I named mine Earl, not sure why the first name that popped in my head, probably due to all the pain medication : ) My mom wanted to name it Stella the stomy. Sometimes it gets called Stomy. I had a...
The only time I had a metal taste in my mouth was from taking Flagyl. Hope you figure out some relief....
I just turned 22 in septemer but this summer I made the decision that it was time for surgery, my medication wasn't working to its full potential and I had a really hard time getting off steroids. So...
THAT I COULDN'T BUTTON MY PANTS THIS MORNING! WOOOHOOOO! SO EXCITED, I HAVE GAINED ABOUT TEN POUNDS, TEN MORE WOULD BE NICE! YAY KEEPING MY FINGER'S CROSSED THAT I CAN MAINTAIN THEM POUNDS!...
When I used Immodium it made me feel really crampy like my gut was going to explode so now I take Lomotil which is a perscription from my GI and it has worked wonders, I don't get any crampy or...
Thanks ivy! She is doing well here is the link to the update I posted not sure if you saw it! Hope this are going well for you :) http://www.healingwell.com/community/default.aspx?f=17&m=2386181 ...
A long time no write! First off I would like see how are you all doing? I hope more positives! I hope some of you remember be as it been a long time, my apologies! As some of you know my mother had a...
My golly gee girlie no wonder you are not feeling well, boy oh boy do you remind me of myself in ways. When I was my sickest, I was extremely depressed and stressed. Like I had no way out, I felt...
I actually have met with Dr. Jill Smith at Hershey Med Center a few times and both my brother and I have actually, we both also have Crohn's. We both have tried LDN. I was very sick at the time so I...
I'm on two pens every two weeks. I was at one pen aweek but that got annoying, so we are trying two pens every two weeks....
Not sure what antibiotics you are on but I know many have had success with being antibiotics helping their crohn's symptoms. I know when I was on cipro and flaygl it really helped with decreasing the...
Yeah when I was in the hospital they used the syringes. I'm sure they hurt a lot less. I just haven't had the best experiences with syringes because I'm so skinny. I was left with huge bruises all...
Thank you so much for the responses! Sorry it has taken me a few days to get back to you all. So the plan is not to switch to Cimzia but to switch from taking Humira every week to taking two pens...
Or does it just come as a syringe? Thanks hope all is well!...
When I was first hospitalized back in dec 2008 my levels dropped to about a 3 so I recieve two units of blood and I felt an instant difference in my energy levels and over all well being. Best of...
I do love a good able every once in a while, I stayed away from them for awhile because of the acid but now my tummy can handle them. Kinda of interesting tid bit..was watching the news the other day...
I have Humira every week and 150 mgs of Imuran. Plus I'm on 10 mg of pred since i just upped my doses. Sure too many it sounds like a lot but I rather take a lot than feel bad. My doctor did the test...
My brother has been on Remicade since he was diagnosed back spring of 09, he sounds like your son in the fact that he really doesn't notice much from getting his remicade, he may be a bit more...
Sorry to hear the news about your daughter but the positive things to look at is that you said she is transitioning well and doing well with her studies! That is great! A lot can change in six months...
Congrats on still kickin' and rockin' it! Best wishes! 11/28/2008, the day after Turkey Day! Woopiee, didn't get to enjoy all the yummy left overs boo hooo...
Just wanted to respond quickly, I can totally relate to the part about just needing someone to listen, not seeking advice. I struggle all the time with that with my dad. I have shared with him time...
I think I'm loosing my marbles, I thought I read this thread this morning and saw that you, Zanne had posted a long reply to thank everyone and explained everything in great detail, so when I came...
Everyone once in a while that will happen to me if I don't let go of my skin at the right time. I wouldn't stress out over it too much, I'm sure you got enough medication in. If your worried try...
Not sure how fruit effects you but one thing my mom did was make me homemade jellos using different fruit flavors. She would take fruit juice and use that as flavoring. Not very filling but could...
Well that is frusterating because you still don't have answers. I would wait if you can to seek an second opinion until after you find out what the colonoscopy shows. Don't wanna have to many hands...
When I was first diagnosed I saw a doctor that just basically said you have a chronic illness and here take these. I left with no idea of what Crohn's was. So I never went back to him but we found a...
I think it would be important to stay on the Pentasa at least until the Imuran was it's full effect, it can take up 3 months for Imuran to work to it's full potential. Best of luck to you!...
Remicade has a financial assistance program, I think it is called Remistart. Can't offer any advice on what you need to have to qualify and all those specifics, but best of luck!...
When I had it done they gave me a choice if I wanted the numbing shot first or just go ahead and stick in the IV. So I would assume it would be the same for you so I dont think you would have to...
My brother and I both I have, I am only older by 15 months. There is just the two of us. As far as I know no one on my mom's side has issues, but there are two people on my Dad's side who has Crohn's...
I've been on it since I think the beginning of May and I have had no side effects at all except maybe a little hairshedding when I forget my folic acid. I'm also on Humira and I haven't any issues...
After surgery on an a abscess wound, my col/rectal surgeon said that I had a lot of loose stool they sucked out of me. Can't offer any help on constipation but best of luck!...
My brother was lucky to get off Remicade for about six months and now has been back on it for a little over a year. He is doing great or at least that is what he tells me. I on the other built up...
I just wanted to thank you all very quick! Haven't had much time to sit down and write a response. So I wanted to quickly say thank you and let you all know I will be back with a more detailed...
So as some of you may remember my mom suffered a traumatic brain injury snowboarding out in Reno, NV. (We live in ME). I'm going to take you all the way back to June. Mom got the Okay from the Dr. to...
My brother (15 months younger than me) and I both have Crohn's. We were diagnosed probably six months apart. We believe it comes from my dad's side because there are two others on his side that has...
My brother was diagnosed the end of his junior year. He too missed a lot of school. My mom talked to his guidance counselor who also talked to his teachers. My brother was able to work out a plan...
We have Coffee milk in Maine, not the authentic Coffee syrup you get in RI of course, but Oakurst makes a Coffee milk and it's delicious! Congrats Nanners on something positive! Funny how things...
Hey Zanne! I have the same problem. I can't wear earrings anymore with out my ears getting all infected and scabby :/ I don't have any suggestions, just anted to let you know I have the same issue....
That's my birthday! So I'm gonna be positive for you and say that that will be a good day! Frustrating I'm sure, do you talk to someone professionally? I think that may be very beneficial for you...
For me personally it is the casein in milk, which is milk protein. I enjoy Almond Milk personally. It really does vary from person to person I would say, I had a food sensitivity test done and that...
This is an article I found, it is really inspiring I think, makes you remember how important and helpful a positive/open/optimistic mind can be. The girl and I in the article are the same age, so it...
I think you have to keep in mind, as I think Nanner's may agree but not sure, a lot of the technology that have today to diagnose and see the disease was not around when she was first diagnosed, and...
I was wondering the same thing! I've been in and out over the last month and I didn't know if I missed something! I hope she is getting some much needed rest!...
I have had five operations on a abscess located right next to my rectum. MY col/rectal surgeon said that unfortunately it is a very individual thing as far as healing and how long it may take. He...
I think a balance between medicine and supplements is the way to go if you can tolerate them. I wouldn't pick either or. Also supplements tend to get expensive so that is also something to consider,...
Hi Zanne I just wanted to check in see how things were proggressing and if you were getting anymore answers? I hope you have been getting better care. Sorry if I have missed posts about it I have...
I was on both LDN and Humira, and my LDN was prescribed to me by Dr. Jill Smith one of the main doctors doing the research and trials for LDN. When I met with her she said that although it would take...
The only way I got rid of it was that they cut the dose in half, and then I didn't feel so crapy on it....
I think as far as pain and location it is all individual. For me personally the leg hurts way less then the stomach, glad to hear you had a good first experience!...