Here's my update. I had a Vitrectomy (surgical procedure where the fluid in your eye is removed and the scar tissue is peeled away from the retina) this past Friday. Surgery went well - I was awake...
So I just came back from seeing a Retinal Surgeon. I have significant inflammation and scar tissue in my right eye that will require surgery. I have two major contributing factors - one being...
I'm already taking 50,000 IU of D2 1x per week. I read so much - I was unable to figure out what the bottom line is when D2 is good and D3 is not. They lump everything together and discuss Vitamin D...
I had blood work done his week and have not had a chance to talk to my doctor. I was able to log on and see the results. My Vitamin D2 Level - 44 My Vitamin D3 Level - <4 I am on a prescription...
I just LOVE her spirit. Wears a bikini AND has a colostomy bag. http://www.people.com/article/bethany-townsend-bikini-colostomy-bag-crohns-disease-inspiring-viral...
I had a resection in May 2005. Last flare in July 2005. Pain free since then. I'm on Humira and doing well. Still have to deal with diarrhea though. That won't go away. I really don't have a lot to...
I got a tattoo when I turned 50. I talked to my GI first and he said make sure I got the tattoo at the end of the two weeks, right before I give myself a shot. I also got the - keep it clean speech....
Syringe - easy to control. No pain....
I do not like the pen- I use the syringe. I like to be able to control how quickly the meds go into me. I roll it between my palms to warm it up. No pain....
Yes - I have mucous too....
I usually have diarrhea - but lately there's a cloudy film that floats on top of the water/diarrhea mixture in the toilet. Lots of gurgling, gas and my stomach is upset as well. I'm in the third day...
I had a double incisional hernia - as a result of the resection I had. The surgeon said he couldn't use mesh to repair the hernia because if I had to have a second resection, they'd have issues...
6MP was my first Crohn's med. I took it for a year and a half. I was nauseous, had blood sugar issues, was exhausted, and my liver enzymes were elevated. On top of that, I couldn't get to a...
I was 43....
SupportiveMom- :) Glad to hear you have a decision and a way forward. My thoughts are w/ you and your family. Keep us tuned in on how she's doing....
Robert - I had the same exact reaction to Remicade that you did - and I was religious about the timing of the infusions. I believe I just developed an allergy to it. I did not get a test either. The...
Minnietoty - I LOVE red meat - I just feel guilty that I eat it so often. I'm fairly lucky that my disease is basically controlled. I have no pain and will eat anything from tenderloin, NY strip to a...
I had to take 875mg Augmention (2x a day) last week for a sinus/upper respiratory infection. I had no issues with it - until 2 days after I stopped taking it. I felt gut pain (low level) for the...
I never lost hair from the 6MP. It really didn't work well for me. In order for me to get to the therapeutic level, I got REALLY sick. It caused my blood sugar to rise significantly - upto 300 every...
The main reason people react to Remicade is that there are mouse antibodies in Remicade. Humira does not have the mouse antibodies. I'd get a second opinion re: your daughter's reaction to Remicade....
I crave red meat. I could eat it at least 4x a week and not bat an eye. Does anyone else crave red meat? I'm guessing I have an unknown nutritional deficiency that the red meat satisfies. I'm already...
The same thing happened to me. My GI switched me to Humira - I'm doing fine - no side effects and it controls my disease. I'm not telling you what to do - but thought I'd pass on my experience....
Ok -- I am 50 years old and have concerns about getting shingles. My father came down w/ shingles 2.5 years ago and has permanent nerve damage to his face. Having seen what shingles can do first...
I take Colestid - it is the pill version that does the same thing. Well worth the try. No side effects either....
I havent flared in seven years. I'm not sure if I'm in the middle of a flare or if this is the flu. It started Friday with lots of trips to the bathroom and a sharp pain the in the lower left. By...
All I am on is Humira. I was taking Colestid - but grew tired of having to time it at the exact time that it doesn't impact my blood pressure and thyroid meds....
I had my first colonoscopy since 2006 and i'd like a little feedback from you guys. A little background: diagnosed with Crohn's in April 05, when I was 42, surgery in May 05, started meds in June 05....
Syringe - No issues here. Rarely stings and I've only had one issue where I had a bruise. I haven't tried the pen and dont think I will....
I hope things go well for you - you're in my thoughts....
I am an east coast born/bred gal. I am traveling for work and will be heading to Colorado Springs on Sunday and I was wondering if I should be concerned about the altitude impact to my Crohn's...
I started out with Questran. I bought single size applesauce 6 packs to put it in. The Questran had an odd flavor that you could taste through the applesauce. I ended up switching to Colestid (pill...
Get someone else to take you....
I wouldn't trust the same surgeon for both procedures. I had my resection done by a Colol-Rectal Surgeon. Would not trust anyone else for that. Perhaps schedule the second surgery w/ a second Doctor,...
I've been on Humira for roughly two years. I decided I wanted the syringe instead of the pen. BEST choice I could have made. Over all, I've had one or two instances where it stung, a bit. Yes, just a...
Yes, I'm taking it. LOVE IT. It controls the diarrhea better than anything. Start off with one pill, see what that does, then bump it up to two - if need be. You need to be careful though - it will...
Did they take your terminal illium? If they did, you will most likely always have D. No one really told me this. I take Colestid to combat the D. Give your gut time to calm down and don't be afraid...
I'm curious about what is next. I expect Humira to stop working sometime along the way. I started off with Surgery, then 6MP, then Remicade and now I'm on Humira. While I'm in remission right now, I...
I've been using the syringe for two years now. Has stung maybe 2 or 3 times. I highly recommend the syringe....
I've never had one and I'd probably be rather closed minded about having one done....
I know this thread is old, but I just found out I have Hashimoto's Disease. One blood test and a sonogram both indicate Hashimoto's. I have another blood test, but my guess is that it will also...
I tried Questran - HATED the taste, even in apple sauce. I switched to Colestid (a pill) and haven't looked back. Give it a try. It works like a charm....
I replaced my old toilet with a Toto Drake CST743S. FABULOUS toilet. Powerful flush - never - and I mean NEVER clogs. It's going to cost you though. Mine cost me $600 installed. You might get it...
I opted NOT to use the Humira Pen. I wanted control over how fast/slow it goes into me. So, I asked specifically for the pre-filled syringe. It stings a bit, but nothing all that bad. I warm it up in...
I had the 'pleasure' of spending 3 hours in the ER for heart palpitations. My blood work was really interesting - for one thing, my TSH came back at 5.260. I'm hypothyroid. So now I have 3 different...
I was shopping in TJ MAXX and had to use the restroom. It was a last minute, rushed activity... so to speak. I go in and there are three teenager girls, looking at themselves in the mirror. I had to...
I have been on Humira for a year. I am in remission and I have no - repeat no day to day issues with Humira. I'm hoping I can stay on this for a while. I feel normal again. I'm even dating. As for...
Has anyone found the "Sit or Squat" application on the iPhone? It shows you where all the bathrooms are. Funny thing is - I know more about bathroom locations than the applications. LOL LOL....
I have the iPhone. I agree. You can do all sorts of 'business' while doing your 'business' :)...
I am female, 47 and I've had Crohn's for quite some time. I was diagnosed in April 05, had surgery in May 05 and September 06 for an incisional hernia and I am now in remission. Through out the last...
I got the shot this past Friday. I had no side effects what so ever. I am also in remission. I had to wait in line at work for an hour to get it - well worth it IMHO....