Sorry to hear you are having trouble with diagnosis- it can be a long, frustrating process. In my experience, the best thing to do is find a good doctor and stick with what they recommend. No one...
I failed Remicade, Cimzia, Humira, and now Entivyo. (sigh) Insurance won't cover Stelara as it is "Experimental and unsubstantiated"....
I agree with gumby, there are blood tests that can measure the status of your immune system that might be a better first step than a capsule endoscopy. Check with your doc....
Billo, Yeah, Total has the fiber to keep things moving, it's one of my go-tos for regularity....
Your surgery is becoming more and more common, which means more hospital and doctors are becoming experts. I don't know of specific Drs, but try to find the biggest hospital in your area, and speak...
I'm right there with you bethanyv. In my opinion the most frustrating part of CD in not the bills, or the doctors, or even the bad cases of D. It's the lack of energy to do the things you used to...
Glad to hear it went well....
Glad your test results were good! The pain in your back may be kidney-related, I know I had decreased renal function with the introduction of new medication. Just something to think about....
Last week a MRI/MRE revealed 10 inches of fibrotic stricture just upstream from my resection. Am am in pain (1-2 out of ten) all the time, every day. It's just enough to be annoying, more like...
Sounds great! Just remember that Rem is a tnf-a antagonist, which may make you more susceptible to diseases and infection. Check the US CDC website to see if there are high concentrations of TB or...
Depression has taken me to some pretty dark places, and having a chronic illness w/ pain does not help. I would talk to your doctor about possibly using a low-dose, short term medication solution...
If the prep is not complete, they may not do the procedure and you'll have to prep again later on :-/ However, if you are "peeing out the butt" clear fluid and have not eaten, then your colon is...
This is is good to know. Thanks, guys....
Just moved to NH, new GI has terrible bedside manner and no eye contact. grrrr. Very few other GIs are taking new patients. A recent MRE revealed ten inches or so of fibrotic stricture just upstream...
I have had a great deal of success with Remmicade. I went through 6mp, and other biotics before I found the one that worked well. I tend to think behind a great medication should be a good GI who can...
thanks, guys this helps a great deal....
Anyone know if there is a connection between Crohn's and Gallstones or Gallbladder disease?...
I eat pepto-bismal like candy:-)...
I also have wide temperature fluctuations at night. Cold to hot, to sweaty, it usually doesn't start until well after midnight when I'm in my deepest(?) sleep....
I had a lathroscopic resection a few years ago, and it went just fine. A few things I found out: 1-Get up and walk around as soon as you can. Most hospitals have "standing walkers" which are kind of...
I'm going to be participating in the Team Challenge Napa to Sonoma half marathon race on July 15th. Wish me luck! -ZZ...
I led an Adventure Sports trip in the Utah desert while taking Cimzia last May. Here are a few tips that I found helped: 1- Take extra TP, as well as cleansing cloths (Tucks, or other feminine wipes)...
I do drink alcohol, but I have come to realize that I can't drink near as much as I used to. One beer a night is enough for me. I find that there is a strong co relation with how much food is in my...
I got to sit in a big chair with a bunch of little old ladies who were getting Remi for their joints. It was great. Of course I don't really have a problem with needles, and nurses tend to love my...
My inflammation has responded quite well to Cimzia and in the last few months things have been going quite well. In their wisdom, my employer has altered our medical coverage to a high deductible....
Flyers2001 is right, contact the drug-rep directly, sometimes they have promotions that they can set you up with on a semi-permanent basis. As for the other symptoms, I'm sorry. Early on in my...
Hope things get better for you....
Welcome!...
my PCP recommends seeing a psychiatrist, to help dial in the combination of medication and therapy to help me cope. Thank you for your comment....
So, I upped my Cymbalta from 60mg to 120mg/day. I also take 1mg Klonopin/day which keeps my panic disorder pretty much under control. I have noticed an odd thing, and I'm a little nervous to tell...
Well, I used to have anxiety attacks, where my heart would race, my blood pressure would pound in my head, and I felt "very aware of the world around me" I felt fear from nowhere, etc...- classic...
Hi, My name is ZiggyZagnut from the Crohn's Disease forums. I've been struggling with panic attacks of late and I thought I might pop over here and check it out....
I'm usually thankful for gas, it means my poop is solid enough to produce gas, not going through me so fast! One thing I have learned when it comes to gas: Never, ever, no matter how "dry" you think...
My GI says I need to steer clear of fish oil because it will give me the runs....
Speedy recovery:-)...
I had ~11 inches of SB and LB/SB valve removed this past September. Ever since then i have had several panic attacks, two of them were REALLY bad. I went to the Neuro center and they did an EEG,...
anxiety/panic disorder....
i'm walking a fair bit (6-8 walks down the halls a day). now i just need my bowels to wake up and pass gas. It's the little things that count now! Farting used to ruin my day, now i crave it!!...
Well, I had surgery here at Mayo Clinic yesterday, and things went well. They removed 8 inches of SB and 3 inches of LB. Now i'm on Oxy-cotton and going for short walks up and down the hall. I have...
So, I finally have a surgery date: August 9th at Mayo with Dr. Chua. They will be taking out at least 9 inches of SB and 3 inches of LB, maybe more if they have to. They are hoping to do laproscopy,...
Awesome!!...
Can you work with headphones? I find some peaceful, instrumental music helps during the day (Yanni, Enya, other "new age" music). I have to be listening for clients, so I usually just use one ear bud...
I'm sure it would work for scopes, just drink a lot of water with it. Also be aware that the cherry flavor (my favorite) causes you to pee out the butt red, not clear, so if you were flushing for...
Darvocet N-100 works for me....
Good news! I have an appt. with the Mayo clinic on the 21st of July. Hopefully they can help, I have too many people telling me too many things, I am going to the best of the best. If you are the...
I have had a few times on this journey that I could not figure out exactly what was going on in my system:gas/bloating/constipation/etc.... I do a "system flush" using magnesium citrate ($1.25 at the...
I would like to point out another symptom that points to something else: A few months ago I had bad pain, bloating, no bm for 5 days, nausea, and I thought it may have been a blockage. I kept taking...
Sounds like you almost passed out. I used to have super low blood pressure, and would pass out a few times a month. It's definitely a weird feeling- no fun at all. Be sure to pull over if you feel it...
Welcome Liz! I have not had experience with Levsin, but I do find that if I lay down on my side I get some relief from my CD. I used to lay on my stomach to help me sleep, but I find it better to be...