I would follow your doctor's advice. his preference was for you to start 6-MP so that's what I would go with. There are potential short term side effects that your doctor can watch for when he...
I hope the web address ownership hasn't lapsed. That may be the case though. I don't have Misfit's e-mail address but I know others on the board do. Hopefully they will be able to connect with her...
My son's ped GI runs this large panel of labs every 3 months or more often if there's a problem: CBC w/differential Comprehensive Metabolic Panel which includes sodium, potassium, chloride, Co2...
I would write down all those symptoms on a piece of paper for the doctor. Then ask her if she thinks you might have Lupus in addition to or instead of Crohn's. If your rashes are made worse by the...
How did you hear about the Bee Propolis?...
Sounds like you may have reached the end of that rope, unfortunately. Perhaps someone else will have something to share but that is a very long list of things you've tried. Exclusive enteral...
I realize this is hard to do, but don't borrow trouble that isn't actually here. I am well acquainted with anxiety and know this isn't easy to do but give it a shot. First, find out for sure if you...
Has your doctor suggested surgery - a colectomy?...
If your CD is mainly in your small bowel you could try doing exclusive enteral nutrition (EN) - getting all your nutrition from formula. You can drink it or pump it using an NG tube. OTC versions are...
From all I have read and heard from others who developed drug induced Lupus you should not continue on Remicade. This is also the manufacturer's recommendation. When you say last resort med you don't...
Done....
I agree. You should call your doctor. Flushing and fast heartbeat are potential signs of hypersensitivity to Flagyl. If you develop a rash of any kind, contact your doctor right away. Hope it has...
There are some small studies of people on azathioprine (AZA) following kidney transplant and of children who are receiving chemotherapy for leukemia that have looked at the interaction of folic acid...
Nanners - I'm sorry you felt part of my post went beyond the scope of the question posed or was in some way inappropriate. Margie's post said nothing about the fact that she was posting about her...
There is some evidence that Remicade may be associated with significant weight gain. There is one study from 2007 that found very substantial weight gaiin (60+ pounds) in Remicade patients. There...
It is correct that folic acid interferes with Imuran's suppression of white blood cells (and red blood cells). To what degree it does so does not seem to be really clear. Crohn's patients often have...
You need to talk to your doctor about this. Dosage isn't just based on metabolism but also on weight and sometimes other factors like pre-existing liver disease, etc....
I don't know where you live, but if you live in the US, I want to make sure you are aware of the CCFA summer camp program for children with IBD. You can find out more about it at...
Welcome derby8462, While not common, it is not unheard of for a UC diagnosis to be converted to a Crohn's diagnosis. This is definitely an issue in the pediatric population although still not a...
Yes, the thalidomide is rxd by GI. I didn't realize you haven't tried Cimzia. You should definitely give it a try. The chances are slim but not non-existent if TNF alpha inhibitors have worked for...
Not the best choice but if Tysabri fails you for sure you could look at Thalidomide. VERY strict controls and not a good choice for long term use but Thalidomide is also a TNFalpha inhibitor and I...
You may also want to pick up some adult diapers if you are really nervous about having an accident in front of everyone. Not the best solution but it may help a little. Sorry about your loss. You are...
In general, docs are quick to respond to elevated liver enzymes because you can have extensive liver damage before you get significant lab results. This isn't to say that this is true in your case....
I hope the hospital stay helps a lot. I think it's perfectly sensible for you to feel scared. Don't know about you but it's tough to see myself as a strong, self-reliant, independent and relatively...
CDer's typically have a lot of dental problems. Whether it's due to poor absorption/nutrition, inflammation of the soft tissues of the mouth, prednisone, other med side effects - well it's hard to...
I wouldn't think that low dose aspirin would cause a 1 pt drop in Hgb in 3 weeks - sounds like the GI doesn't think it's the problem. And I'm with the GI - the heart and brain are most important. You...
There was a clinical trial of Leukine here in the US that was finally abandoned before it got to Phase 3 trials I believe. While it is true that some people had improvement in their symptoms, overall...
If you have not yet tried, I would go to your local Social Services/Medicaid or Welfare office and ask about applying for Medicaide or a State run high risk pool. You will not find a private insurer...
I'm sure there are people out there who regret having had a colectomy. But I haven't seen any posts like that here. And I haven't seen any posts like it on Dragonpack, the board for parents of IBD...
So you are taking Iron supplements and it's giving you belly problems right? Plus dairy is a problem for you too. The dairy could be due to lactose intolerance or could be due to sensitivity to milk...
You're welcome. The thing to remember, or so I have been told by more than one doctor, is that at the embryonic stage, our intestines and our skin are created from the same kind of cell. So it makes...
I use a pill box with days of the week and 2x a day spaces. Once a week, on Sundays, I fill the box with the coming week's meds. Then each day I use that day's pills. If I've forgotten to take a dose...
Your GI may have something to say about the wisdom of using Fentanyl patch. Just a heads up in case that is an issue. The Fentanyl can have effects on the gut that the GI may feel will be a problem....
If you are only talking to the surgeon then I would call your regular GI and ask for an appt. to discuss the treatment plan. And you can ALWAYS say NO if their explanation does not satisfy you. And...
Depends on your body probably. My son has an intense sun-sensitivity the 2 days following taking Methotrexate. He will get a bad burn right through SPF 60 sunscreen. I don't have any experience with...
It is possible to get an infection even with good sterile technique either due to getting an infection from somewhere else in your body as mr. d had happen or due to migration of bacteria into the...
It can take 3 months before you are sure whether you are responding to Humira or not. Some people do improve a lot within 2 wks to a month but the most recent clinical trial results suggest most...
You might want to look at some of the links I posted under the thread Long term AZA use - here's a link http://www.healingwell.com/community/default.aspx?f=17&m=2018577 Patricia...
I would start with the first article. It's a PDF of a 2007 article titled " Ear-nose-throat manifestations in Inflammatory Bowel Diseases" from the Annals of Gastrolenterology....
Did you talk it over with the doc and let him know staying on the Entocort would be $$ stressful? While I never like to suggest pred, it is a whole heck of a lot cheaper than Entocort. If the...
Could be the AZA or it could be the CD or both. You might need an increase rather than a decrease if these are symptoms of CD. My son has chronic nasal lesions and sinus infections (actually the...
Why exactly do you have the PICC? Are you getting TPN or antibiotics or what?...
If it's an option find a GI who specializes in treating IBD. Don't fool around with these clowns any longer. If there are problems with that, try calling the closest IBD center and ask them if they...
Didn't I say it was possible to have CD and have normal labs??? I believe I said that it isn't "typical" to have a flare without any abnormal lab values. I would say this is particularly true for...
If she isn't seeing a GI yet then I would suggest she get referred since the differential diagnosis for diarrhea is huge. Adding in joint pain makes me think a rheumatologist may also be needed to...
Bluemoon7 - I think that whatever article you were looking at (you didn't post a link or say the name so I can't comment on that article specifically) does not accurately represent what we know NOW...
Go to ER....
As others have said - give it time. Since she was so sick before the surgery her body doesn't have the resources it needs to get better quickly from the surgery. PLUS she has to heal from the loss of...
I'm not sure it's dosed the same way for RA as it is for CD. If the Rheumy is rxing I would say you should ask him for more complete instructions. It does sound like you should be on an every other...
Can't offer specific advice but you might try your local LaLeche League (if there's one near you) or any other breast feeding support programs in your area. In our area we have both La Leche and an...