I have C Diff now. Sucks. On my second round of vanc. This round lasts 26 or 28 days. I should be adding Floreaster soon. I'm too broke to get it now. I was just talking with my wife about what would...
Yeah, I took it as needed. I have pills and 7 refills left. I haven't used it in months....
That's a great idea! When I get iv iron infusions I use a scarf. The place provides nice warm WHITE blankets with those little lint balls that seem to get all over my clothes. I almost always wear...
I was diagnosed at 23(in the 90's) but have had symptoms since the mid 80's(high school). My mother likes to tell stories about how nervous and scared I was during the time before my diagnosis. I...
I tried it!! Double yuck!! And I didn't notice any benefit, but to be fair I didn't give it a lot of time. The taste was horrid. I also tried Slippery Elm but didn't notice any benefit either....
I never had a problem while I was drinking. Obviously, I would stay away from alcohol during a flare, but all those other times I drank. And I drank copiously! Everybody's different. Enjoy a drink or...
I had 4 last year alone(3 were part of a study). I think I have had at least one a year for close to the last 10 years....
I had anaphylactic shock with Dexferrum. They gave me a test dose and within 30 seconds I experienced the most rapid onset of of hardcore pain ever, mainly in my lower back and neck. My throat...
bipolar disorder, iron deficiency anemia, high blood pressure, and panic attacks....
This!! So, so true! I have never watched as much Food Network as during my surgeries! My mother couldn't understand it! She thought it would make me miserable but I found it comforting!...
my wife and this damn computer! oh yeah, books, trees, music, art, my animals, and Ensure!:)...
hahaha! Gatorade? Yeah, I can see that. For me, it is way too slimy feeling when it goes down my throat and it tastes way too salty! I had 4 separate encounters with MoviePrep last year. yuck!...
Hahaha! My wife and I were talking about this just last night, as we have a dog and three cats. She has IBS, I have IBD, now wouldn't it be hilarious(albeit super expensive and a mental roller...
Yeah, I hope the Cimzia works for you! I will be starting sometime next week....
I had four last year alone! But, to be fair, 3 of them were during a study for a trial drug called Ustekinumab. Fun times! Once a year seems to be the norm for me, though. :-) EDIT: Why won't my...
This is my first post on this side. I love music! It has such sway and power over me. Music is the answer!:) Anyway, I definitely love Ben Harper's Live at Mars album. I've been listening to it a lot...
I am in that 5-8 range. Well, actually 5-10 but I am sticking within poll guidelines! EDIT: Ugh! I am now squarely in the 9-12 category. This sucks! :sad:...
I'm glad that you have noticed the effects of the Slippery Elm. I started taking it but thus far have not had any major results. My gastro said it was okay to take as it wouldn't affect any other...
I have IV Iron infusions every month and have never had a problem with constipation. Having the infusion every month keeps my levels normal. Good luck!...
I read somewhere about lexapro inducing mania. I took it for a month and my pdoc pulled me off it. I thought I was feeling good, lol!...
I might have to speak with pdoc about a switch to the XR. Thanks for the info, jenbug:)...
I have been on Depakote twice and have had minor weight gain only. Other than that everything is peachy keen for me. Do have IBD? Why are you on the Pentasa?...
Thanks for the response, BOHEMIAN. I also took Zyprexa and it made me gain a good deal of weight. I certainly hope that there is some kind of tolerance build-up with Seroquel because my sleep pattern...
I don't think it's a guy thing. It may be a killing time thing, but not a guy thing....
Okay, I just started taking Seroquel 100-200mg at night. Thing is, this stuff makes me super groggy in the morning. As a matter of fact, I woke up at 8:00 this morning, then slept for another 30...
Even though I was having major pain recently, it took the pillcam in order for the Crohn's to be seen in my small intestine. Before that, I thought that I was going batty! It was my second pillcam...
I don't drink all the time but I've been known to knock back a few brews or even have a nice, stiff drink or two! I stopped taking Humira recently(it stopped working) and now take cipro and...
It's good to hear that you have had no problems so far. I was beginning to think I was the only one without crazy side effects....
I must have been one of the lucky ones because I never had a reaction while on Humira. I started at one pen every two weeks, then one every week, and finally two every week. It just stopped working....
I get IV Iron once a month. It is extremely helpful, as it is the only way I can keep my numbers up. I, too, had an anaphylactic(sp) reaction to Imfed. All the nurses ran over with the crash cart....
I worked in bookstores for most of my working life. The Crohn's forced me to finally give up the fast-paced world of books for the less stressful on the body call center work. It sucks. As an aside,...
I second that yes....
I usually post on the Crohn's side as I have Crohn's disease, but I also have been diagnosed Bipolar I. I, too, have a horrid time driving. I am a very aggressive driver. I will go around a car in...
I started on 300mg of Venofer last July. One infusion a week for 5 weeks then on to once a month. The first infusion and process lasted about 8 hours. I had some bad muscle cramps and bone pain after...
I take Nystatin for my thrush. It's not bad tasting for me but it doesn't feel like it's working. I think I may have to try Diflucan....
Happy Humira Anniversary!...
I took Humira for almost two years. The loading doses helped out quickly. I had minimal symptoms for almost a year. Then I went to one pen a week instead of two a month. In the end, I was on two pens...
My vit d levels are really low so GI rx'ed vit d at 50,000 units a week. It is one small green gel pill thingy. My level was a 6 about 5 weeks ago....
Thanks for the responses. I will try to keep the boards updated!...
Is anyone participating in a trial study for Ustekinumab. It is a biologic that is in either phase 2b or 3. My GI said that the drug has been approved for psoriasis and it is now being checked for...
I agree with Mike. The Gastro should treat the medical. Have a Therapist treat the mental. It works out better, IMO....
I can drink milk and eat cheese with no problem. If I am flaring, I will limit it just to be safe. The thing that gets me about goats milk is that it tastes salty to begin with. The salty taste does...
Try IV Iron. It's helped my numbers tremendously! Like you, I have had many transfusions. I definitely feel better because of the iron infusions. They take 3-5 hours. I have an infusion once a month...
I drink Coke all the time, flare or no flare:)...
My vit d level was at a 6. I, too, have been taking 50,000 units a week. I am on week 5 tomorrow. I haven't noticed a difference....
My parents took me to the ER numerous times when I was a kid because the leg pains were so severe. They were told it was growing pains! I still get those damn pains!...
Great story! Thanks for sharing. I might have to show this to some of my friends....
That's crazy that your HMO won't pay for the Remicade! Sorry about that. Has your doc not talked to yu about Flagyl or Cipro yet? Maybe Flagyl would help with the abscesses and fistulas....
I know this is an old thread but this Questionnaire is great! It gives a more well-rounded answer to how one is feeling! I will have to ask my GI about it. Thanks!...
Same thing. I was convinced my meds weren't working so I went off them. Yeah, I landed in the hospital for stretch. Then after the hospital I had severe depression from the stopping of the...