Thanks! Will definitely check that out!...
Hope it works for you & you get feeling better! It's worth a try! Entocort was the first steroid my daughter ever took. She was started on entocort for that fact, that it had less side effects. No...
My daughter took 150 mg of 6-mp a day for almost 2 yrs & she weighed between 113 -120 lbs, this was before surgery. After surgery (26 months ago) her Dr lowered it to 100 mg a day. She did go off...
My daughter has always taken Florastor but her Dr. said he now wants her to take Align or Curelle. Probiotics confuse me, I don't know what ones are good!...
Makes for a "crappy" start for sure!!! I have even tried not eating anything after a certain time....didn't do any good! Where in the world does it all come from???? I dread when I have somewhere I...
Awwwee, poor girl! Sure hope she gets feeling better! When my daughter feels that way, we bring her down to a liquid diet & slowly add texture. Start with chicken broth, boost or ensure are very...
This is quite an informative post! Very glad I read it! When I was diagnosed with UC, I left the Dr's with no clue what it was & did nothing to figure it out. I did, on my own keep track of what...
I'm so sorry for your son's diagnosis! It's very difficult as a parent! My daughter was diagnosed at 14. It was quite a struggle and unfortunately continues to be. I won't get into all of that but...
I'm not one for "new years resolutions" since when I've made them in the past, I failed miserably. Now I do self checks each & everyday. I seem to do better with that & don't feel as if I'm setting...
Today is the first day back to school for my kids after the Christmas vacation and I had to make sure to set my alarm early enough to allow for my bathroom trips...It's very frustrating!!!! I wish I...
Don't mess around with that, it's better to be safe than sorry for sure. My daughter had an abcess and when they drained it, there was another underneath! Yup, a double anal abcess! One was...
Last week when my daughter was having blood work, the lab tech said she believes there would be a cure in my daughters lifetime. I know it was just an opinion but the thought of that was beyond...
How rude for someone to say to you! I'm sorry someone would be so ignorant! Unfortunately, most people have NO clue! I hear it all the time! Right now my daughter is having problems, she has been in...
Thank you for your responses! The Dr's office called back late this afternoon. He said foamy D is usually caused from malabsorption or infection: bleeding can cause infection but she isn't running a...
She seen her gastro specialist on Thursday. The blood is bright red so we know its coming from down low. He believes its coming from the rectum, maybe a hemi that ruptured? He didn't seem to...
When my daughter was on pentasa, she was taking so many meds....Who knows what was causing what! I clearly remember them coming out looking the same as they went in! She definitely did not like them...
A CURE, A CURE, A CURE!!!! May all your wishes come true for the new year!...
I haven't posted in quite awhile. I do stop by from time to time to see how everyone's doing! My daughter is 26 months out of surgery. She obviously has her days but overall has done quite well since...
Hey everyone, hope you are all well ! A quick question for ya's. For those that are not familiar, my 16 yr old daughter just had a ileocolectomy/resection on 10/17 and had some complications...
(((((((((Nanners))))))))) If I could reach through this thing I would give you the biggest hug ever!!!!!!!! I'm so sorry you have been having problems and I hope you feel better soon! Sending you...
Hello and welcome! Obviously, you are in distress and for that I'm sorry that you are here. You have definitely come to the right place! You have already received some great input and you will...
I have tried to get my daughter involved on here as well as other online groups and she too is reluctant. This has been a huge support for me, basically the one place that I find comfort, support and...
I would definitely keep an eye on her. If she doesn't improve, her D persists or she has other symptoms, then take her to a GI. My daughter went undiagnosed for well over a yr and I'm sure it was...
Sammies, I can't offer advice but wanted you to know that I'm so sad to hear that you are struggling. You have given me support and I want to return the love. I hope you are feeling better soon and...
Glad to hear that you finally have some answers, sorry for the outcome =( Hopefully, you can start the road to better days via meds and or even surgery if that's what it takes. Prednisone is very...
I get little blister like spots all the time but they just look to have a clear fluid and they are painful, not like what you are describing. My daughter and I both have frequent styes. They usually...
Sorry this is going to be a bit graphic. I really need some advice from the only people that can relate. I have been having frequent bathroom trips for months but otherwise doing ok. If I have any...
Sorry that I haven't been on my laptop is broke, my husband left his home today =) Just thought I'd let you all know that Sierra is doing great! Wednesday was her first full day of school. She did...
I'm so happy to hear things went well and you are doing good! Very proud of you and hoping for a long remission for you!...
My daughter took entocort for 5 months or so but it didn't work for her. It was very expensive. I'm not sure if you know that Walgreens does offer a W card which gives a discount. I don't recall the...
You may all think this is disgusting but it works if you are really craving it. Only try this at home.....Chew the popcorn and don't swallow it, spit it in a bag. I know that sounds terrible but it...
You should definitely talk to your Dr. Maybe you should look into a different form of bc. I always had break through bleeding with the pill as well as long periods which is suppose to be the...
This post is quite interesting to say the least and has certainly got me thinking. I never associated smoking with my symptoms. When I was first diagnosed, I had quit smoking for 8 months and started...
Just wanted to tell ya that I'm with ya......I hate crohn's too! I have passed out many times throughout my life so I can relate to how scary it is but Dr's say my body doesn't like pain so it passes...
My daughter has been on 6 mp for over a year for crohn's. Initially she was really ill but I can't blame it on the 6 mp as she was in a horrible flare and taking many other meds. It took a good 3...
Glad you are feeling better or are at least relieved a bit. For some reason, it always makes me feel better to put my feelings in writing as well. I wish you the best!...
Hi all, it's needy lil me again =) I have a few questions that I hope are not foolish...... A quick update on my girl, she seen her specialist Wednesday. He agreed that she should stay out of school...
So glad to hear you are home but definitely worried as you have a long road ahead of you. I hope all goes well. Will continue to pray for you. Sending you lots of love!...
Welcome, you will find the best group of people on here! They have been my saving grace! When I was diagnosed, I didn't pay much attention to it as far as research and such. I believed I had...
Well, I was going to join in on your excellent day with a HOORAY for you.........sorry it isn't lasting =( I hope you have more of them excellent days!...
Oh man, that is not good news at all =( I'm sorry, I was so hoping you would have good news. I'm hoping and praying for better days for you! I always joke with Sierra and tell her to look on the good...
Thanks for your concerns, We had insurance and they cancelled us. I can't go into detail since we are in a legal battle with the insurance company. We have an attorney and he says we have a very...
You all are scaring me again! We do not have any insurance, so we have to pay all out of pocket. We are already in debt beyond belief with medical bills and haven't received the bill from Sierra's...
My thoughts and prayers are with you! I hope you are doing better soon! Much love & laughter to you! <3 Sherry...
Hey guys! Thanks for thinking of us and sorry that I haven't been on. Sierra is doing great! She seen the surgeon today, which went well. He will see her back next week and she can possibly go back...
I have never had a c-section so unfortunately I can't offer advice but will certainly be praying for you! I'm sorry you are in this position. I pray all goes well for you and baby! Much love &...
She hasn't had any bowel movements since the clearing up of the left over blood. So her last bowel movement was on Tuesday. Should I be concerned about that?...
As you all know Sierra just had surgery. When discharged the surgeon's orders were to resume all meds except 6-mp and pentasa until I speak with her specialists. I called their office today, spoke...
I have every intention of writing a letter and making sure that multiple copies are distributed to administration and such. I felt I should give myself a cool down period so that it is tactful, to...
We are all rooting for you! Picture us all standing on the side of the road as you are driving with our pom-poms! (now that's a cheering section that should give you a good chuckle at least, lol =D)...