Wow, I haven't posted here in like 2 years! When I had that pain, I had a solid mass that I could feel if I pressed down on that area. If you have the same, mine was caused by an abscess near my TI....
Like everyone else said, it takes time. I had laprascopic surgery and it took me 4 weeks to be back at work, although I was feeling normalish after about 2. It varies person to person though, but I...
Same thing happened to me on 6-MP. I actually had to switch to Imuran a few months ago and the bumps appear to be gone. Could be coincidence though....
Best of luck with your new doctor. Not to sound rude, but your old doctor sounds incompetent. Any doctor who tells you to stop taking your meds should not be a doctor.. Even if you are in remission...
Welcome! I had a fistula and abscess last year, and Cipro and Flagyl were the only things that helped my symptoms. I'm not sure if antibiotics actually clear them up, but they were the only thing for...
Yes, I actually learned this a while ago. My cat was sick and I actually thought she may have had IBD. Turned out she was just really sick from being fat though. Would have been pretty coincidental...
I have had 2. One to be diagnosed and one a year and a half later (6 months after my resection). During that time I have also had a barium enema, 2 endoscopies and 2 CT enterographies though. I seem...
I used to have that too. Do you have a mass anywhere in your abdomen? When I had the pressure thing, I had an abscess, a fistula connecting two loops of my bowel and narrowing due to severe...
Other than anemia, both my doctor and I suspect I may be developing some form of arthritis related to my Crohn's, but this isn't confirmed yet. I am still young though (22), so who knows what my...
I actually had the most luck with a CT enterography... It showed a lot of damage that they didn't find doing scopes for me. Due to radiation they can't do it all the time, but in my case it saved me...
Wow, 50,000? That is crazy.... Takilra, where do you live? I know here in Canada people have a lot of issues getting appointments and getting through to their doctors. I am pretty lucky.. If I have...
I'm only 22, but I had repeated obstructions before having surgery. Honestly, I would just go for the resection. Ever since I had mine, I have felt so much better. You are more likely to have serious...
Nope, only med I'm on right now is Imuran. I just spoke with my doctor's nurse and she seems concerned by it. She told me to come in and they will give me a prescription for it and run some tests and...
Thanks Zena - I just left a message on my GI's nurse's machine for her to call me back so that I can let them know what's going on, and get a referral to another doctor if they think it's warranted,...
I would suggest getting your vitamin D levels checked too (and your iron, hemoglobin and b12 if you haven't). There seems to be some sort of link between low vitamin D levels and crohn's... so if you...
I'm 22. Haven't had any stomach pain since my surgery 9 1/2 months ago, but I have had D ever since the surgery, so it's really hard to tell if I'm headed into a flare in that sense or not. I never...
I am getting really concerned about this.... About a week ago, I woke up and had really bad pain in my left ankle and both knees. (My right ankle feels it too, but it isn't as bad as my left). The...
Before having surgery, I had partial obstructions on a regular basis (pretty much once a week or so). The pain would last around 24 hours for it (or at least the really intense blockage pain.. then...
I would be very careful with this. At one point I took Pico Salax when I had a partial obstruction (this was for a prep, not just as a strong laxative), and I felt like I was going to die. I got a...
Glad you guys are safe too... It is really scary how there have been all of these floods. I hope that things don't continue to get worse. I will be donating money to the flood relief efforts. My...
Sounds like peripheral neuropathy to me.... Definitely something to call your doctor about immediately....
I didn't mind the constipation when I had that problem - but it turned out that I was actually having bowel obstructions and I needed surgery because my intestines were so inflamed that barely...
Honestly, it's probably best that you're getting them both done at the same time. It means that you don't have to deal with going through the recovery stage twice. Good luck in February, I hope your...
Lialda is a pretty mild drug, but it may take more than a few days to see any improvement. If the bleeding becomes severe or it continues for more than 2 more weeks (that's when I get concerned,...
I don't usually do New Year's resolutions.. actually I never have, but this year I want to start eating healthy (I am giving myself one "cheat" day per week, because I know I couldn't do it...
This was a while ago, but for a while I was bleeding during sex and I wonder if it has anything to do with my Crohn's. My gyno said that everything checked out and nothing seemed to be wrong, and I...
I doubt Crohn's will be cured for quite a while - they will need to understand exactly what causes it first, in my opinion. It's an extremely complex disease. I hope that they will find a cure, but I...
Yup - I wasn't able to get my 6-MP a couple of months ago so I had to be switched to Imuran. Apparently several Crohn's meds have been affected by it. :(...
I was around that level after my surgery earlier this year - I actually didn't really notice. The hospital residents were idiots and discharged me with a hemoglobin level of around 6 (and...
I've only ever tried the pineapple because it was all that my pharmacy had left. All I have to say is - NEVER AGAIN. I couldn't finish it and ended up going to buy Pico Salax, which is what I've...
Welcome! I took 6-MP for 6 months and they had to switch me to Imuran because they seem to be having drug availability issues (I'm in Canada too). Anyway, it has been good for me - I've reacted to...
Entocort did nothing for me, but I was on 9 mg for 2 years. I actually just stopped taking it a couple of weeks ago....
I haven't posted here in a long time, so hi everyone! I had a resection done in March (my disease was really severe at the time), and I was on 6-MP up until about a month ago, when I had to be...
I gained a lot. I was about 80-85 lbs pre-op (March). Now I'm about 125 lbs, which is heavier than I was before I even got sick (I was about 110 at my heaviest). Going to start on a diet soon...
Before surgery, mine was over 200 (I forget the exact value now), 20ish bathroom trips a day, and I had disease in my duodenum, TI and ascending colon....
Means you definitely have activity at your TI. I had the same thing, and I ended up needing surgery, they took out 8 inches a couple of months ago. The inflammation was so severe that I was having...
I had my first resection March 16 - 8 inches removed at my TI / ileocecal valve. I take 1 Imodium every 2-3 days, which keeps my BMs solid. Otherwise I still go more often than I'd like, and they...
Wait, if you're asymptomatic, why would you think you had IBS then? You must have some symptoms, otherwise you wouldn't think you had anything wrong with you at all. I actually first thought I had a...
I was around 85 lbs post-op and started on 6 MP, 50 mg/day. I think 75 sounds a bit high, unless they saw that it wasn't working at that dose and moved you up, but 50 mg/day is really the typical...
No one in my family has ever had IBD, but my aunt had MS, and I believe some of the same genes are a factor. I'd much rather have CD than MS though, so I consider myself lucky if I had to get one of...
Yup, I've been on Entocort practically since I was diagnosed (9 mg/day for almost a year and a half now), and I've been on 6mp (50 mg) since a couple of weeks after my resection, which was just over...
Could it be your gallbladder? I think it can cause shoulder pain......
That's probably for the best., it's nice to see that over there they have procedures like that, better to be safe than sorry. I was discharged on day 3, I was doing extremely well, but a few days...
You know what's funny? My doctor actually told me that in his opinion, I'm better off eating junk. He told me "off the record", because as a doctor, he isn't really supposed to say that haha. My...
You sound like me! I had mine done just over 6 weeks ago, and I recovered quite easily as well. I was eating solids less than 24 hours post-op. I was able to pass gas within hours of my surgery ,my...
Sorry, I've been busy so I haven't been online. I had it done laprascopically, so I had 4 incisions total. I didn't have a NG tube, or even a catheter when I woke up. My surgeon told me that about 1...
I just had a resection on March 16th due to strictures, a fistula, abscesses and a perforation. Basically, I was a mess. Pre-op, I had D due to the antibiotics I was on but in general I was...
Not good news... My CRP is on the rise again already, my blood tests came back from my weekly tests last week and my CRP was up from the 264 it was at, and my B12 has gotten really low. Seeing my...
Haha thank you! To me, it looks bad, but I know that things always look worse when you're looking at yourself. The incisions themselves are healing quite well though. I went to the doctor today and...
90 Entocort pills (1 month supply) in Quebec cost $186 without insurance, my private insurance covers 90%(I pay up to a maximum of $2000 a year, after that everything is free), so I pay $18 a month....