivy have been invaluable to all of us with their compassionate responses and kind words. I am angry and sad to hear that they are no longer moderators after...
I think vaginal....
I have never had a fistula - and pretty sure I don't have one - but about 6 months ago I started having urinary incontinence on a daily basis. I have been pretty sure it is due to a uterine fibroid...
it's totally understandable why you are feeling the way you are. Big (((((((hugs)))))))) we all get it and are here for you. Be gentle with yourself......
yum - let me know what kind of champagne - and enjoy! Remicade has helped me eat a lot more things - but I can still only dabble with fruits and vegis - which is frustrating because I am one of those...
I must admit I haven't taken yeast out yet - I was feeling doubtful about the naturopath tests after doing some research - but after all this info I'm willing to give it a try! I was also sensitive...
wild - just had a nautropath blood test and yeast was off the charts...could be something to that!...
you always hit it right on the head, sniper! Perhaps that is why you are called sniper...? Sorry to hear about your experience - what an inconsiderate, rude, and unprofessional doctor - obviously...
are you in a union, or what kind of work place? Your work contract should outline the number of sick days you are entitled to. You should never have consequences for taking legitimate sick days. A...
you go for it! You deserve that private room as much as a person in a wheelchair deserves an accessible room. That lady treated you terribly and I'm glad you found someone on your side - we are...
you will be okay - I fully believe that! Yes, they have always used my hand to put in the IV = they put on hot packs first and it has never been a problem. I don't know what Lidocain patches are. The...
i was scared for my first one too - but it turned out just fine! Now I actually look forward to going, relaxing, and chatting with others! How it worked for me: - the nurse checks your temp and blood...
if it stays that way or keeps happening, make sure to check with your doc - it is a sign of many different things! Diuretics help with the swelling (you would need a prescription) - but a natural...
Hi Roni, Thanks - that was very helpful. A good reminder of the things I CAN do - soups are a great idea! Will try and make some this week. And pureeing too - will see if that helps. Probably slowing...
I hate crohns tonight. What I hate the most is that I can't "eat healthy" in the way I want to. I have diabetes and heart disease in my family, I am overweight and I have PCOS and a fibroid. My...
oh, Sniper, you crack me up!...
Well, all I can see it through is my own story... In 2003 I had some bleeding, a colonoscopy and my GI said even though I didn't have any other symptoms (the bleeding cleared up quickly) that he was...
has the benadryl and steroid helped?...