YES, YES. Just about all medications gives me the worse side effects. For example, medications containing mesalamine makes me bleed. Fillers as lactose, sucrose, etc. gives me a terrible diarrhea. No...
50 cm. of the colon and 55 cm. were removed, together with the ileocecal valve! Over 3 ft. of my intestine, I believe. Like I said my life has not been the same! Every day is an ordeal, especially at...
Any one is using or has used ox bile supplements? I cannot take cholestyramine and trying to find any supplement that can help with the bile salts diarrhea. I had surgery in 2012, part of the colon...
dorri, thank you very much for your answer. I do not know what I have to take anymore. I saw my GI yesterday she said I cannot take anything until she runs some more tests. I have had many side...
Cholestyramine has not worked for me! Started to take in 2012, after my surgery. It sent me to ER with rectal bleeding! It is rare, but does happen in some of the cases. Since the surgery, I am...
I have had Crohn's disease for 27+yrs. Over the summer, had several tests taken for thyroid nodules and found out to have papillary carcinoma. Had a thyroidectomy in October and taking medication to...
I stopped taking Imodium when I became very nauseated and very dizzy, the room was spinning around. I only took two of the pills. Thank God I did not follow the surgeon's advice, he said you can take...
I am suffering from Crohn's disease for 25+years. Two years ago had surgery, part of my colon and the ileum were removed. Well, since then my life has become a living HELL!! I have had diarrhea since...
In July I had surgery for Crohn's. 50 cm. of the terminal ileum and 55 cm of the colon were taken out. Since July I have not had a good day! Terrible diarrhea, 15-20 times at day, no medication is...
Dear Octobergirl,I have been on LDN since the end of June 2011. It took some time to work, and to find the right filler to use. I was on Humira for a 1 1/2 yrs. it stopped working, went on Remicade...
bella3250,have you given any consideration to LDN (low dose naltraxone)? so far it is helping me. I tried all kind of medications available, including Humira & Remicade. No help at all, these...
I have been on LDN since the end of June 2011. It is working for me, but it took awhile to find the right filler for me. Talk to the pharmacist and find out what they are using!! for me the filler...
the prescription for LDN if for 4.5 mg, I am not aware of how much acidophilus there is in each capsule. I will ask the pharmacist. Many GI are not willing to prescribe this medication, because is...
I have been taking LDN (low dose naltrexone) since the end of June 2011. it has not been an easy ride. Some of the filler used did not agree with me. One of the filler, Avicel, was the worst of all....
I am sorry that so far you have not seen any improvement with LDN. Do you know what kind of filler the pharmacy is using ? Talk to the pharmacist and ask questions! I am taking LDN since the end of...
Hi, jambalam do some research on Low Dose Naltrexone. There are plenty information online. a doctor at Penn state medical center has done study for this med. and crohn's. Look into it and see if it...
Hi, bosnianboy12 I do not drink, so I cannot give you any advise on the topic. However, I would like to know if you are still taking Low Dose Naltrexone, if yes let us know how it is working &...
Hi, bosnianboy12 I am sorry to hear of your problems, do not loose hope ! I am also on LDN, for about 5 weeks now, and I have not seen the light at the end of the tunnel yet. I am feeling a little...
Please, go and see an eye doctor. Crohn's disease also brings inflammation to the eyes. Regarding the bumps on your leg, look up the symptoms for erythema nodosum, it can be also related to CD....
thank you ! I am taking vit. D, cod liver oil & 5 mg. prednisone (among other med.) daily. Remicade & Humira has not worked for me !...
On LDN since June 28 of this year. It is helping me with CD. I have not seen a great improvement, but the symptoms are improved ! I got the med. from my PC, the GI did not want to prescribe LDN for...
Thank you to all of you who answered my post. I did plenty of researches and showed the papers to my GI. She said: we do not give this medication here, Dr. Doe (the director of the center at a major...
My GI does not want to prescribe LDN for me. She advised Stelara. I was on Humira & it stopped working after 1 1/2, went on Remicade and had a problem during the second infusion. Any advise on...
about a month ago I posted some information on my experience with Remicade. I had a reaction while was having the 2nd. infusion, my right hand went numb, at first, then it started tingling. I could...
When I received the 2nd infusion of Remicade. the infusion was done very slow, at about a quarter of the bag, I started feeling numbness first, and soon after tingling in my right hand and tongue,...
In Agu. 2009 I was diagnosed with a multi-nodular goiter, the Ent said that there is no connection between the two conditions, while the GI is of a different opinion. According to her, people that...
I also was on Humira for 1 1/2. I start to have flu like symptoms and fever of 101 after the injection. My GI made me stop. Now taking Entocort and doing OK. There is a support number on the Humira...
What can you tell us about this trial medication, Ustekinumab. I am invited to partcipate in the study, but I am terrified after I read all that the medication, and the study intails. Do you have any...
I also had a bad reaction from iron IV ( Venofer) low blood pressure, nausea, abdominal pain never experienced before, lost 3 lb, unable to get out of bed even to go to the bathroom. It was a...
Had a colonoscopy this Tue. 2/16. Miralax 238 g. mixed with lemon/lime 64 oz Gatorade. Only I tasted was the flavor of the lemon/lime drink. What a difference ! ...
I was on Humira for 1yr 1/2 before it stopped working for me. Had night sweats,so bad that I kept a towel under my pillow to wipe off the sweat. Had bad sinus problems, and fatigue....
Has anybody who suffer from C/D used organic Manuka honey to relief the symptoms ? Thank you...
my son used an ostomy bag, until he had surgery. Yes, the supply are expensive....
My son had it 2 yrs. ago. At first we were told that he had an abdominal abscess which was lanced, but not drained from the inside. He was sent home from the hospital and told that it would be...
any one can give me info. about Dr. J. Bauer at Mount Sinai in NY. He is a surgeon that performs operations for people suffering with Crohn's disease....
I have Crohn's and thyroid problems as well. Went to Memorial Sloan-Kettering where they found nodules, one is very large and visible at the base of my neck. Had a sonogram and a biopsy. The result...
Escalador, Dr. Michelassi had developed a bowel-sparing procedure known as the Michelassi strictureplasty. (I am quoting from the info. found on line) Please see the following link for more accurate...
I was on Humira from 10/07-06/09. It worked at the beginning. I had to stop, due to fever and a stricture in the colon that happened while on Humira. However, remember that every case is different,...
I have a very similar situation. There is a stricture in my colon, found aftere last colonoscopy. I am in terrible pain if I eat fiber, therefore my diet is limited with what I eat. Most often I...
Please to to ER, and change the doctor ASAP. Such high fever is not normal. Good luck, and most of all feel better....
Any connections between Crohn's disease and thyroid nodules?...
I also was on Humira from Oct. 2007-June 09. , and found out that after a while it does not work !!! the last shot gave me fever, and I had night sweats during the time of the therapy. I called the...
Everyone is different, a medication effect people in different ways. I want to share my experience with IV iron infusions. I was given Venofer, the 1st. time it took about an hour. the iron was given...
I also have BIG problems with iron ! Nausea, diarrhea, stomach pains. I also tried IV infusion, what a nightmare & double the pain and suffering. I am now trying Flintstones children vitamins w/...
Bulldog, antibiotics do cause diarrhea. Eat some yogurt if you can tolerate dairy, or take probiotics. Regarding your GI, he/she is very unprofessional. I would look for another DR. Some doctors have...
My son is on Imuran 75 mg since he left the hospital. This week the GI put him on Pentasa 400 mg 3x a day. We will be going to Mount Sinai, here in NYC for a second opinion....
I would suggest a second opinion. Also do your own research on the subject. Regarding Humira I do the shots on my belly. I find it less painfull, only a minor sting. 50+ woman, CD for over 20 yrs. On...
Everyone experience is different. I have the book, and tried some of the suggestions. It did not help me at all !! Some of the recipes have ingredients that for me are absolutely NO-NO. I hope it...
has any one experienced an entereocutaneus fistula? Seeking advise from anyone suffering from this complication of CD. My son, 25 yrs. old, last month was diagnosed with CD. He never had any problems...
Yes, Yes. I had the same experience. Felt worse with the medications. Pain, terrible diarrhea, nausea, aching bones, dark stool, exteme fatigue....