I am not currently taking meds. I had horrible insurance for a while which made certain meds cost a lot. I'm talking half a paycheck each month and deductible was so high I would have barely just...
You could try taking probiotic pills - you can find them in the pharmacy or vitamin section of big box stores. I actually can't take probiotic pills as they upset my stomach. I wouldn't call it a...
I haven't been on the board in a long time as I've gotten "Crohn's buddy" who lives close to me and is willing to hear all my horror stories and comfort me and vice versa. But she hasn't gotten...
I heard today through my mother about a treatment for immune deficiencies that had to do with injections of gammaglobulins. This past year I've been seriously ill with reoccuring inflammation,...
My knees have been bugging me for quite some time. I finally went about a month ago to the doctor because I just couldn't stand it anymore. Tight, popping, uncomfortable burning knees. He put me on a...
Some high calorie options she may be able to eat. Breads, pastas, rice. White versions are lower in fiber (if she's in a flare), or do wheat versions to help solidify bowels, if she isn't in a flare....
AS and CD are both auto-immune disorders. Just because you have one doesn't mean you'll necessarily get the other, but if you have one, you are at an increased risk. I couldn't quote specific...
I don't follow a specific diet. When I'm flaring, I eat less fiber, less fat, less dairy (lactose effects me), less cold items (causes bowels to constrict), less meat. When I'm fine, I can take all...
I don't drink heavily. When I'm flaring, I don't drink at all. I can normally have one drink before feeling a little ill, that may be because I also have a slight allergy to some types of alcohol...
Don't feel like a burden. If they can't understand right now, they will soon. Just be open in communicating with them. Sometimes people get so wrapped up in their own unhappiness they can't see...
Right now I'm on the pill, have been since about 2003. I've had to change the type of pill about once a year because it works for a while and then I always end up having break-thru bleeding. Never...
Ah, how horrible. You really gotta have a sense of humor with this (or really any other) condition. I hope you get well enough in time to enjoy your wedding thoroughly! Congratulations!...
Mom, I just went through a really bad flare-up. The doctor put me on prednisone as a last ditch effort before going to humira. Thankfully, the two-month course (starting at 30mg and taper down)...
While I absolutely love the cooling weather (no more A/C!) and the wonderful holiday get-togethers that fall and winter bring, I hate that every year my joints get stiff around this time. I never...
I do light yoga which helps me de-stress as well. If I start to overwork myself, my body lets me know quickly....
So, I'm down to 30mg of Prednisone a day (half in the morning, half in the evening) from 40 mg; reducing by 5 mg each week. I've started to notice something that I didn't previously. My heart rate is...
Has anyone here ever used a nutritionist? I tried to use the "free" one at my school, but they weren't very helpful at all. I was thinking they would go through lots of specifics about like the food...
Any of those preps always completely destroy me (done it 3 times). Just gotta push through until its over. I hope you are doing well. The prepping is definitely always the worse part for me. I always...
Good luck. I absolutely hate not being in the comfort of my own home when I'm sick. But your husband sounds like he'll make you comfortable. Hope everything goes well....
Thanks for all the advice. I've started taking off-brand docusate sodium stool softeners and some probiotics. I'm also laying off most solid foods (just white rice for me) and using boost shakes that...
Kazbern - When I was first diagnosed, I was on pentasa, but that was back in 2004 when I went to a different GI. After my first "remission" and then a new flare-up and new GI, I was put on asacol...
For me, the prednisone makes me extremely hot and sweaty. Being out in the sun might exaggerate that more. Be sure to hydrate! I've been having to drink lots of water to keep up with how much I'm...
TMI is good information! I've been diagnosed for a while now, so I'm used to describing all my different stools. :) I rarely take the tramadol because I hate taking it. The thought of needing a pain...
I thought I'd add that currently, I have a fairly open diet. I avoid things I know are very problematic, such as lactose and red meats. I also avoid foods high in fat and nuts. I don't drink coffee...
The doc plans to put me back on a maintenance dose of asacol or entocort if the inflammation goes down; otherwise, we will be trying a TNF. I'm guessing it is, though, cause of the constipation, I've...
It's so sad that people would abuse the system that they need to send out spies! But, that's the world we live in. Good luck with the disability! It's important to be able to get the help we need...
Also, keep in mind, when you chew gum, you swallow a lot of air. I know the gas it produces is painful for me....
I've followed off and on over the years since I was first diagnosed back in 2004, but have never written on this site. A bit of background info: I'm 23 yr old female. Currently a full-time student,...
I always go to caffeine when I'm really constipated and need the job done quick. It helps flush things out much quicker than taking a stool softener. A cup of coffee and I'm good for a few days....