If diet keeps you away from prednisone please keep trying. While pred works wonders it's a drug from the devil himself. I've been in it for years and my body has paid the price. I'm down to 2 mg a...
Yup. The day after my shot I am sometimes so tired I can't keep my eyes open- literally. It's awful...
I use a target pharmacy and it is amazing! Granted I fill many Rx's there not just pain meds but they are always super friendly know me trust me and are attentive. I was shorted 5 pills one time and...
I'm very glad for you it worked out! Pain mgmt is insanely trying these days. If you're not seeing a pain doc then find one. And possibly don't stick with the 1st one you see. I have been very...
Thanks for the responses! JaSanne- I actually have met two really great people from the site over the past fee years. It was so nice to meet folks dealing with the same thing! LLT- you should let me...
Haha. Thanks! Maybe "dating" was the wrong word. And no I won't wallow in misery. I appreciate your words though!...
I had a hugely painful abceyss a couple of months ago. When they got in there turned out to be a fistula. I didn't notice any drainage etc for a bit but now I feel a hard ball in my butt cheek and it...
YES! It's why I hate getting them done. I flared badly after one years ago. Now I'm worried every time!...
Hi there. I had surgery to drain an abceyss a couple of months ago. They left a seton in place which was a nice surprise when I woke up. It doesn't really hurt anymore but still drains almost...
Hi there. I'm a 40 year old guy who's been living with Crohn's for 25 years. Usually my Crohn's is mostly under control. I know this isn't a dating site but I'm looking for someone of the opposite...
Thanks everyone. Freaking gi won't see me til June 12! Unreal. Told the lady on phone it's not a normal follow up! After being on hold 3 times back and forth she finally got me an appt with pa on the...
Hi. I've had crohns for 25 years now. (I'm 40). About a week ago I noticed a hard lump under my skin in my butt an inch or two from my anus (gotta love that word). It hurts. It hurts wires when I...
Hi. Is "more the better" when it comes to taking probiotics? If the brand i take says 2 capsules a day would it be beneficial to take more to get more good stuff in my gut?...
Hi there. I've been on pred for so long I've developed severe edema. I have to take Lasix I think it's called. My legs were so bad. I was like the pills bury doughboy when you pushed my feet. The...
Dogs are amazing! I believe in their innate abilities to sense illness 100%! We have had border collies for the longest time. One of our current dogs, Mollie, will not leave my side. I've never had a...
i don't know if GMO foods are the root cause of diseases like crohn's, but they are 100% proven to be toxic to humans. Monsanto is a machine- there's no stopping them. The head of the FDA is a former...
Hey there. Any ideas on how to get rid of this beer belly that's resulted from prolonged pred use? I work out, ride my bike and don't eat too badly. The rest of me is pretty thin. Thanks!...
Send Obama the bill! Maybe try to get a local news station involved. Maybe they can reassure the hospital to drop the ridiculous charge! If not I hate to say it but your misfortune with this idiotic...
Thanks again Obama!...
I've been on pred forever and have a bad problem with edema. I also take probiotics and have not seen a worsening/improvement when I start/stop the probiotics....
Restricted diet and me don't play well together. I can't do it. I've tried to limit or stop eating certain things and it never lasts long....
Hey there. I'm in a similar position. I feel my wife is bi-polar. The mood swings. The intense hatred then 20 min later everything's fine. But she refuses to admit she needs help. It's getting bad....
Hi all! I'm 6'1" and weigh about 226. Most of me looks pretty skinny except for my belly. I have a pretty big beer belly that won't go away bin trying to lose some weight. I want to get to 200 but I...
Good luck. I hope it all works out quickly for you!!!!...
Screw em all. It's so lame that people judge. I know what it's like though. At first I used to make sure my appts were to or from work so I'd be dressed nice bc I didn't want anyone working in office...
Good luck! Well wishes!...
I think the angles Etc of my wife's car seats position my body so I have to go. And there's always the stress of the long drives. My daily commute is 45- 1 hour each way. I always try to go first. I...
Maybe AZ is different? Or maybe I've just been lucky with pain docs. I've never had them turn down a request when I have to travel for work or vacations. My pharmacy is awesome also. They should be!...
Go to endocrinologist if you have any questions or doubts! Also when tapering think percentages not mg. 5 mg from 40 or 50 mg is a lot less than 5 mg from 15 or 10. When down to low mgs and if you've...
You can ask your doc for a vacation override or whatever they call it at your office. My doc has done it a few times over the years no problem....
I feel that way all the time suffering with Crohn's disease. I guess it's of my own doing also as I try to be "normal" and not worry anyone. But sometimes I do secretly wish for a bit more...
Go see an endocrinologist....
Humira about 2 years I think. My memory sucks thanks to all these Meds!!!!...
Crohns Meds are not fun especially prednisone. If you don't have any symptoms why treat it? That's a question. I'm no doc but maybe inquire about diet etc before you take Meds?...
I make sure they knock me out! The anesthesiologist always gives me something to really calm me down which almost knocks me out. Then I think they use the Michael Jackson drug. Don't feel a thing....
Hi there. Looks like a few posters said "let him know he's not a burden" etc. but from your viewpoint I'm thinking you're saying to you he is at times. I get it. I've had cd for 25 years. Been...
This is a vicious cycle. I forced myself to get in bed last night at 11 and I slept straight through til my alarm went off at 4:45!!! Yeah!!!! 1st time in ages!!!...
Hi there. 1st congrats!!!!!! With all the stress of a wedding if you're not well and are in pain I would say go to the ER if you can't talk to gi! Last thing you want is stress to knock things off...
My doc tells me that biological are like cruise missiles and asacol is like a .22 I had asked him about stopping asacol and he asked me if I ever had and I reacted. I've been on it for years but...
Being on prednisone and humira and all the other crap I put into my body could kill me also......
CCboys what exactly do you mean by hell?...
Hahahahaha. Good LUCK!!!!!...
Good lick!...
Holy crap. That would suck. It would take me 15 min to cover the seat! Haha....
I want more info on this and on the "poop transplants" I've been reading about. If they work roll em out to us! Pharms will never let them go mainstream. They don't want to cute us. That would eat...
Going on literally one hour sleep. Meds have my sleep so screwed up. Can't sleep at night. Then battle to stay awake all day....
That got OT quick. Sorry. Brains not functioning yet. Need caffeine....
It's a slim possibility my doc said but I've been on it for a long time also. I actually have 2.5 full sharps containers I need to get rid of. I called the 800 # and they said in az just throw em in...
I've been on pred forever. Can't get down past 5 mg then body goes boom! I made it to 3 mg for 1st time ever. Did great for three weeks then everything came roaring back. Time to bump it was. Now on...
Dr. Google. We have way too many resources to scare the crap out of ourselves! Hahahahaha. Hope you feel better!...