My son was on Flagyl for a month and it made him really tired, had no appetite, and was nauseous. It's pretty powerful so I think there is a good chance that it's the med. It took about 3-4 days for...
Does anyone know if one can achieve a therapeutic level for 6mp with time, or is it purely related to dosage? Can 6mp be effective at a "less than therapeutic" level? My son has no appetite and I am...
We went for our follow-up, and because my son cannot gain weight he is giving us the following options in addition to the 6mp and pentasa: 1) Prednisone, 40mgs for 3 weeks and then taper, 2) start...
My son is 15 yo and on 6mp and has not been able to achieve remission. Today his doc said he wanted to put him on Prednisone or Remicade. He said that if he started Remicade he would continue to use...
Many thanks for all the great info/input. Today was a good day, so will continue to plug along and see what the doc says tomorrow....
Thanks for your responses and suggestions. I went ahead and made the appointment and in the meantime he's just on a blandish diet. He seems to be doing well with that today, other than feeling a...
Where to start....... my son is not gaining weight and does not feel well after eating so it seems he might be flaring. I have to call the doc every week to report his weight, and since he lost some...
Wanted to say hi and tell you that you you came to the right forum for information and support......it has helped me immensely....you and your son are definitely not alone in this. My son (15 yo) was...
Wow, it never occurred to me that it could be related to either Flagyl or steroids!!! I'm definietely looking into this...many thanks!...
They just don't make them like they used to either!!!...
Thanks Squattie....what you describe sounds very uncomfortable!!! His toes don't itch or burn, and it's a balmy 75 degrees here, so not temp. related. Maybe it was just a fluke....they seemed better...
I noticed this evening that my son's big toes looked quite red in comparison with the rest of his foot. I felt his feet and they were cold, except for his big toes which were hot! Has anybody had...
Thanks Nanners......he's tolerated the Flagyl so far (just a bit of short lived stomach ache). Tomorrow I will start him on porbiotics. I just got Florastor and will try that. Thanks again....
Thank you both....I don't know what I would do without all of you on this board. My son started the Flagyl today and we'll take it a day a time. My main goal is for him not to lose any more weight...
Wow Tooth, it seems like you've had some difficult times. I hope you are feeling well as we speak! Thanks so much for your response. My son is currently trying to re-introduce foods, but it seems...
Thanks so much for your helpful response Endeavor. It sounds like you are dealing with alot yourself, but the way you are dealing with it and your shared concern are inspirational. I hope you...
After 1 month on 6MP and a liquid diet (Boost) my son has not reached therapeutic levels or gained any weight (lost some actually), though his CRP is a bit lower. I was given the option of increasing...
OMG..... you did make me laugh, but only because I've had a similar experience!!!! To drive all that way and leave so dissatisfied is so unfair. I'm glad you got to see the mountain lion. The fact...
I have a question...my son has been on an all liquid diet taking Boost Plus for 4 weeks now. It appears that his inflammation markers are back to normal so the doc is allowing him some soft foods...
Thank you, thank you for all the info, your advice, and your experiences........
Thanks for the encouragement and valuable suggestions. I wish I could get Elemental 028 or Fresubin in the US as they seem to be somewhat healthier than and perhaps easier to digest than the...
I'm so glad your son's remission is holding well. You have gathered so much information rlsnights, and I appreciate your sharing. I just spoke with the dietitian, but frankly she didn't seem too sure...
Thank you so much for all of your helpful replies. Yes, he is on it exclusively to try to get him into remission and has to drink 5 containers (8oz) a day. He is supposed to do this for 4 weeks!!!!...
My son, age 15, just started a liquid diet using Ensure Plus for a lack of a better PO supplement. He says his stomach feels unwell at times during and after drinking it, while other times it's fine...
Thank you so much for your support and for clearing this up for me. In the past he has typically done ok with cheese, and small amounts of ice cream so I think he can tolerate some dairy. I ordered...
I am in the process of starting my son on the SCD diet but have several questions. I would like to do the intro diet for a few days since he says his stomach always feels "funny" and he is having...
THanks for the info. He did have the TPMT lab done by his previous doctor and is clear to take the 6MP. Unfortunately I don't have a clear idea of where he is in his disease process in order to...
Several times I've told my son that if I could, I would take his CD and all his symptoms so he wouldn't have to deal with it. I can see how deeply you feel, and care about your folks since you said...
Thank you, thank you for your replies. Your support and sharing, and info helps tons....
Wow, thans so much EMom and Stef17. I just posted a question regarding starting the SCD diet or the Ensure, but after what you said I think I will go with the SCD, especially because the Ensure...
So that appointment I was so worried about.......it was a total disaster. I think the doctor took one too many benadryls because his allergies seemed to be bothering him, and his eyes kept closing on...
Sorry to hear about your little girl....I know it's hard to see them feeling so crumby. My son (14yo at the time) had a colonoscopy this past March, and yes, unfortunately he had to go through with...
Thank you all for the great info and support. The video on Remicade does put things in perspective. I will ask for an appt with the dietitian to discuss ensure and Absorb, and I am also interested in...
My son (15 yo diagnosed in March but probably has had it for a couple of years) has an appointment with his GI tomorrow and I am guessing he will recommend another treatment since he has started...
I have also been wondering about iron supplementation since I read that at least in animal studies, iron suppl can increase disease activity and intestinal inflammation. My son has taken iron...
Thank you so much for all the valuable info. I am in a state of total anxiety thinking that I have put my son through something (steroids) that will affect him permanently. When his MD prescribed...
Thank you so much for your replies. It really helps to know that it will not hurt him permanently and that it is not an unreasonable dosage or length of time, and also that it might help for a...
Hello there....I'm so glad to be part of this forum!! My current issue is I'm freaking out about my son being on prednisone. He was diagnosed 5 years ago (10years old at the time) with rheumatoid...