Yes my surgeon told me that, but, I didn't understand the risk. If I still have my rectum (already done the colectomy), couldn't he "measure" the small bowel before? And avoid excising the rectum...
: -) Can't see the hour to be operated; I'm a bit anxious, can the surgery go as wrong as you'll have to have a permanent ostomy?...
mmmh, ok...
it seems to be a question of luck. you have some doubts in choosing the right equipe and the right surgeon, but, if you have only a chance, you're never sure you choose a good professional. I trust...
Also my rectum is a mess, it was always inflamed (12 years of disease) but my doctor assured me, when they believed I had crohn's, that it can be topically cured, so, the same I think can be done if...
I have ulcerative colitis, I'm a 31-year-old guy. And I need surgery for ulcerative colitis. To say the truth, I already had colectomy, but nothing has been created at the time, as they weren't sure...
I assure you that living with a bag is not the end of the world. I'm currently on it, and adapting it. The only issue I found at the moment is being seen, noone saw me and I am reluctant. Perhaps it...
Yes, only on Humira, and it didn't work. But as I said, it's not impossible topical steroids, topical suppositories or biologics, would work now....
Yes I don't know what is meant by "severe rectal disease"; yesterday I found this study that could be interesting, above all when it reports the fate of people with ano-rectal involvment in...
You are right, but if you look for the various studies they made, IRA was a good choice also for Ulcerative Colitis, at least in the opinion of many surgeons. And in UC the rectum is always involved....
Yes, I know it. I never had any problem nor in my small bowel, neither at the anus zone. I could go for IPAA, but I believe I prefer not to take the risk at the begin, and try the IRA; if I make the...
in response to the two friends above, I'm concerned as I had first colectomy and second should be IRA (ileorectal anastomosis) or IPAA (ileo-pouch-anal-anastomosis)....
I'm a bit desperate as I am quite sure is Ulcerative Colitis, as I have just all the symptoms of Ulcerative Colitis, but my surgeon, following all the pathologists diagnosis (4 colonscopies in 13...
Ok, thanks you were very kind and informative! : -) And I think you're absolutely right as I saw the treatment is silver nitrate, and in fact the nurse used it to burn it. I read it can reform, so I...
Granuloma? Is not granuloma a sign of Crohn's? You say you have Ulcerative Colitis. But you refer to the balloon, or the whole red tissue?...
I have some tissue, the same color as the stoma (indeed, I thought it was the stoma) under the stoma; today the nurse said she thinks it's skin, because there where a piece of hair there, which she...
please can you detail? Did you have perianal disease? Fissures, strictures, abscesses? Or just inflamed? The ileum was involved?...
I'm aware they can propose it if rectal high grade dysplasia, rectal cancer, or incurable fissures/strictures. Please can you describe what situation you lived when you decided for a permanent...
I have a question: my surgeon "appended" my rectum above my groin, where there's the surgery cut, and according to him and my gastroenterologist, it will "rest" and definitely "heal" the ulcers,...
You are right, your crohn wake up in an unpredictable flavour, but, this make no particular difference, there are people completely healthy who are diagnosed for colon cancer and have part of their...
why you cant replace it on your right side?...
I want to add that your doctors know the increased risk of cancer in crohn colitis related to colangitis; I think you should be very very happy the exams was negative, as masses in colon are not the...
People with IRA (colectomy and rectum maintained), if all goes well, live a full life, better than with colitis. Me myself have crohns (or ulcerative colitis) and convinced myself to perform...
Hi equestrian mom! Well, my stoma nurse sited the location in about 30 seconds, without asking me, and without making any tries... It's why I'm so upset. I am quite sure she didn't position the stoma...
I have an ileostomy for 20 days, and now I noticed that is probably misplaced. As my abdomen is really short, when I bent down to pick something up from the ground, the skin barrier of the 2-piece...
Dear, I'm sorry for you; everytime I hear a story like yours I feel sad. I hope the best for us... And if it should be an ileostomy, hope to accept it the easiest way... :)...
I'm from Italy; however, I'll check the situation in 2 days when I'll change the skin barrier if there are problems and perhaps will ask to my nurse about. Thanks :)...
Just a question: today I was changing my skin barrier, and noticed that where there's the stoma, the abdomen is much swollen. Is it normal? Perhaps the poo is not exiting as expected? It's not...
Nice to know it......
Colitiscanuck, dear, we are not really in the same situation; you have colitis since 8 years and still have your colon resting, I had total subcolectomy, and just my rectum resting, and waiting for a...
Thanks. I began quite well with my stoma; I read lot of infos in the last year where I began to talk with the surgeon, and already knew that most of the time people well adapt to the new condition...
I'm now an ostomate, and they are saying it's just temporary. I have pancolitis, and still waiting for results. Perhaps it was Crohn's, perhaps Ulcerative Colitis. The surgeon (who I really trust...
I had a total colectomy (maintaining my diseased rectum) 20 days ago, were dismissed 5 days ago, and now I take a temporary ileostomy. I'm adjusting with ileostomy and at the moment, although I don't...
anyone knows something about a new trial using tocilizumab (a drug already used against RA) for crohn? as I didn't responded to adalimumab I was requested to try this as a trial. I have some doubts...
I have to see him on 22 december and next tuesday I'll see a new one! I don't want to anticipate those two appointments going to er...
i had a full, sedated colonscopy two mondays ago. I had severe pain after that and lasted about three days. I decided to go with liquid diet and took ciproxin (adives by doctor), the pain subsided...
in my two they said uc the first and ibd the second....
i will question him next week but couldn't wait... sorry thanks randy...
today I had the results of my NMR for my IBD and monday I'll had my third colonscopy. the NMR said I have inflamation here: - rectum - sigma - descending colon - transverse colon and it seems to be...
thanks, I appreciated your share of experience. It's really important to me to know there are people who used it for years without much problem; thanks again!...
My physician has prescribed me methotrexate. I was assuming imuran plus humira every two weeks now I'm going to assume humira every week, plus methotrexate. What should I expect, I'm really afraid....
it lasts six hours and the professors change each hour. it's a professional course, not academic...
thanks to all...
thanks bane....
yes, kazbern, I still don't know the median age of my collegues but we are all adults for sure; could happen I'm one of the oldest at the age of 30 but that's not a problem. I already thought about...
my sense of guilt is reduced to the idea that I could have been a different person, with a different job, a different life and different people to know and to stay with, if I hadn't crohn's and the...
today my question is: how do you handle your first day when you meet new people? I'm explaining better: on monday I'm beginning a course... A little background on me, I'm having crohn from about 10...
in the meanwhile I'm starting the Humira I'm getting for free, and being afraid for what you wrote. hope I won't develope anything you mentioned. bye...
i feel for you wish you'll find a relief...
it'd definitely help, but I suppose it's way far to be realized. in europe (switzerland, britain, germany) there are "sanatoriums" which perform the same tasks as hospitals treating people...