Thank you all so much for the support and replies. It is incredibly comforting! My friends and family who love me very much and desperately want to be helpful are stretched to the limits of how much...
Thanks stereofidelic89... You'd think since I work there they'd be more respectful but I think when some doctors can't find an answer they choose to blame the patient. If I had stabbed myself...
Thank you 73monte! You're absolutely right; I need better care. Problem being I work for a hospital and our insurance states that you must use their facilities for procedures/ tests/ admissions if...
I truly hope this calms quickly and you get fast solid answers... ((((HUGS))) ~pixi...
WOW!! Glad we were both out in time for xmas... You give me hope as I my CD is getting crazier and crazier septic shock has been a big fear this year I'm so happy you pulled through! I know I don't...
Hi all, I could really use some advice. I agreed to my first CD surgery and had it done November 2011 with promises of remission and rainbows. I was then hospitalized for 4-8 days at a time every...
Hey are you taking anything else? I have that problem with Flexeril/ muscle relaxer...I started taking it for the migraines and the jaw pain is apparently a side effect...Remicade gives me migraines...
Thanks.... didn't realize Arnica could help w/ scars too...
Hi guys! Long time no post but I just had my first CD surgery- 11/3 Laproscopic right colectomy(?)They removed diseased portion of TI iliecol (sp?) valve and just a bit of the connecting rt....
Thank u I will look into that:)...
Question: I am trying Miralax for the first time...reccommended by my new surgeon due to difficulty w/ painful/ difficult bm's...I took 2 sips and could already feel the cramping :skull: Then began...
Thanks nawlinscate... my recent hospital stay they did the same thing to me...no water no ice chips nothing for the first 4 days ...I was MISERABLE...I am not looking forward to that again ;(... A...
Monkiray surgeon says 4-5 day hospital stay for sure with a pain pump so I'll have the good stuff for the worst of it lol...they said they won't let me go home until I've proven I can handle a full...
Monkiray I am a lot like you I want to be left alone when I'm sick, I have a horrible habit of kicking people especially my mother out of my hospital rooms lol. I was afraid I would need help...
Thanks Nanners I'm about to call my new boss who met me while I was in the hospital lol great first impression. So medical leave about 6 weeks they should be able to handle that. Knowing you handled...
Hi All! I know I post rarely but I have such respect and love for this forum and the help/ support it brings...I even try to get all the GIs and Colo-rectal surgeons I meet to tell their pts. about...
I learned if it even starts to call the dr. because once it gets going it only progresses with all the immunosuppresants I'm on ...Remicade and Azathioprine... Once in a blue moon I can take a cold...
((((Nanners)))) just had to let you know you had me tearing up at work...luckily I was working alone in the lab last night;) I'm right there with you...i just need a guilt free break and some...
Thanks for the replies/ support! Update lol - I was force feeding myself noodles and a random Special K bar I found in my bag and that finally started the first one...I was sitting there scared and...
Generally everyday around this time 2-3am wether I'm at work or at home I feel hopeful. I start planning my morning off...I tell my bf we'll go running and then to a relaxing/ power yoga before bed....
Ok maybe not ALL black and blue but my perianal area and forearm definitely is /community/emoticons/eyes.gif ... Don't know if any of you remember my posts a couple months ago but I've been seeing a...
Laziness slowly took over and I gradually stopped taking Pentasa the last couple yrs....I can't tell any difference at all whatsoever...though when I was taking it properly and I missed a week I...
I'm soooo sorry dragonfly!!! I hope some of the meds kick in soon... If I can stay away from the toilet long enough and the gas pains are terrible I'll make a hot epsom salt bath and stretch in it......
That's understandable... I was really worried about depending on them too much especially since I have a lot of addicts in my family. So far, 7 yrs in and no dependency or addiction. I do find that...
Hi...((((tabathasuzzette)))) My hydrocodone (vicodin) used to always make me nauseous, but now 7 yrs later it doesn't bother me so much. If I try to take it and stay active I get nauseous but if I...
Hey sailor..not to worry pretty much everything about this oh so awesome disease is embarrassing and or simply gross... As far as the wet feeling goes I developed a fissure this year which made me...
Good luck! Let us know how it goes... I'm up for mine in this summer. I was gonna say chapstick and lotion! Hospital brands suck! Also I always make sure my PJs are xray friendly so they have no...
Hey sgirl, so sorry about your recent pains. I tend to spend a lot of time in the ER on the years I have a colonoscopy so my GI and I put together a game plan. I call him when I know it's time for an...
Kell123 I am so sorry you're having such a rough time right now. The insomnia I deal with pretty consistently. As my pain and or stress increases so does the insomnia. Pain meds, I take hydrocodone,...
@ Nanners LOL my passport photo was taken at the height of my moon face..... I'll have that one till 2015 I believe :shocked: ...it's a wonder no one told me NOT to wear a freakin choker type...
I am uncomfortable sharing period. I use the internet if I have a question lol... @ vixen I can't tell you how many times I've done that! Sooooo sad but if I have to buy or ask for something...
Congrats firemedic!!! I basically just got benched with a stern lecture about rest and less stress...boo ..so consider me happy for you and jealous all at the same time!...
I'm not sure about Methotrexate but with Imuran after a while of being on it my face started to show signs of sun damage. Dark spots and hyperpigmentation so I vote you use really good sunblock on...
Mine are usually on time with a dose of antibiotics though I'm sure I can blame the other times on the Remicade and Imuran... My GYN allows me to just give her a call and she trusts my judgment...
Yes, and I love the daily monthly weekly breakdown! Reminds me I should start taking my Pentasa again...I got super lazy about those in the past 2 yrs :eyes:...
Hi Maeday! I agree awesome screen name. I'm a 31 y/o/f I also had exploratory surgery at 15 but they didn't see the CD yet and honestly I think that surgery (resection of no idea what portion of my...
I wish your son well and hope the Cipro and Flagyl don't affect him too badly...I hate it when they put me on those (D tends to get out of hand) but they were really good for keeping my fistula in...
Hey JavaJay, can I ask what other meds you're on? er....um...guess I already asked ...but you get the idea :blush:...
I have the same problem w/ pain meds some of the time. If I break my pill in half it'll take the edge off w/o giving me that buzzing awakeness :shocked: ....then if I'm still hurting after a couple...
Hi:) I've been on Mirena for almost 4yrs now w/ no complications. Though the spotting for me can be annoying, but it's not as bad as when I tried to take BC pills w/o the week off. I've been dxd w/...
For that exact reason I had my GI move my infusions from every 8wks to every 6wks. My symptoms D, pain, nausea/ vomiting, blood in stool, loss of appetite became more and more intense the closer I...
Thanks Endeavor! ...actually it does help a lot ...patience is not my strongest trait so that advice is important :)...
stuckonyesterday, glad that helped you. I have an awesome nurse! ...but I did forget when I first started the infusions I used to get SUPER anxious. I had never understood anxiety or truly knew what...
OH! I forgot, my main FT job I've managed to keep for the past 7 yrs allows me to work by myself or with one other tech for 12hrs. I get to put my feet up on the desk or lay down if I need to, as...
I am definitely a superhero wishing she was smart enough to keep her butt in bed and at home where she'd feel better! I have three jobs. I work full time as a sleep tech working 7p- 7a. I'm a...
I LOVE my Remicade but it seems to hit home that I'm actually chronically ill and it's never going away, not truly anyways. When my nurse walks in my house and I set up my IV pole and get out my...
I am seeing a colorectal surgeon for a few different issues and I always seem to leave the office confused about what I'm waiting for and what I'm in for at the next appt.. He keeps 'taking a look'...
I was on cipro and flagyl for my perianal fistula a few years ago and ended up w/ a horrible case of thrush that took about 3 wks to heal. I've never taken Xifaxin though...only wanted to know if...
My lower back pain stays in sync w/ the amount of CD pain I'm having. I don't usually have C but I do understand the back pain that goes along with the CD cramping/ stabbing pains. for my back I...
dragonfly, I have no words of wisdom. Though I have heard some women go into remission during pregnancy. I am creeping up on 32 also and fear I've waited too long and been on too many hardcore meds...