My daughter had Crohn's surgery, 12 inches of small and 3 inches of large intestines removed over a year ago. She has been doing great, no signs of inflammation and good blood work as of three months...
:confused: My 20 year old daughter has had surgery for Crohns. For the last two years her blood work has been normal, Praise God, however, she keeps getting these recurring kidney stones. She has had...
Great, thanks so much for that. I was going to bring Loestrin up at her appointment so that's a great tip....
I want to thank everyone so much for the useful information. I have called her OB/GYN and we are tracking her cycles for the next two months. She is hoping that since Caitlen missed so many periods...
Thanks for the advice....
Thanks so much for your quick reply. This all sounds reassuring to me....
In June my daughter had surgery for a blockage. Before the surgery she would skip periods for two to three months and then have a light period. Since the surgery, she has two week periods followed by...
Thanks for the advice. I really appreciate it. Experience sometimes is definitely the best teacher. Good luck to you....
What is the other word for that, I haven't heard of it, is that also Asacol?...
She was on 6mp (mercaptopurine) before her surgery and it did not seem to help. She lost half her hair and had no energy at all. Maybe a little of this was due to blockage but the doctor elected not...
So far she's doing great. Has had two blood work levels that have been normal. No anemia either. Great news!!! She eats what she wants, aside from corn and lettuce and does go basically dairy free...
My daughter had resection surgery around the same time you did. What maintenance med if any did they put you on and how are you doing? Thanks for your reply....
Hi everyone, just wanted to update on my daughter, Caitlen. She was on the 6mp for about nine months and as some of you may remember, we knew it seemed to not be helping. She had surgery three months...
Best of luck to you. I sincerely hope you find relief with this treatment. Thanks for responding to my post....
Thanks for your reply....
Okay, I just found it interesting and then couldn't find it. Thanks for getting back to me. I still would be interested to know if anyone knows anymore about this. I have always wondered why there...
I just watched a very interesting video on hookwork treatment for autoimmune diseases. Very interesting, especially since people in African experience very little IBD diseases. But when I went back...
I haven't been on for a while. We spent 22 days in the hospital with my daughter. She was completely blocked and had a lot of scarring despite being on 50 mgs. of 6mp or Purinthol. The doctor removed...
Has anyone had luck with alternative treatments such as herbs, etc. after a resection and used these successfully as a maintenance regimen? My daughter is dreading the immunosuppresants and hair loss...
Yeah I was thinking long term, like can you eat anything once you are completely healed. Also I need to find out from them for sure when that time frame is, definitely do not want to push anything,...
Thanks so much for all the help and information....
My daughter just had surgery for a blockage and fistula which is why the 6mp or Mercaptopurine or Purinthol was not helping. The doctor said no medication would help a blockage not even Remicade. She...
Thanks to everyone for the experience and things to ponder before we go in to speak with the doctors tomorrow. Margie...
My 19 year old daughter has found to have a blockage now at the end of her ileum. They feel it is due to scarring and not just pure inflammation but they will not do a scope because she is swelled...
Has anyone successfully used topical DMSO for cramping? Sounds a little scary but then again so do the other drugs. Thanks....
Thanks....
Thanks so much for the words of encouragement....
Is he normally prone to acne or was this out of the blue? Thanks by the way for responding....
Thanks so much for everyone's quick responses. This will put her much more at ease, but of course, I do know that everyone is different. Just wanted to ease her nerves a little. It is Summer and she...
My daughter's doctor has now prescribed Entocort at 9 mgs. to begin with for 8 weeks. She has not been on this but on Prednisone she did get the facial hair, the puffiness, all those dreaded side...
Very helpful, thanks so much. If you don't mind me asking, what types of supplements, if any does she take and what meds is she on? Margie...
Thanks. Yogurt and milk products are out but the tun in the pouch is a great idea for her....
Has anyone ordered this book and was it helpful? I am on the internet today as I am sure most all of us are trying to find answers. Frustrating since the internet is so controversial, one site says...
We live 30 minutes from Roanoke, VA and have been going to Charlottesville, VA but that is such a long haul. Also UVA is so bombarded with patients that when you need an appointment, three months is...
Can anyone following the SCD diet or any Crohn's diets, microbotic, etc., give us pointers as to what anyone in college could eat. She will not follow recipes or fix them, nor do I know if she would...
What are some natural supplements for more formed stool with for a Chron's patient?...
Thanks everyone for commenting. What do you do for your constipation and how long have you been on 6mp? What dosage are you at and do you have severe hair loss? Thanks....
This is all the same med, just different names so wanted everyone to know what I am talking about. I have seen a couple posts where some people believe this medicine could cause constipation. My...
My daughter is on 6 mp, 50 mgs. and has been suffering from severe constipation. I do believe it is the 6mp because of our elimination of supplements. The myrlax doesn't seem to help. Not sure what...
My daughter is on 6mp and suffers from constipation with her Crohn's. Now her urologist wants her on Potassium Citrate which her gastro doc said he thought would be alright with her Crohn's. I have...
Did you also take their probiotic or another one? Thanks....
How many pills did you start out with and did you experience any side effects at all? Sorry for all the questions, I just like to know what to watch out for. Thanks....
Also, when you began taking it were you taking any other prescription meds or were you med free when you began taking it? Thanks....
That is very encouraging and wonderful news. Do you have any recommendations for how to buy this a little more affordably?...
Do you take any other natural supplements or just the Serovera? Thanks so much for the help....
She has 400 mcgs in her multivitamin and I was giving her an extra 400 mcgs. She tolerates it fine in her Multivitamin but when I added in the 400 mcgs of straight Folic Acid she got extreme stomach...
I would love to learn more about Biotin also, side effects, okay to take with Purinthol (6mp) (Mercaptopurine) all the same drug for my 18 year old with hair loss....
Thank you so much for your advice....
I tried giving her folic acid supplements on the advice of another member and she developed severe stomach cramping. I took her off it quit, put her back on and it began again. Her doctor said folic...
Has anyone had to go off Purinthol or 6mp or Mercaptopurine, all the same drug due to hair loss? My 18 year old is losing it by the handful when she showers. The thinning has become evident. I tried...