I'm sorry I missed this post too as I was doing the prep the same time you were! So horrible but, I was able to get it (and keep it) all down. I chose the grape flavored magnesium citrate instead of...
The only thing that I've heard that can cause D that you are taking is the magnesium. ?? For years I lived on taking Immodium every morning just to try to stay half way 'normal'. It never made D...
Hi Lesley, I know we don't know each other but, I am very happy that you and your family are ok. So sorry for the tragedy that you've been thru. Please stay strong (and healthy). Prayers to you and...
I was on a low dose bcp until August when they discovered a blood clot in the main vein to my liver. A week later, I was diagnosed with Crohn's. They decided it was the combo of the crohns and pill...
I am one who really doesn't have many symptoms either. I went in for a routine colonoscopy and endoscopy and found that I have "severe crohns". My dr was shocked as I was. I've only complained about...
My dr just told me that after I go off the coumadin for my blood clot (which is now gone) I will have to take a low dose aspirin. I'm a little concerned too, since they are saying that the Crohn's is...
Yes! I'm really happy that the blood clot was gone and I could go off it! (I was told not to get my hopes up because they can take up to a year to go away) I will be VERY happy to get off the...
My dr just told me to start taking low dose aspirin as well. I'm going off coumadin at the end of Feb. because my blood clot near my liver is gone. I also don't bleed with my Crohn's. I agree, I'd...
My thoughts and prayers are with you! Keep positive thoughts!!!...
Sounds like a great doctor. I will keep this in mind as I live in Ct. (hopefully I won't need him but... just in case!) I've been to the Lahey Clinic with my sister before when she had a heart...
I am also on Warfarin. I was diagnosed with a blood clot near my liver and a week later was diagnosed with Crohn's. I recently had an ultrasound and they saw that the clot is no longer there so, I...
There is a special sunscreen that I use by a company called Coolibar. The lotion is called Solbar Shield. It has Zinc in it so, and protects against UVA and UVB rays. Works well while in the bright...
I suddenly got that rash about 13 years ago on a cruise. I had tons of itchy bumps all over my sunburned area. Every time I go in the hot sun I get these now. They are almost like hundreds of little...
I'm also seeing the little 'beads' of Pentasa in my stool. I don't understand how it can be working if I see these but, things have been pretty good lately. I see my dr on Friday and planned on...
My son is prone to mouth ulcers. (I have Crohn's -hopefully this isn't a sign that he might have it in the future!?) Anyway.. he had to wear braces and we made sure that he always had the special wax...
I don't think that taking Pentasa right now would relieve your immediate symptoms. ?? I'm no expert but, isn't that given as a maintenance drug? How about an Immodium? I'm newly diagnosed and on...
Yes, I've used Alli and did lose weight on it. Probably because I was afraid to eat ANY fat at all due to the fact of the terrible consequences!!! It doesn't have the same side effects as other diet...
I have Anthem Blue Cross Blue Shield and they wouldn't cover it either. I was told it would cost me 600.00 out of pocket. So, the dr didn't want me on 6MP....
How long did it take your Pentasa to 'kick in' ?? I just started taking it today, along with Entocort for now....
I heard that bagels are very high in gas. Maybe this could be why?...
Hi David! I've been on Entocort for the last 6 weeks or so. I thought that maybe it was working for me without any side effects but, within the last week or so, I have had a lot of 'D' that just...
It's amazing how many mistakes our made in ALL types of businesses these days and people just don't seem to care! Customer service is terrible and we pay these people. An apology and some sympathy...
Thanks blueberrydecaf! And I love your name! I decided to wait to take it as soon as I get home from my girls trip to Aruba! I know worrying makes things worse for me as it is. The dr and the biopsy...
Thank you for all of your advice. So nervous to start anything new before I fly as traveling is stressful enough! ;) This won't cause the dreaded 'thinning of the hair' like some of the other meds? I...
Hello. Just got home from the dr and he wants me to start Pentasa. Right now I am on Entocort. I have severe Crohn's. I thought he was going to put me on 6MP but, because he couldn't do the full...
I find I am most comfortable going out with friends and family that know about my Crohn's. It just makes it easier to open up to them and tell them I'm having a bad day and prefer to go home, etc.. I...
I'm so sorry to hear the news of your friend. I have a 17 year old son and a 20 year old son. I can only imagine. - a parents worst nightmare. I will definitely say a prayer. Life is so precious...
I found out this week that I tested positive for a blood disorder called Lupus Anticoagulant Syndrome. The nickname is 'sticky blood'. I read an article which states the Crohn's can cause this blood...
I started Weight Watchers right before I was diagnosed with Crohn's and given Entocort. I'm still losing each week. Portion control, trying to eat fruits and veggies that agree with me, lots of water...
Thanks Blueberry! :) I think I will just eat the things that have always seemed to sit well with me. Not go overboard. I've been doing that for many years because I always thought I had IBS-D. Didn't...
Hello! I've recently been diagnosed with 'severe' Crohn's and I have a question regarding raw fruits, veggies, lettuce, red meat etc.... If the food doesn't 'go thru' me and I feel fine after eating...
Please talk to your dr's about this. I was on the pill and recently they discovered a blood clot near my liver. I was then diagnosed with Crohn's. The dr's have done all kinds of blood work and...
Went to the hematologist yesterday to get some answers to why I might have the PVT. (portal vein thrombo.) At the time they found it, I wasn't diagnosed with Crohn's yet. All the blood tests came...
Thank you for that info Athensgirl2! I am wondering, if it is an obstruction or partial obstruction, would I feel ok today? I'm feeling good and was ready to call my dr to let him know. What do they...
Thank you for that info Nanners. The dr's office got back to me and suggested maybe I go have a CAT scan in case I had an obstruction but, I explained that I've had this pain in the past and it...
Thank you Debbi! I've got a call in to my dr and hopefully he'll prescribe something that will ease up this pain. I'm fortunate that I only deal with this once in a blue moon. I'm sorry for the...
Hello. I've recently been diagnosed with 'severe' Crohn's and really don't have many symptoms at all which surprises my dr. I've always just been 'irregular'. Once in a while I have terrible stomach...
I'm curious, I see that you have been diagnosed with Crohn's as I was recently as well. Is yours considered mild-moderate-severe? Mine is severe. I looked up info on your med Lialda because I hadn't...
Ohhhh... thanks! I'm still new at this although I should have known as I just found out I have a PVT and could have had a PTE!! LOL...
I'm sorry... what is a PTE?...
I recently went the the emergency room with terrible upper stomach pain, right thru to my back. While they did a CAT scan to look at my gall bladder, they came across a blood clot in the portal vein...
I've had very narrow stools as well. Not to be gross but, I describe them as lots of little worm shaped bm's. I was just diagnosed with Crohns and will have my first follow up appointment with the GI...
Hello! I was just diagnosed with Crohns after a colonscopy on Tues. I started Entocort on Wed am. By Friday evening I had terrible diahreah and thought maybe it could have been something I ate for...
I fly once or twice a year and get extremely anxious that I'll have to use the bathroom in a hurry. I take Immodium the night before and in the morning that I fly. I also don't eat anything before...
Just had my first colonoscopy on Tues and it took about 1.5 hours before 'it' actually started. I was still going the next day at 11:30 am before my 12:15 appointment!!!...
Thanks Artkid! I'll check it out! All this is so new to me. I was surprised to get that diagnosis but, relieved after battling with 'D' for so many years. I hope to learn lots on this forum!!!...
Hello! I was just diagnosed with Crohns on Tues after a colonoscopy. The dr put me on Entocort EC on Wed. It's only been a few days but, I suddenly was hit with diahreah! I was feeling very good...