MRI would be so much easier to tolerate!! I hope that the MRI becomes an option for more of us. It wasn't suggested & I hadn't heard about it before, but will ask before my next scope! But I got...
Thanks for the replies -- it's always good to know I'm not alone. I will get thru this, thanks again for the support I get here and good luck with the scope Dave123. NDBC...
Hi everyone, I have had a RV fistula for the last 3 years. I will get a colonoscopy on Wed 10/17 and I will prep tomorrow and I really dread that prep. Because caustic diarrhea liquid moving thru a...
Hi ScifiGal2K, I think it would be worth it to find out more - if you can find a surgeon with a good track record on it & if he thinks he can succeed in the surgery based on where your fistula is...
Hi Sooper good luck with this. You helped me with your input when i first visited this board, and I'm sorry to hear this trouble. Feel better soon and take it easy. It makes me upset that you have to...
Hello, Just writing to say that I am on meds to get rid of small r/v fistula (was 6 mm - now is 2mm and holding). Mine is also low. I'm not able to do surgery, they told me in advance it would fail -...
Hi - I am just butting in but nice, real nice to think of cookies, especially Christmas cookies - which are coming soon!! On this topic of happy escapes, I planted (with a lot of help) 2 Pink...
Hi Melinds, I know what you mean - I went thru that feeling and still go thru it. You didn't do anything to deserve this, like everyone has written already. For some reason, I don't obsess over...
Hello -- I started tacrolimus 13 months ago. Humira and remicade failed to help my fistula, so doctors put me on tacrolimus / and then added 6 mp after 2 months on tacrolimus. I didn't really see any...
Hi Minnietoty, I don't have any real words of wisdom for you, I sure wish I did. Except for this: YOU ARE NOT ALONE! I just read your post and felt like you were describing my life as it currently...
Hi Cindy, How are you feeling? Are you currently coming out of a flare? Would it be a good job (or better job)? I also have to fly from New England to CA in 3 weeks, so even that has me scared. It's...
Hi Jen, I just wanted to write to you - I too am going thru the fistula problem since Jan 2010. My doctor tried many things, flagyl, humira, remicade. None have worked yet. The surgeon can't do...
Hi, I am so sorry you are feeling this way. Please know that this disease can go into remission! Hold on for that day. It's not a punishment, it is just a disease in the lottery that is life. It must...
I also go thru this with the same feelings you do. Happened this week. One of my "big bosses" gets it, the other does not (or does not care). The rest of them all ignore me, and act like I am...
Dagger, you are so right, I got a special antibiotic, a z-pack. I guess it is stronger. It's not making me as nauseous as the erythro. I feel better today, slowly starting to eat some food and drink....
Dentist does not have any on call or emergency line. No way to get him. I called back my gi emergency line and told them no one got back to me last night then my own gastro Dr called me back. He said...
Today my whole left side of my face is fat and swollen. At the moment, the pounding pain has stopped, but since half my face is swollen, (which it was only slightly swollen yesterday) I guess it is...
Hi Nwalins Cate, I'm sorry you are going thru this too. My doctor never called back (I mean the GI on call doctor). I am so upset, no doctors ever call back. I don't really over-react, but I am...
Hello, I read a thread posted back in September about root canals for us Crohni'es who are immune suppressed. I had a root canal yesterday. The tooth was already infected. The dentist said I did not...
Now I'm finally laughing about it The michael phelps of ziplock crapping!!!! ArtistGuy, thanks for that image!!! (sort of) LOL With a fistula, I would need multiple bags, maybe I could gain the...
Last night, on my way to the drugstore, I "exploded" in my car. No time to get to a bathroom. (on a side note, it's only a 2 week old car - with beige seats, so double boo hoo - I guess that new car...
Hi Nanners and Mtgman! Thanks for the hints. It really helps to know that I am not alone-- so good to hear / read how you guys and girls get thru your bad times. Nanners, I am back on all my meds...
Hi and thanks for the replies. I'm checking in this forum at lunchtime, and was glad to see the feedback.Sniper, I know I'm lucky, I lost my Dad to cancer this spring, and my common-law mother in law...
Hello, I just wondered - I'm having trouble keeping going on... and wondered how do you motivate yourselves when it just seems so hopeless??? I'm writing this as I step out the door headed to work......
Hi Dragonfly and everyone, I just had to pipe in my 2 cents. I have private insurance thru my employer. They cover next to nothing and have large copays even after I have met my deductible. They are...
He He, this is just what I needed to read, and hey Sooper, thanks for the quote. "I'm becoming less defined, as days go by. Fading away, well you might say im losing the focus. Kinda drifting into...
Ivy, thanks for sharing this happy moment with me!! Hurray!!! :turn:...
Finally, I have some good news to share! I went to the GI for my examination and my fistula has shrunk to the size of a pinhole! It was 4 to 6 mm in size before. I knew I had been feeling better and...
I have a fistula (recto-vaginal) and the discharge almost immediately included stool, not just pus / blood. There was blood for one day only, then stool and mucus exclusively. (sorry to be graphic)....
Hello all, I just passed the one year mark for living with a r/v fistula. I have posted a few times and want to say thank you to all the people on this forum for the support. I had posted a while...
Hi, they can check that when you have the colonoscopy (they did for me). Let them know, so you can find out if it's a fistula. They used water to test me for fistula while I was out for the...
Hello, thank you for helping me think this through. I appreciate all of the folks on this site who help. I am still so befuddled with the whole thing (hole thing, unintentional fistula pun - ha!)...
Hello everyone on the boards! I am writing because I just need to pour this disappointment out of me. I have been enduring a fistula (recto - vaginal) since February. It has gotten worse over the...
Hi, I developed tingling / numb pain in both feet 2 days after first humira shot. Wanting to let the Humira work, I kept on with Humira for 5 months, until the doctor switched me for other reasons...
Hi Curt, I was on Remicade 10 years ago (3 doses) and it worked wonders for me then. In April I went on Humira, due to a bad flare & fistulas that didn't respond to flagyl, cipro prednisone and...
Hi Roni - I go for my first remicade treatment this afternoon. Had it 10 years ago, so I hope I don't have a bad reaction to it 2nd time around. A little nervous, but ... like the doctor said, it's...
Thanks all for the support. Roni, Funny you say about prayer lists, I am an multiple prayer lists (thanks to family members), have been on them for months. So that didn't work (yet). Yesterday, I had...
Hello All, I am in very bad space for the past few days and just need a forum to "vent". I can't talk to anyone about this anymore, they don't understand and can't help and I'm tired of brining...
RemiLove31, did you ever try Humira for fistula? I am asking because I am suffering with a r/v fistula since FEb 2010. I've been on Humira since 3/18, and no change. I wondered if you tried that and...
Hi, I started Humira on March 18. I didn't get significantly worse, but still have more bad than good days. I thought that I would see some fast improvement, but it hasn't been the case yet. I've...
I had a good day today, ate very little, and a very little amount of fruit. So, will stay more balanced on eating, (I was looking for a miracle by eating fruit). Stupid, probably. Keep tapering the...
Hi Randy, Mag & FallColors, thank you for your info. I am not too bad with D, just more frequent trips to the bathroom than before in smaller quantity. And yes, had some gas, pass thru the opening at...
Hello, Can anyone shed any light on their experience with diet & fistulas or healing in general. I am a 49 yr old female with a very low recto-vag fistula. Been on cipro & flagyl & pred & lialdo for...
I had my first shots (4 of them) on March 18. Much as you described. I get two more tomorrow (yay). I was under the impression that I would see results quickly. But my doctor told me it could be 3 to...
That is great news that you see some healing after 2 weeks! Hope it works for all of us!...
Hi, I am starting Humira Thursday for fistula (intestinal - vaginal). I have been on cipro & flagyl for 2 months with no improvement in the fistula. It took 2 weeks (and what felt like numerous phone...
Crohn's first started 7 months after quitting smoking cold turkey in 2000. I stayed smoke free for 8 more months (total of 15 months off cigs). At that point, I was so miserable, couldn't eat, sick...
Interesting experience you had with the smoking factor, I found one post on here about others who were diagnosed after quitting smoking. I was really happy to be free of the cigarettes and didn't...
Hello All, I am new to this forum, and have been reading it for a few weeks! Thanks, it has been a great help, and I am posting here for the first time. My first question is if anybody had a flare or...