I have UnitedHealthcare and I am enrolled in the Remistart program. I've spoken on the phone with them several times, and they are very helpful. They would be able to tell you if you're eligible. The...
I posted this on the Crohn's board a few months ago. See the link at the bottom. Good luck. Jan An elevated faecal calprotectin is not specific for IBD. Any inflammatory process within the...
I found this. Link is at the bottom. Good luck. Jan An elevated faecal calprotectin is not specific for IBD. Any inflammatory process within the gastrointestinal tract will result in the activation...
Aw, I know how you feel! I've had flares that dragged on forever. Three weeks seems to me like a long time for a virus to hang on. Have you been on antibiotics in the last few months? or visited...
Re-read the "Gentle reminder" thread. I appears to me the moderators are cracking down on certain people for "giving too much information." I wanted a moderator to acknowledge that the street runs...
I can see that my post from this morning has been viewed over 25 times since I posted. No one else commented. So, it's OK when a moderator tells a poster what to take, how much to take, and even how...
Whoa! Slow down! Cindy, have you had your vitamin D levels checked? Do you even know if your levels are low? I would NOT start taking mega doses of vitamin D without consulting my doctor. Patients...
I don't know when your surgery is scheduled, but I'd definitely ask your doctor or surgeon before taking any other medications. I know a couple IBD'ers who've had problems with Mucinex. I'd hate to...
P&H, actually, I think it's the asacol that stains the toilet seat purple (is that what you meant, or did you mean the folic acid?) Been there, done that... Jan...
I agree with killcolitis. Did they do a strep test? I wouldn't take any antibiotic without a definite diagnosis. I had to take the 6-dose Z-pak in August for a dental abscess and root canal - sent me...
Jeanne, First of all, I wish you all the best for your surgery. I hope they are able to find and take out the section with all the problem-causing diverticula. Secondly, your comment about taking...
American College of Gastroenterology meeting just finished in San Antonio. There were a couple of presentations on C. difficile. Fighting C. Diff With Feces:...
Are you a smoker? This is from PubMed, what I consider to be one of the most trusted sources of medical studies. (Click on the links below.) http://www.ncbi.nlm.nih.gov/pubmed/12673073 "Association...
Eva Lou said... ... Plus, it really says nothing about the efficacy of curcumin whatsoever- simply that it's being studied further. It's referenced on that website strictly to boost sales for thier...
With all due respect, Medz, the analysis you referenced in your last post deals with IBS, not IBD. Bifantis is the patented probiotic strain in Align. I'm not saying it couldn't also be useful for...
Good for you, June, standing up to your doc. He'll get over it. I'm sure the doctors at Mayo know what they're doing. Spots now, too? If it's not one thing, it's another! Are the spots on your legs...
June, Your latest plan sounds good to me. Regarding the eyes, I guess I was confused when you said cloudy and swollen. What was cloudy/swollen? I thought eye issues in diabetes happened in the...
June, I'd be concerned about this, "... eye dr ... said my eyes were cloudy and swollen." You said it effected only one eye? Did you see an ophthalmologist ? (an MD, different from an optometrist .)...
I don't know much about Crohn's in the mouth or throat, but a very sore red throat could be strep. I hope someone runs a strep test (if they haven't already) before putting you on prednisone. Just my...
Well, the link below is the "DDW 2010 Program Book" from their website. I tried to set up an account to login to "MyDDW", but I don't think I have the "proper credentials."...
kc, I don't recall seeing anything in the articles on medpagetoday.com about the LDN study; was it supposed to have been presented? Yes, I think DDW is THE big GI meeting of the year. You'd think...
I don't know if the link below covers everything at the 2010 conference, but it's a pretty good start. At the bottom, you can scroll ahead; pages 1-3 cover DDW 2010 at New Orleans. If you're real...
LookingFH, I don't think the machine is a diagnostic tool. I googled it and came up with this: http://www.quantumwellness.ca/about_quantum_biofeedback.html "The EPFX-SCIO does not replace other forms...
Haha! You're right, the chart doesn't show every possibility, but I think IBD'ers probably have more variations than the general public - maybe we're just looking more closely! I would say the...
Oh well, that's ok. I have a ton of favorite sites I use to keep up-to-date with new therapies and studies as well; some that require "false" medical credentials :) I just like to see the actual...
DB, I'd like to read more. Could you please post your source? Thanks, Jan...
jweb, Imuran (I also tried methotrexate) didn't work for me, but it might help you. Everyone reacts differently to drugs. I'm injecting Humira now, but noticing some reduced effectiveness. There are...
Good news, Phoebe. I'm glad everything went smoothly. I hope you're one of the lucky ones to feel some relief quickly. Take care, Jan...
My diagnosis has recently been confirmed as Crohn's colitis after another major flare and a new GI doc, who cared enough to do another colonoscopy and found "classic Crohn's colitis" throughout most...
glamourgirl, Your comments about wine and quality of life could have been written by me!! Thanks for replying. I'll keep watching your progress with the LDN, although at this time, my...
glamourgirl, I have a question regarding your conversation with the pharmacist at Irmat in NY. You were trying to get some answers on how alcohol would effect you if you were taking LDN. Like you,...
There is a message board especially for parents of children with IBD. They frequently discuss some of the issues you are having with your daughter. Maybe you'll get some ideas there as well....
Did her rheumatologist recommend a specific dose of folic acid for your daughter, prescript ion or OTC? Different doctors have different ideas as to how much and when to take it. I'd give the rheumy...
I would definitely suggest that your daughter wait until after the SAT's to begin the MTX. If she's never taken it, you have no idea how she'll react. I'm not trying to scare you or her, but I...
Ok, good that no one is confused regarding Humira vs Enbrel. I just mentioned Enbrel since that's the only one I know of that you can mix yourself. I agree with you that it would be nice for Humira...
Aimee, perhaps your friend's wife used Enbrel for her RA, which is also an anti-TNF drug, similar to Humira. You can get Enbrel in a form that you mix up yourself, without preservatives. The...
Sherry, I can imagine how frustrating this is for you to get a proper diagnosis. One thought came to my mind after reading some of your other posts. Do you have psoriasis? I don't see it in your...
I guess I wasn't very clear in my post above. The two threads I pasted above include the links to some studies that show the anti-tnf-alpha medications have caused weight gains in some patients. But...
Hey folks, Yep, snappy started a similar thread in April, "Weight GAIN with crohn's?" http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1106134 Here's another from March, "Remicade...
Hello, Ivy6 started a thread last month for folks who need information on new meds: Starting a new med? Please read this before posting on the forums click here:...
Hi, Jill - There are quite a few IBD'ers (crohn's and UC) who are positive for HLA-B27 on these forums. (myself included, but my IBD diagnosis is questionable.) I'm under the care of a rheumatologist...
Another concern would be rabies. [b] .com/od/weeklyquestion/a/0407_cat_bite.htm]http://pediatrics.about .com/od/weeklyquestion/a/0407_cat_bite.htm "rabies - surprisingly,more reported rabies cases in...
I took oral methotrexate for awhile (as much as 20 mg per week). My side effects included headaches, fatigue and a general feeling of being "dopey" in the head. I don't know how else to describe it -...
Perhaps it's Cimzia? (with an "m" ) FDA OKs New Crohn's Disease Drug Cimzia http://www.webmd.com/ibd-crohns-disease/crohns-disease/news/20080423/fda-oks-new-crohns-disease-drug-cimzia It's another of...
This website is a wealth of information: Spondylitis Association of America Their forums are great! Under the General Message Board, check out this "sticky" topic for 19 pages of posts from folks...
Thanks, pb4! Most of the information I've found on the internet has highlighted the benefits of prebiotics (FOS, oligofructose, inulin). I was curious to read more about the negative aspects of FOS....
Very interesting! pb4, would you post the website or source(s) where you found your information? Thanks! Jan...
Hi, Rosie, I was wondering when you'd get the results! - was that about a month? I'm glad the results are negative. Did you get a copy of the report, with the actual numbers and ranges? I'm curious...
I love google.com. I found these two abstracts, (which you can read in their entirety): http://gut.bmj.com/cgi/content/abstract/54/9/1232 "Familial clustering of these antibodies has been described,...
Rosie, yep, hang in there. I wouldn't call again either and risk being labelled as one of those annoying pesky patients. I'm sure they'll call when they get the report. It's no fun waiting though! By...