Bless you msLMG, your story sounds very similar to my daughters cronic pain for months no energy etc ..... As Nanners said you are on quite a mild crohns med. Have they discussed a nutriten diet ? Or...
Thanks everyone, back to hospital on Wednesday for first check up after op. Will have a good chat with Gastro team then. Just really anxious that we get on top of it and have a long remission. Good...
That's fantastic news, so pleased finers crossed long may it last xxx...
Hi everyone, I was wondering if anyone out there has been on methotrexate injections long term ? My daughter has been on them to control her joint since September and it seems to have done the trick....
Im looking for Puppet a new member that made a comment on a post Im made, Unfortunately there was no e mail address. If your out there puppet I wondered if you don't mind me asking how you are now...
thankyou everyone (: as to the baby food i think its a great idea if im struggling one day, but at the minute im managing most foods! which im very happy about but very scared to try new food i.e...
Thank Roni, and hope everthing goes well for you xxx...
Thanks everyone, much calmer today had a good chat with her and relayed all your advice so she seems much more positive today. I have even managed to talk her into a drive out and some fresh air :-)...
Phew .............. Thanks Nanners so you dont think she is getting ill again ? JUst feel helpless watching her . Hugs greatly recieved at the moment :-) xxx...
My daughter had a resection operation 9 days ago, She was discharged from hospital this Thursday with all her meds and 40 sips energy drinks. We were giving a diet plan by the dietian to introduce...
/community/emoticons/smile.gif Hi everyone just wanted to share the lovely news, Beth is doing amazingly well drs are really pleased. Had a complete pain free night last night...
Thanks Roni, Didint tell her and managed to pull a dr to one side this morning and your right just a mistake they wouldnt do that procedure after her resection. xxxx...
Thats what I thought Nanners ! maybe the letter has been sent before the news of her sugery has fed back. I hope so as she will freak if I tell her . XXX...
Can anyone shed some light on why my daughter has been given a appointment for a double balloon enteroscopy & wireless capsule ? She had a resection of her small intestine 5 days ago and touch...
Hi, My 16 daughter had her second infusion around 3 weeks ago with no symptoms unfortunatley things have moved on since then and she has just had a resection operation. (nothing to do with infusion)...
Hi Jeanneac & Artist guy, lovley to here from you both sounds like you have both been through some awful times also. It's such a boost to us all the here such positive stories ang long remissions....
Thanks Endeavor08, bless you sounds like you have been through it :-( Cant wait until she can get on here and chat particually to people of a similar age think it will really help. Hope your well at...
Well we have certianly done lots of crying, And as I keep telling her the good friends will not leave her behind and stick with her through the good and bad. And if they dont, well they are not worth...
Thanks Salad shooter, thinks she get sad her friends seem to be moving on growing up and she is kind of in limbo :-( but enough of this doom and gloom. fingers crossed for many healthy years and a...
It makes so much snese Saladshooter, Beth is currently in her last year at school and has so many ambitions but has missed the last 4 months of study. Remarkably though this has made her so much more...
Thanks everyone, No Endeavor08 you were not rambling it's great to get everyones opions it is really helping. Going to try to get her up and walking to the Bathroom today, she is in a bay not to far...
Wow 5 years that's fantastice news xx...
Hi everyone, Just back from the hospital for an hour as Beth is far more settled, We are on a ward of 8 but good news is being moved to a quieter medical ward later, one we have been on many times...
we are in sheffield, uk x...
Thanks Gail, thats really helpful we have not been given much information after months of agony it was a bit of a shock and we didnt get much information. Reading the internet just scares me to death...
Hi Vicky, She had surgery two days ago. She is on the button for morphine and is having buscapan and anti bios through IV. The hospital is hell and she is getting no rest. Were you out within the...
Hi, im a 38 year old mum of a 16 year old daughter that has been suffering from Crohn's Disease for around 2 years but only just diagnosed. She has just had surgery the remove around a foot of...