Oregon US cost of one Remicade infusion $10,670. At present Blue Shield is allowing about $7000. Why on earth is it so expensive?, I have no idea....
I have been on Remicade for 2 years and 3 months. I got a bad rash on the second infusion and now get a jab of Benadryl prior to the infusions. I have never had hives and I am always worried about...
Glad to hear you are doing better. You're attitude and humour is an inspiration to many of us....
I eat a slightly green banana every morning after my meds. It seems to be the perfect thing before I do my yoga class. I am on Remicade and Sulfasalazine so I suppose they squash whatever immune...
What does any one know about small blisters on the tongue? Just had my Remicade Wednesday..... Small blisters appeared today! Very annoying....
Thanks for the notes of side effects. I am trying to separate them from the effects of Crohn's flares and learn how to manage them better. As with everything I have learned from this disease...
I am in my second year of Remicade treatments. My side effects include very sore joints, ligaments and tendons. Does anyone else have these problems? I take 3 to 4 yoga classes per week in order to...
Remicade users! What are your side-effects?...
My internist has IBD and is always very sympathetic and responsive when I get sick. I hate that he has it but I love that he really understands!...
Every year I get a colonoscopy. With that and my Remicade treatment I blast through my insurance deductible and max copayment by April. The horrible prep is a small price to pay for the peace of mind...
Hi, I am currently on Remicade every 8 weeks, tapering down on azothiaprine that I have been on for several months after a big flare, also on prednisone for Crohn's / Colitis related arthritis. I am...
Hi NCOT, I am sorry to see that you are having a rough time with everything. I wish I had something more uplifting to say than I hope you feel better soon. I know that Crohn's and it's little helpers...
I am taking Azathioprine, 5mg Prednisone and will go for my 11th? (I think) Remicade treatment next week. It is helping to control arthritis brought on by the Crohn's. It seems to be working well...
Go! How wonderful to be 16 and having the chance to go skiing with friends! I envy you! My only advice would be to find out where the loos (toilets) are, eat sensibly, and have fun. Don't forget to...
Alcohol is alcohol, whether it is beer, wine or spirits, there is no difference in the alcohol. You can ingest more alcohol faster when it is in "hard liquor" than if it is in the form of beer. (A...
"Ex Libris", by Ann Fadiman is a book I read every year or so. It's a brilliant book of short essays about Ms. Fadiman's life as a lover of language and reading. It makes me laugh when belly aches...
Malshay, You should be here. This is where you will get a lot of support and information as you experience the ups and downs of Crohn's disease. Good luck at your appointment and you don't need to...
Remicade is easier than it sounds. I have been taking it for 13 months and although I have to have a jab prior to infusion to avoid an itchy allergic reaction the worst thing I can report is really...
So very sorry! Stay strong and you will get through this. Tell your folks as soon as you can, they can be a great source of support....
To Ivy and Nanners, I think so very highly of both of you. Always the voice of reason and kindness when the rest of us go a bit off the rails. Hope this gets resolved to the members satisfaction....
I share your dismay regarding last weeks events. It is inconceivable that they should have been dismissed... I hope you will reconsider your thought of stopping posting as I have always found a lot...
Going for my 7th infusion on 8-18. I have to have Benadryl prior to the infusion. So far no problem and it seems to be working for me. I get tired for a day or so afterword but the benefits, at...
Feel better soon! All our good wishes are speeding your way....
Good luck with your scope tomorrow. I am sure it will go well and be over quickly and your doc will have some of the answers he needs to make you feel better....
Wishing you every bit of good luck on your eye surgery tomorrow. My chocolate Labrador (7years old at the time) had bilateral cataract surgery with doggie style permanent implants. The surgery was...
Thanks for the info everyone. It's always good to know what to expect, especially the time frame these meds need to work....
Some time ago I posted a note about how 50mg of Benedryl prior to my infusion knocked me on my butt! So, I went in yesterday for infusion #6 and told the nurse on duty about the horrible effect the...
After my 4th infusion I got a rash on legs and arms. Before my 5th they gave me 40mg prednisone and Benadryn IV (darn near passed out from the Benadryl) but no post infusion rash. What the next...
Hiya Rodders I have had 4 Remicade infusions and between the 3rd and 4th had terrible vertigo and nausea. Did your youngster experience any vertigo? My reaction to the 4th infusion was a skin rash...
I just started taking liquid vitamins today. I got them from my acupuncturist who is helping me coordinate all the supplements I take. They tasted vile! I am hoping that it will improve the...
Welcome to the gang. Glad you're doing well....
Once a year.... Thank heavens not more often than that!...
Prep is disgusting. For the scope I'm asleep. Sadly enough I'm starting this years prep tomorrow:-( scope on Thursday! Ick!...
Nope. No surgery yet. Trying to avoid it....
Same deal here. Going for my 4th infusuin next Wednesday. I am taking Miralax; one dose every 36 hours or so and am approaching some sort of balance. Sadly I have to prep for a colonoscopy on...
NEw side effect of Remicade. This Saturday past I was in the ER for severe vertigo and nausea. I felt like I was on a boat with things swaying from side to side. The ER doc took care of it with some...
Wow!!! That is a terrible reaction! My pain is a 6/7 od 10 at the worst, yours sounds like an 11+. sorry that you went through that, but glad you're better now. Good idea to change MDs, your doc...
Thanks AG Remicade is doing it's main job for me in making the Crohn's/Colitis behave and hopefully healing the fistulae that developed last year. The muscle/joint pain is a drag but I am glad that I...
Sorry to hear of your troubles. You are absolutely right about the lousy effects that go along with this disease. Everyone has different symptoms or collection of symptoms which make it hard to...
I can completely understand your post. I now have a refillable Rx for Difluocan because of those darned infections. I have no further ideas about caring for yourself than eat yoghurt and take the...
Thanks PV Will do. Next infusion 3/5/11....
Hi PV I am at the tail end (ha ha) hopefully of a year long flare. They do not premedicate me with anything prior to the infusion as I have no alarming symptoms of reaction at the time. Well I don't...
I have had three Remicade treatments and now have a lot of muscle and joint pain. My thigh muscles feel like I have run a mile straight uphill, very sore and weak. Knees, shoulder and hip joints are...
Hips and shoulders 2 months after starting Remicade...
& you don't dare bend over!...
...your bag of meds outweighs your purse....
You will probably have to try the high risk pool offered by most states and even then they may exclude any Crohn's related charges for a specific time (6-12 months)....
No I don't have a prepped bag, but it's a great idea to have one!!...
I have had about 8 colonoscopies since 1994. The first was attempted by a GP, with a tablet for sedation. It failed because I was an uncooperative patient, he said, and would not just deal with the...
I thought it was only me! From diarrhea to constipation in a matter of a few days scared me to death. I thought of obstructions and other nasty things. My Doc told me to start Miralax right away and...